Very Overwhlemed

[CarolinaKip]

I'm feeling very overwhlemed this morning! I really do not know where to turn. I had a positive blood test and endo in May. My tGA levels were high. I was having more pain free hours, but now I'm not. I wake up and I feel okay for the most part. As soon as I get up, move around and drink water my right and left sides hurt (cramp up and feel hot inside.) I have given up coffee and my much loved diet pepsi. I've eaten gluten free and have taken extra cautions with soap etc. I don't know where to turn to with this pain still. I am going to be asked to have food testing done.

I'm bloated and wonder if it could be the Metamucil free and clear my dietition recommended.?? That's new and my like for brown rice chips.

Does anyone have any suggestions on laxatives? I'm all for a natural laxative. Also, has anyone ever drank Aloe juice to help heal you?

Thanks in advance I'm feeling lost.

[sb2178]

I found licorice, ginger, and lemon teas to be soothing. It sounds complex, but could you also have h pylori or other ulcers too? Starting an elimination diet might be another option. I really needed a couple of weeks of bland and boring food to pull down the pain (bland as in rice, millet, lamb, turkey, carrot, zucchini, cooked fruit, salt, oil, and a couple of cups of herbal tea when cheating).

Ground flaxseeds can be a good way to add fiber and fatty acids. All natural... other foods to look for are gobo (burdock root) and to start adding asian pears to your diet (crazy high in fiber if you eat the skins). Make sure that the med is free of weird gluten derived ingredients, too.

[TEMP876556]

Have you done an allergen panel since the blood test and endo? It may just be that you have leaky gut syndrome and are reacting to other foods. This is very common in people who have celiac. Your intestine may be building up intolerance towards the foods you eat most often (even healthy ones). I would get the panel done and ask your doctor about a gut healing regimen if that ends up being the case.

[sandsurfgirl]

Metamucil KILLS me with gut pain. I can't tolerate it at all. Get off of that stuff first. Soy gives me pain in my gut like I'm being stabbed.

Your diagnosis is still a bit on the newish side. It can take time to heal. I'm in month 7 and I didn't start feeling really good and normal until about month 5 1/2. I felt better all the time as things resolved but I was still pretty sick.

The best laxative is to eat lots of fresh fruits and vegetables. I'm also a fan of the an old fashioned warm water enema once in awhile if things get too bad. It's natural and does the trick quickly.

There are a lot of supplements out there that are supposed to solve the problems we face, but can cause them too. Supplements are drugs and have side effects just like anything else, so even if it's natural (hey cyanide is natural too) read up on side effects and be careful. Only introduce one new thing at a time and give it a week or so to monitor your reactions.

Eat a clean diet for awhile. Lay off the gluten free substitutes and have eggs and fruit for breakfast, some fruit and nuts for snacks, veggies, big salads with some meat for lunch, a couple of veggies and meat for dinner. You will give your gut time to heal.

[sandsurfgirl]

aloe juice can cause D and all sorts of nasty stuff. I wouldn't do that.

Here's some info I found.

it is important to pay attention to the side effects of this drink especially when you are suffering from a medical condition such as Crohn's disease, colitis, appendicitis and intestinal problems.

Allergic Reaction: In certain cases, aloe vera juice has been known to trigger off mild allergic reactions including skin rashes and itching. Too much of aloe vera juice or a poor quality of juice can also result in allergic reactions such as vomiting.

Abdominal Cramps: The laxative aloin present in aloe vera juice which has not been processed properly can lead to intestinal and abdominal spasms along with cases of the urine turning red. The reason for the aloe-induced toxicity are anthraquinones present in the aloe juice which can result in severe diarrhea and kidney damage.

Electrolyte Imbalances: Dehydration and electrolyte imbalances are one of the most common side effects of aloe vera juice. The stimulant laxatives in unprocessed aloe vera juice can cause dehydration with frequent use.

Medical Conditions: People suffering from gastrointestinal diseases and irritable bowel syndrome need to stay away from aloe vera juice as the laxatives present in it can increase the severity of the diseases. In addition to this aloe vera juice is a strict no-no for people suffering from colitis, intestinal obstruction, diverticulosis, appendicitis, hemorrhoids and stomach pain or ulcers. People who have kidney or heart disease are advised to stay off aloe vera juice.

Pregnancy: Consuming aloe vera juice during pregnancy or while breast feeding is severely restricted due to its irritant and purgative properties. Aloe vera should be restricted during lactation as the presence of anthraquinones in the breast milk may lead to diarrhea. In pregnant women aloe vera juice can cause uterine contractions and even result in a spontaneous miscarriage.

Medication: Certain drugs and medication when combined with herbal products can cause a number of side effects. So in case you are on any of the drugs such as digoxin(Lanoxin), drugs that cause potassium loss, such as Bumex, Demadex, Edecrin, Lasix, and Sodium Edecrin, diuretics, drugs for irregular heartbeats and steroids, then it is advisable to abstain from aloe vera juice.

[glutenfr3309]

def stick to the whole foods for a while- fresh fruits, veggies, and meats!

what brand of rice chips are you eating?

i have noticed that lundberg brown rice chips, even though gluten-free, bother me. i get really gassy and sometimes C.

however, rice works brown rice chips i'm fine. they taste and look exactly the same!

[CarolinaKip]

I have been eating the Lundberg! I stopped and looked at my food diary and all three times I have eaten them, I have had a lot of pain. One time even developed a headache afterwards. I will lay off all that and do the whole foods thing. Thanks for the suggestions!

[CarolinaKip]

On 7/5/2010 at 9:55 AM, TEMP876556 said:

Have you done an allergen panel since the blood test and endo? It may just be that you have leaky gut syndrome and are reacting to other foods. This is very common in people who have celiac. Your intestine may be building up intolerance towards the foods you eat most often (even healthy ones). I would get the panel done and ask your doctor about a gut healing regimen if that ends up being the case.

I've had every other test done, but the alergen panel. I've had a colonoscopy as well, plus 3 ct scans. I am thinking more and more I'm having trouble with other foods. I know I have a problem with diary. Thanks for the suggestions! I'm going to ask to have this done.

[CarolinaKip]

aloe juice can cause D and all sorts of nasty stuff. I wouldn't do that.

Here's some info I found.

it is important to pay attention to the side effects of this drink especially when you are suffering from a medical condition such as Crohn's disease, colitis, appendicitis and intestinal problems.

Allergic Reaction: In certain cases, aloe vera juice has been known to trigger off mild allergic reactions including skin rashes and itching. Too much of aloe vera juice or a poor quality of juice can also result in allergic reactions such as vomiting.

Abdominal Cramps: The laxative aloin present in aloe vera juice which has not been processed properly can lead to intestinal and abdominal spasms along with cases of the urine turning red. The reason for the aloe-induced toxicity are anthraquinones present in the aloe juice which can result in severe diarrhea and kidney damage.

Electrolyte Imbalances: Dehydration and electrolyte imbalances are one of the most common side effects of aloe vera juice. The stimulant laxatives in unprocessed aloe vera juice can cause dehydration with frequent use.

Medical Conditions: People suffering from gastrointestinal diseases and irritable bowel syndrome need to stay away from aloe vera juice as the laxatives present in it can increase the severity of the diseases. In addition to this aloe vera juice is a strict no-no for people suffering from colitis, intestinal obstruction, diverticulosis, appendicitis, hemorrhoids and stomach pain or ulcers. People who have kidney or heart disease are advised to stay off aloe vera juice.

Pregnancy: Consuming aloe vera juice during pregnancy or while breast feeding is severely restricted due to its irritant and purgative properties. Aloe vera should be restricted during lactation as the presence of anthraquinones in the breast milk may lead to diarrhea. In pregnant women aloe vera juice can cause uterine contractions and even result in a spontaneous miscarriage.

Medication: Certain drugs and medication when combined with herbal products can cause a number of side effects. So in case you are on any of the drugs such as digoxin(Lanoxin), drugs that cause potassium loss, such as Bumex, Demadex, Edecrin, Lasix, and Sodium Edecrin, diuretics, drugs for irregular heartbeats and steroids, then it is advisable to abstain from aloe vera juice.

Thank you all for the ideas! I'm going to try them. Thanks for the research on the aloe. This is very much appreciated! I'm sure now that I cannot handle the Lindberg cjips. I loved the lime flavor. I think I am fine with the ricewroks, however, will wait to introduce them. I have checked my medicationS as well. The DR has ruled out many conditions, but the allergy panel. I will mention them all to him when I see him.

[Skylark]

I can't take Metamucil well either. Too harsh!