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jasonD2

Worried A New Clinical Manifestation Will Arise

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I'm really doing the best I can and am taking all the necessary measures to avoid foods im allergic to but at the same time refuse to live in a bubble. Ive been through hell and back for the past 10 years and really hope the future is a bright one.

Still, As cautious as I am about my health Im still very much concerned that something is going on in my body that i have zero control over and eventually a new ailment or disease or problem will surface. I feel like my body is just holding on as long as it can but will eventually cave in

Maybe i should be just eating white rice and salmon and lettuce every day, in fact i probly should be. i found some gluten free english muffins that ive been eating with almond butter & jelly and maybe i shouldnt be. Maybe every time i have a glass of wine its causing damage that i can even see or feel...etc, etc, etc...you get my point

Ive made enormous strides but i still feel psychologically crippled by this whole thing. And now that I'm kinda in the beginning stages of a relationship (maybe) its all even more so apparent how inconvenient and frustrating this is. Aside from therapy what else can I do to feel normal and not worry about all this? Do you guys live in this constant state of fear?

Jason


Endoscopy & blood panel all negative 12/09 after being strict w/ gluten free diet

As of 8/09 - Candida Overgrowth, C.difficile overgrowth, elevated fecal anti-gliadin, elevated putrefactive SCFA's

Developed severe lactose intolerance, IBS and food sensitivities in 02 after contracting Giardia from a river in Oregon

Had negative celiac blood work in 02

Elevated stool anti-gliadin Ab (21 with 10 being cutoff for normal) - 2008

Positive for DQ8- 2008

Tested high positive for egg, dairy, soy, ginger, mustard - 2008

Lactulose/Mannitol (leaky gut) test indicated slight intestinal permeability

Improved with gluten free diet but still have spastic constipation

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I was noticing you were running on the anxious side. Why do you say "aside from therapy"? It sounds like you're living with a little post-traumatic stress. You might find a few sessions of counseling to learn some new thought patterns to be really helpful.

I do wonder about your B vitamin status. Low B12, which so many of us have, can make you anxious. Another thing you can look at is taking inositol supplements. There are studies where 6-12g of inositol a day help anxiety. 5-HTP or SAMe might also be helpful.

I hope some other people have ideas for you, because you DO sound more anxious and worried than is healthy or comfortable.

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If you have recently been getting glutened that may also be increasing your anxiety. You seemed much calmer for a while so I think that your possible CC issues with girlfreind and your reluctance to discuss what needs to done to keep you safe are contributing to how anxious you are feeling right now.

You are saying in other posts that you are now intimate with her. You really need to talk to her about what she needs to do to keep you safe. She is trusting you, and you her, not to be giving each other an STD, or you have discussed it. If she trusts you enough to be intimate, and you her, you should be able to trust her enough to let her know about needing to do things like brushing her teeth before you kiss deeply and making sure her lip products are safe for you.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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