Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Been Mia Because I Am Sure That I Was In Hell......


looking4help

Recommended Posts

looking4help Apprentice

Hello all! I am resurfacing again after being missing for about 2 weeks. Last I was on the boards I was signing off for a day surgery with my OBGYN to check for endometriosis. (sp) That surgery was August 3rd and here it is the 17th. Exactly two weeks later. I am convinced that I was in HELL!

During my laproscopy the OB found that my left ovary and fallopian tube was completely grown attached to my intestines. Therefore, she stopped her procedure and called in a general surgeon to separate.

Then the hysteroscopy which was supposed to be relatively pain free afterward showed that the inside of my uterus was horrible! The OB had to do what she described as an extensive D and C.

Well, all was going fine and well (of course pain meds etc.) and then POW the evil forces of hell came and drug me into a gut wrenching, floor crawling, screaming pain in my gut Friday night (3 days later). I was rushed to the ER and immediately admitted with what they thought was a perforated bowel. Later found out that it was an extreme case of diverticulitus. (3rd bought in less than 2 years!) They think that the manipulation of my intestine when being separated from the ovary and tube flared up some polyps that were in there already.

I have NEVER been in so much pain! I was begging to give birth (natural at that!) to a child in stead. And I know how hard that is because I have 4 kids (1 was completely natural!)

Anyways, I was in the hospital for 5 days which was another torture device from hell I say. My veins were collapsing and both arms are completely bruised from elbow to wrist top and bottom! They finally had to bring down someone from cardio to get a new IV in after I had blown so many out.

OH by the way the hysteroscopy was horrible as well. My uterus felt as if someone was using it to perform acrobatics inside me. It was 100 times worse than any after birth pains I have ever felt!

Now, on top of this of course my husband was an emotional wreck! When the OB had come out to update him after the original surgeries she said, "well everything went according to procedure but......" Well you can guess that his thoughts stopped there and his heart fell to the floor! She finally got him to realize I was actually alive and oh BTW you can see her in about an hour which turned out to be almost 2 hours later because of the amount of pain meds that they had to give me. Also, when he finally did get to see me I was so looped out of everything and puking into a basin. Mind you I do NOT puke in front of anyone and he knows how particular I am about that! So, he knew it was bad.

Then 3 days later while he is at work out of town he finds out that I was rushed to the ER. The poor man was an emotional wreck!

Anyways, I am finally feeling a bit better and I these events did confirm that when mama is so sick she is out of commission the house, kids and hubby actually do kinda break down!

The sad thing is that now I am only part way through my journey. I have to go back to the GI and explain everything to him and let him check off OB visit/endo check off his list. UGHHHHHHH.............. Where will I get the energy??? I just want to lay in bed and cry!

Which I did this past weekend. :o


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

How awful! I hope you feel better really soon!

Monklady123 Collaborator

Omg, how awful! :o I hope all that is the worst that you ever get, and from here on out it gets only better.

vbecton Explorer

Oh sweet baby jesus! I was actually holding my stomach while reading your story. I'm so sorry you had to go through all of that. And why is it that our husbands are always out of town during the good stuff? ;) I know he must have been scared!

And yes, mommies don't get days off. I was in bed all weekend and when I finally decided to peep out I saw the most horrendous sight. Food packages on the living room floor, blankets drug halfway through the house, dog food littered through the pantry, the rabbit cage wide open (knowing full well my dog has been known to kill rabbits), sticky gross countertops with 2 sinks full of dishes, a dirty diaper (pee) on the floor, and so much more. There should be a special maid service for just these types of events!

I hope things are looking up for you. I really hope you find some relief!!

ravenwoodglass Mentor

I am so very sorry you had to go through all this pain. I hope your feeling better soon. If you are still in pain and out of it do call your insurance company and see if they will cover something like a visiting nurse service or call on freinds or relatives to see if perhaps someone could help out even for a nominal fee. You need to rest and recover if you can.

Sending good and healing thoughts your way for a quick recovery.

looking4help Apprentice

You are all so sweet! The pain is gone. Actually GONE! And I don't mean the pain from surgery and the hospital stay but I mean the pain that has been in my left side stabbing me every single day for a year now.

I did notice that the day after surgery before I got drug to hell by the diverticulitus demons but I did not get to enjoy it long at all.

Today for the first day in a SOLID year I have NO NO NO PAIN! I mean I am very exhausted, can't hardly move my body at all but OMG the pain is gone!

I have hope. FINALLY. I truly was about to throw in the towel and was wishing a quick death in my bed Saturday night. Quite a pity party I was having, sad to say.

But you guys are so very supportive here. My BFF is so very sweet to me as is my husband but they don't "get" it. I know I can always come here for help and encouragement!

I am so very sorry you had to go through all this pain. I hope your feeling better soon. If you are still in pain and out of it do call your insurance company and see if they will cover something like a visiting nurse service or call on freinds or relatives to see if perhaps someone could help out even for a nominal fee. You need to rest and recover if you can.

Sending good and healing thoughts your way for a quick recovery.

ravenwoodglass Mentor

You are all so sweet! The pain is gone. Actually GONE! And I don't mean the pain from surgery and the hospital stay but I mean the pain that has been in my left side stabbing me every single day for a year now.

I did notice that the day after surgery before I got drug to hell by the diverticulitus demons but I did not get to enjoy it long at all.

Today for the first day in a SOLID year I have NO NO NO PAIN! I mean I am very exhausted, can't hardly move my body at all but OMG the pain is gone!

I have hope. FINALLY. I truly was about to throw in the towel and was wishing a quick death in my bed Saturday night. Quite a pity party I was having, sad to say.

But you guys are so very supportive here. My BFF is so very sweet to me as is my husband but they don't "get" it. I know I can always come here for help and encouragement!

I am so happy for you that the adhesion removal and other procedures have finally gotten rid of that pain! It must be quite a relief to know that you didn't go through all that for nothing. Doing a 'happy dance' for you. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

What a tale. The surgery sounds beyond awful but I'm so glad to hear they found the cause of that stabbing pain. I hope it's gone for good after the ordeal you went through to be rid of it!

Aphreal Contributor

Oh my GOSH what a nightmare! I am so so sorry :( I am glad to see you well enough to share with us! I lift you up for a speedy recovery.

looking4help Apprentice

I too am happy that ordeal is over! Now, to deal with my nutrition problems and the diverticulitus. That in itself may require another surgery UGH! But, at least I am feeling a bit more hope now.

It was here on the boards that someone convinced me to move forward with the OB surgery! I am soo very glad that I had that support!

Thank you all!

What a tale. The surgery sounds beyond awful but I'm so glad to hear they found the cause of that stabbing pain. I hope it's gone for good after the ordeal you went through to be rid of it!

butterfl8 Rookie

((((((Hugs))))))

Not much else I can add beyond what has been said. So sorry that you had such miserable pain, but very happy to know that the miserable pain may be ending! Best wishes for you. And take good care of yourself!

-Daisy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      11

      Celiac flare years after diagnosis

    2. - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      11

      Celiac flare years after diagnosis

    3. - Peace lily commented on Scott Adams's article in Latest Research
      2

      New Study Reveals How the Immune System Learns Which Foods Are Safe to Eat

    4. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      11

      Celiac flare years after diagnosis

    5. - Jmartes71 replied to Jmartes71's topic in Dermatitis Herpetiformis
      4

      Skin issues

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442

    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
    • Jmartes71
      Thankyou I did find out the Infectious disease is the route to go rather than dermatologist. I did reach out to two major hospitals and currently waiting on approval for one of them in Infectious Diseases to call me. I also did have implants ( I didn't know and sense not properly in my medical. Neither did surgeon)in 2006 and there was a leak 2023 during the same time I was dealing with covid, digestive issues, eyes and skin.Considering I " should  be fine" not consuming gluten/wheat, taking vitamins for sibo and STILL feeling terrible.It has to be parasites. I also take individual eye drops prescribed, could there be an issue there? Anyways my pcp thinks I need therapy because again they don't acknowledge my digestive issues because in my records it shows im fine, hintz the reason I had to go back to bay area hospital:(  I thought skin issues maybe sibo related but I feel and have seen and seriously trying not to think about it because it's disgusting. 
    • Aretaeus Cappadocia
      oops. I didn't see that before posting or I would have at least referenced it. The two recipes are pretty similar, but I think the newer one is a little simpler/faster. Next time though I will search more before posting.
×
×
  • Create New...