Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Confusion Over Bread Crumbs!


Cheryl-C

Recommended Posts

Cheryl-C Enthusiast

Hi folks,

I've been doing gluten-free for a couple of months now, and had thought I'd figured out what my sensitivities were. I've noticed my stomach feels better, my ears feel better, everything has been great.

HOWEVER - last night I discovered my favourite souvlaki (from our local Greek butcher) has bread crumbs in it. I've been eating it about 3 times a week all summer, and haven't reacted to it once. However, I *have* reacted to something as weak as wheat starch in salad dressing.

So.... what gives? Thoroughly confused.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

Hi folks,

I've been doing gluten-free for a couple of months now, and had thought I'd figured out what my sensitivities were. I've noticed my stomach feels better, my ears feel better, everything has been great.

HOWEVER - last night I discovered my favourite souvlaki (from our local Greek butcher) has bread crumbs in it. I've been eating it about 3 times a week all summer, and haven't reacted to it once. However, I *have* reacted to something as weak as wheat starch in salad dressing.

So.... what gives? Thoroughly confused.

its weird, i know- but i totally believe it. my reactions to gluten are NOT always the same- and NOT always noticeable. your experience is no surprise to me at all. when i used to eat gluten- reactions varied, digestive ailments varied, location of excema or psoraisis varied, it was always different. sometimes a tiny amount here and there wouldnt bother me- its just the way it is. there's so much complexity to our bodies-> and when we ingest this poison- our body may flare up differently each time

just make sure you're more vigilant.. even if you're not reacting to meatballs- or whatever that greek thing was-> it's still hurting you.

RiceGuy Collaborator

Each individual reacts differently to gluten. I suppose it may be that even though your diet hasn't been 100% gluten-free, it's in considerable contrast to your previously gluten-filled diet such that you can feel the difference. You may also have a wheat allergy, and in that case the reduced amount of exposure would also provide some relief.

I think you may find that you feel even better once you've consistently maintained a 100% gluten-free diet.

Cheryl-C Enthusiast

Thanks for the ideas. I was thinking something along the sames lines of each of you. I have noticed the last couple of times I ate the (so awesome) souvlaki, my gut was fine but my breath was a little shallow. Because we've been undergoing some fluctuating weather in Toronto this last week or so, I had put it down to that.

My dr had said I may have a "grain allergy" so that might explain, as Riceguy pointed out, the difference in response. Unfortunately I can't get in to see the allergist until the beginning of November. :(

CassP, I too have noticed sometimes my responses vary. Sometimes GI, sometimes sinuses, sometimes ear pain, and possibly shortness of breath. I guess it will take a while to sort out. I've been keep a food diary for the last two months with the hope of getting a clearer picture, but I guess I still over looked something. It never occurred to me that there might be bread crumbs in the souvlaki :( It breaks my heart, because as a beef/lamb combo, they are SO RICH IN IRON (my iron is really low) and also .... so freaking tasty. :(

cassP Contributor

Cheryl- you can still get your iron in beef, lamb, dark turkey, eggs, and cultured soy, spinach. but i understand the frustration- i bet souvlaki (sp?) is delish.

i get the Shortness of Breath too!!!! ive seen it on the forum before- ive had it off and on for 27 years. ive only been gluten free 100% for over 2 months. i hope it goes away soon FOREVER!!!

Cheryl-C Enthusiast

Cheryl- you can still get your iron in beef, lamb, dark turkey, eggs, and cultured soy, spinach. but i understand the frustration- i bet souvlaki (sp?) is delish.

i get the Shortness of Breath too!!!! ive seen it on the forum before- ive had it off and on for 27 years. ive only been gluten free 100% for over 2 months. i hope it goes away soon FOREVER!!!

CassP - it's true, there are lots of good ways to get iron. I've never been someone who loved to eat meat, especially beef (yuck) so when we found this tasty combo of beef and lamb (with spices) it was heaven. Anyone who's had a Greek Gyro knows the taste I'm talking about. Ooooo. :D That said, it makes me wonder if I could find them somewhere else without the bread crumbs? Or if I ordered enough of them they'd make them without them.... hmmm.... I'd probably have to buy about 100 at a time, but heck, that's what a freezer's for.

The shortness of breath is something I've only recently noticed. It happened after the blue corn incident, and after the last time I ate the souvlaki. Both times I put down to asthma because of the weather, but now I'm really curious....

cassP Contributor

OH- if they could make them special for you- gluten-free- then that would be a great idea- and freeze some ... YUMMM

my dad made meatballs for my birthday with gluten free bread crumbs- they were DELISH.

but i LOVE my red meat.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



anabananakins Explorer
Or if I ordered enough of them they'd make them without them.... hmmm.... I'd probably have to buy about 100 at a time, but heck, that's what a freezer's for.

I reckon they would and probably not even make you get too many at a time either. Butchers often do special orders, my mum always asks for a particular cut for when she makes roast beef. They'll probably be flattered that you love it so much and it's nice for them to get feedback on what the customers want, they could only tell otherwise based on sales and that's harder if they can't tell who is a repeat customer. Definitely worth asking! Besides, omitting an ingredient can only cost them less and if it doesn't affect the taste, maybe they'll do it permanently and make other people happy too?

Cheryl-C Enthusiast

I reckon they would and probably not even make you get too many at a time either. Butchers often do special orders, my mum always asks for a particular cut for when she makes roast beef. They'll probably be flattered that you love it so much and it's nice for them to get feedback on what the customers want, they could only tell otherwise based on sales and that's harder if they can't tell who is a repeat customer. Definitely worth asking! Besides, omitting an ingredient can only cost them less and if it doesn't affect the taste, maybe they'll do it permanently and make other people happy too?

I think it's definitely worth a try. We buy them a lot, they're used to seeing our faces there once a week or so. I guess if we went a time that wasn't busy, I'd be able to talk to someone about it and get some more information. I'd be willing to keep a standard order even, to guarantee them the business. I want my kabobs, darnit! lol I will keep you all posted on my progress.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    2. - CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    3. - Wheatwacked replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    4. - Wheatwacked commented on Scott Adams's article in Origins of Celiac Disease
      19

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

    5. - trents replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,188
    • Most Online (within 30 mins)
      10,442

    Lhughes327
    Newest Member
    Lhughes327
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possibly way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
    • cristiana
      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal.  My TTG score was completely through the roof at the time, greater than 100 which was then the cut off max. for my local lab.  Yet when my biopsy results came back, I was told I was stage 3 on the Marsh scale.  I've come across the same thing with at least one other person on this forum who was told everything looked normal, but the report was not talking about the actual biopsy samples, which had to be looked at through a microscope and came back abnormal.
×
×
  • Create New...