Anyone With Food Allergies And No Gi Symptoms?

[adab8ca]

I am a neuro celiac only: 41 years a silent celiac it seems and then 1 year of total mental and physical meltdown...Never had GI symptoms with my celiac, but BAD depression/anxiety and severe neuropathy. I am 4 months gluten-free and not really feeling much better (although I have put on some weight-before I was diagnosed, I lost about 25 pounds without trying but with no stomach symptoms to explain it, and now I am up about 12 pounds.)I do realize that with the total villous atrophy and being off scale on the TTG I have some healing to do. Now I am learning about other food intolerances and I am wondering if I could have these without GI symptoms and if I do for example have an intolerance to lactose, would eating lactose slow the healing of my villi? Also reading scary things about corn, so I am not a happy camper.

I am very strict with my diet, avoiding most processed foods. I would ask my doctors but because I am a non standard patient (medical mystery to the GP, GI and neurologist that I have seen in my travels for a diagnosis)they really don't know what to do with me.

I just want to do everything I can to feel better but I don't even know what that is. My stomach seems fine but everything else hurts (joints, nerves)

[ravenwoodglass]

Are you supplementing with sublingual B12? If you not you may want to and see if it helps. It can take what seems like a really long time for the joint and neuro symptoms to resolve. For me it also took avoiding soy for the joint pain to go away completely. You may want to try eliminating soy and see if that helps. Do be sure to avoid any risk of CC and check all your supplements and script and OTC meds if you are not already.

[cassP]

I am a neuro celiac only: 41 years a silent celiac it seems and then 1 year of total mental and physical meltdown...Never had GI symptoms with my celiac, but BAD depression/anxiety and severe neuropathy. I am 4 months gluten-free and not really feeling much better (although I have put on some weight-before I was diagnosed, I lost about 25 pounds without trying but with no stomach symptoms to explain it, and now I am up about 12 pounds.)I do realize that with the total villous atrophy and being off scale on the TTG I have some healing to do. Now I am learning about other food intolerances and I am wondering if I could have these without GI symptoms and if I do for example have an intolerance to lactose, would eating lactose slow the healing of my villi? Also reading scary things about corn, so I am not a happy camper.

I am very strict with my diet, avoiding most processed foods. I would ask my doctors but because I am a non standard patient (medical mystery to the GP, GI and neurologist that I have seen in my travels for a diagnosis)they really don't know what to do with me.

I just want to do everything I can to feel better but I don't even know what that is. My stomach seems fine but everything else hurts (joints, nerves)

you're NOT a "medical mystery". according to a study out of Columbia University (even tho i do not agree with everything Dr. Green says): only 1 in 6 Celiacs have any gut symptoms.

now- since you dont- i imagine it must be hard to judge how you're healing- if i were you i would in addition to no gluten, i would limit or avoid dairy for a good 6 months at least. you could limit corn & sugar too. it's hard to tell you what to do- many people on here are just fine with corn- but i am totally not.

also- just try to eat really healthy with lots of whole foods, veggies & fruits & lean organic meat. try to keep your "gluten free" desserts and cereals and breads to a minimum- try to save them for "cheats".

and then to judge how you're healing- you should retest your ttg in 6 months or a year- to see if the numbers have come down.

and like many of us are doing right now- keep up with your doc, get everything tested especially vitamin B12 & D... a deficiency in B12 can cause peripheal neuropathy.

good luck and welcome

[SaraKat]

I have no gut issues. The only symptom I had was joint pain in the ribcage area and I have been anemic for years with no explanation. I have been gluten-free since September and don't seem to have any other food issues- I still drink milk and eat things with corn. Good Luck!

[Skylark]

If you eat something you're allergic or intolerant to, you will get symptoms. That's the definition of allergy/intolerance. The problem is pain like you're noticing can can be pretty slow. It might take eating the food for a few days to get pain, or you might have a reaction that's delayed for a day or two. You might consider talking to your Dr. about a food allergy panel, then eliminate those foods for a time and see if you feel better. You will not necessarily react to everything that comes up positive in an allergy panel, so your Dr. can talk to you about how you eliminate foods and then challenge.

The only thing that may cause a celiac reaction is oats, as probably 10-15% of celiacs can't eat them. You would react to those with your "gluten" reaction, whatever that is. Lactose won't do villous damage, but it seems to me that eating something that gives you cramping and D wouldn't be helpful? Sort of common sense there. A lot of celiacs have trouble with casein too, because of cross-reactions with the anti-gliadin antibodies. I strongly suggest you eliminate dairy entirely for a time and see if it helps. Once they heal, some celiacs can tolerate dairy again, and you may also become more lactose tolerant.

Anything on the "big 8" list -- milk, eggs, peanuts, tree nuts, fish, shellfish, soy, wheat -- is more likely to cause a reaction than other foods. People can have corn allergies and sensitivities but it's somewhat more uncommon. (And sometimes organic corn is tolerated but not GMO.)

[T.H.]

I have neuro and joint pain symptoms. They didn't resolve on a gluten free diet, but they are slowly resolving on a super gluten free diet.

However, it's a pretty crazy diet. gluten-free grains, as well as nuts and beans, tend to have too much gluten cc for me to handle unless I choose them carefully, veggies and fruits that have come into contact with gluten cause me trouble (sprays or wax coatings with gluten, or with gluten cc'd ingredients), meat that is cut up near gluten coated meat tends to cc it too much for me to handle. Even gluten containing soap used on processing machines could be an issues, it seems.

Perhaps I'm wrong and its something else, but so far, when I eliminate everything that has ever touched gluten, or as close to it as I can get, then I seem to get better.

Perhaps lowering your gluten content might help you too?