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Prairigirl

Diagnostic Test Numbers

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By what I can gather my IGA was 164

My IGA was negative

My TTG-IGa ab was 10.3

Gliadin PEP was 2.0

My IGA was 164

HOWEVER my biopsy was Marsh I. Confusing!!

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The biopsy is usually the most significant test. Did they tell you that you have Celiac?

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By what I can gather my IGA was 164

My IGA was negative

My TTG-IGa ab was 10.3

Gliadin PEP was 2.0

My IGA was 164

HOWEVER my biopsy was Marsh I. Confusing!!

Marsh I "IS" a celiac stage. Marsh 0 is normal. Per wikipedia: The classic pathology changes of coeliac disease in the small bowel are categorised by the "Marsh classification." See "Pathology" under http://en.wikipedia.org/wiki/Coeliac_disease

The way I look at it, celiac gets worse and worse over time. The fact that you (and I) were "only" Marsh I is good - it means that they caught it early. As sick as I was at Marsh I, I'd hate to see me if I hadn't been diagnosed until Marsh III or IV. Going gluten-free can help you avoid all the negative health impacts if you were to wait until a higher Marsh stage. HTH

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My My TTG-IGA AB was over 100 and I was Marsh 3

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I see a GI finally next week. The biopsy was done by a surgeon who was trying to figure out what was going on. The pathology report said "suspected" celiac but I need to see the specialist next week

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If your biopsy was Marsh 1 you are very likely to be celiac no matter what the blood test results are. False negatives on both blood and biopsy are all too common. When all the testing is done go gluten free. Some doctors will tell you to keep eating gluten and then come back in a year to see if the villi are totally destroyed, IMHO that is very bad advice. Hopefully that won't be the advice you get.

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