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So, it's finally done and over with, and it was probably the easiest thing I've ever been through. Didn't remember a thing.

Anyway, the preliminary results are:

Stomach: moderately severe chronic gastritis (1 biopsy taken)

Duodenum: diffuse atrophic mucosa found in second portion. (And it looks like they only took one biopsy. Grrr. I go back in a week to see what the biopsy results are.)

Anyone know what the duodenum finding might mean?

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This could be associated with celiac. Since your done with testing you can now start a trial of the diet. You may even get some relief from your symptoms before you go back for the results of the biopsy.

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Thank you. I just want this to be done and over with. Now I'm afraid that the one and only sample will come up negative :( That will be quite upsetting. He said he'd do a pill cam if the biopsy was negative, so I should probably stay on gluten. Oh joy.

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Thank you. I just want this to be done and over with. Now I'm afraid that the one and only sample will come up negative :( That will be quite upsetting. He said he'd do a pill cam if the biopsy was negative, so I should probably stay on gluten. Oh joy.

I have to get another endoscopy next week. I had an endoscopy a few weeks ago and they took 3 samples for biopsy. visually everything looked fine. The stomach sample was fine, the duodendum sample was fine, but the small intestine one showed signs of celiac. So on my next biopsy they are going to take more samples because they failed to take more the first time. I am curious as to why the didn't take any of your small intestine, that is usually where most of the damage is seen. I too am staying on gluten until my next endoscopy is done and then I can try the diet and see if it helps. Good luck!

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I have to get another endoscopy next week. I had an endoscopy a few weeks ago and they took 3 samples for biopsy. visually everything looked fine. The stomach sample was fine, the duodendum sample was fine, but the small intestine one showed signs of celiac. So on my next biopsy they are going to take more samples because they failed to take more the first time. I am curious as to why the didn't take any of your small intestine, that is usually where most of the damage is seen. I too am staying on gluten until my next endoscopy is done and then I can try the diet and see if it helps. Good luck!

Don't you wish they'd just do it right the first time?? The procedure was easy enough, but I wouldn't want to do it again. Don't have much patience for waiting around and dealing with the whole hospital environment.

Well, the Duodenum is the first part of the small intestine. It has three parts altogether, I believe. I'm hoping that one sample will be really clear and get me a diagnosis. I don't want to swallow a pill the size of a small plastic toy. I also can't wait to quit the gluten. No matter how little I eat, I cannot lose any weight. Very frustrating.

Good luck next week!

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With this finding to the naked (well, not quite) eye: "Duodenum: diffuse atrophic mucosa found in second portion." he should have been able to see well enough to biopsy the right area.

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With this finding to the naked (well, not quite) eye: "Duodenum: diffuse atrophic mucosa found in second portion." he should have been able to see well enough to biopsy the right area.

Good point!! I have my appt. on Wednesday to find out the results. Until then, I'm trying to think about anything but those results. It's not working....

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Well, I just got back from my appointment with the GI, and my one biopsy came back normal. He's decided he's done with me, no pill cam. He pointed out my negative blood tests, too. Um, yeah, when you're not eating gluten, it's not a good idea to take blood tests (this was back on Jan. 27, pre-gluten challenge).

The only thing he said is that I could have subclinical Celiac Disease since I did have the changes in mucosa in the small intestine, which were flat according to him. Whatever subclinical means. I don't know.

I guess I'm done with doctors now. He treated me like a silly child with quite an imagination, which was completely different than the way he acted at my first appt.

I have one of those Biocard things heading my way now, so I'll give myself one last shot to test positive on TTg Iga before I say good riddance to gluten forever, which I fully plan to do.

I'm SO frustrated right now, I need to go suit up and find my punching bag. lol.

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I think you need to get yourself a copy of that pathology report and find out where it was taken from and what it said. :o

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I think you need to get yourself a copy of that pathology report and find out where it was taken from and what it said. :o

I totally agree. I got a copy of mine today when I left because I asked for one (I knew I would never remember what they were saying after just awaking from sedation and I was right). They will give me another when the biopsies come. My report even has little pictures : ) Also I wanted one so my mother or other families can have it if and when they need to get tested for celiac. Good to have.

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I'll just list the stuff for the small intestine, and not the stomach biopsy.

Final Diagnosis:

Small Bowel Biopsy: Small intestinal mucosa with no histopathologic abnormality

Specimens Received:

Specimen B: small bowel bx consists of 3 fragments of pale tan tissue, the largest measuring in greatest diameter 0.5 cm, the smallest 0.2 cm. All 3 fragments are submitted in a single cassette.

There was only a microscopic description given for the stomach biopsy, which was negative for H-Pylori. Nothing else given for the small bowel one.

So now I'm confused if it was 1 biopsy or three. Do fragments count?

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I'll just list the stuff for the small intestine, and not the stomach biopsy.

Final Diagnosis:

Small Bowel Biopsy: Small intestinal mucosa with no histopathologic abnormality

Specimens Received:

Specimen B: small bowel bx consists of 3 fragments of pale tan tissue, the largest measuring in greatest diameter 0.5 cm, the smallest 0.2 cm. All 3 fragments are submitted in a single cassette.

There was only a microscopic description given for the stomach biopsy, which was negative for H-Pylori. Nothing else given for the small bowel one.

So now I'm confused if it was 1 biopsy or three. Do fragments count?

Hmm...I am not sure. But did the actually give you the biopsy results today? when I went in the first time they said everything looked fine, then a week later the results came in with the inflammation and all that. How did they get their biopsy results so quickly?

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Hmm...I am not sure. But did the actually give you the biopsy results today? when I went in the first time they said everything looked fine, then a week later the results came in with the inflammation and all that. How did they get their biopsy results so quickly?

I had the endoscopy on March 30 and was given a preliminary report the same day, with pictures, too. It reported diffuse atrophic mucosa in the second part of the duodenum. This was all stuff he could see with just the scope.

Today was the appt. for the actual biospy results, which I listed above. The file date listed on the pathology report says April 1, so their labs must move really fast. It was nice not to wait too long, though.

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Yes, fragments count. They don't take big hunks, just little snips here and there in likely places.

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Yes, fragments count. They don't take big hunks, just little snips here and there in likely places.

 

I am reviving this long-closed thread from 2011, just to ask people here if they believe such situations are common.

I hope and pray that I will discover tomorrow on the follow-up visit that this will be my situation too.

 

During endoscopy dr. sees "2nd portion of duodenum: atrophic" with the naked eye - yet the biopsy comes back negative. If you read above, this was the case of the lady in this thread. 

 

My case so far: dr. saw "2nd portion of duodenum atrophic" as well as "duodenal bulb: atrophic" with the naked eye, during endoscopy; and he later sent me a standard letter with results from biopsy at home that only mentioned "reflux esophagitis".

 

I am so desperate to believe that he would have also mentioned "villous atrophy" on that letter (under "other____________") had the lab actually seen it under the microscope. ...

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I am reviving this long-closed thread from 2011, just to ask people here if they believe such situations are common.

I hope and pray that I will discover tomorrow on the follow-up visit that this will be my situation too.

 

During endoscopy dr. sees "2nd portion of duodenum: atrophic" with the naked eye - yet the biopsy comes back negative. If you read above, this was the case of the lady in this thread. 

 

My case so far: dr. saw "2nd portion of duodenum atrophic" as well as "duodenal bulb: atrophic" with the naked eye, during endoscopy; and he later sent me a standard letter with results from biopsy at home that only mentioned "reflux esophagitis".

 

I am so desperate to believe that he would have also mentioned "villous atrophy" on that letter (under "other____________") had the lab actually seen it under the microscope. ...

 

I am unclear what you are asking.

 

This thread provides exactly the same information we have suggested to you for the past 24 hours in your other thread.

 

Go to your doctor and request the original pathology report.

 

The member you have replied to is no longer active on this board, thus will be unable to respond.

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I am unclear what you are asking.

 

This thread provides exactly the same information we have suggested to you for the past 24 hours in your other thread.

 

Go to your doctor and request the original pathology report.

 

The member you have replied to is no longer active on this board, thus will be unable to respond.

 

Well, basically I never understood whether "atrophic duodenum seen by dr. during endoscopy procedure"  = "villous atrophy seen by the lab under the microscope".

 

Yes, I will ask for clarification today, including pathology report from the lab itself, Celiac panel (regardless of results) and nutrient panel (regardless of results).

 

Thank you again.

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