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Guest imsohungry

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Guest imsohungry

Ok everyone....

Please don't lecture to me. I made a mistake; I pitched a temper tantrum...and now I'm confessing out loud. :(

This weekend I had classes for school. I've had seizures all week, and my body was hurting from the autoimmune problems.

I got so fed up...I finally said to myself, "WHY DO I CARE?" I take nearly 20 pills a day, don't eat gluten, pamper my super-sensitive seizure-ridden body, deal with all of the side effects of these dam* medications, have horrible joint and muscle aches, every day new pain, and I'm still in my 20's!!!! :(

Anyway, I rebelled and ate gluten all weekend away at school. Pizza and junk food...boy was it good! :unsure: And STUPID of me! <_<

Needless to say, fatigue, diarreah, migraine, and cramping followed. What's worse is that the seizures still came and the joint pain just got worse! I solved nothing by pitching my temper tantrum...I just hurt myself.

I had to take today off work. Too tired to go in to the office...completely worn out from the repercussions of my weekend of rebellion.

Oh well, I guess I answered my question, "Why do I care." My body feels like I've been hit by an 18-wheeler right now...I guess that's why I care.

Thanks for reading. :rolleyes: -Julie

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Guest nini

no lectures... just cyber {{{{{{{{{{{HUGS}}}}}}}}}}}}

hope you feel better soon.

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I'll bite my tongue this time too :D I hope you feel better and hopefully this helped you so you won't do it next time. *HUGS*


Kaiti

Positive bloodwork

Gluten-free since January 2004

Arkansas

Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

"One Nation, Under God"

Feel free to email me anytime....jkbrodbent@yahoo.com

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Yes--nothing needs to be said. Sometimes you need to go through that testing stage to remember why this takes such a high priority in your life. I haven't needed to, but everyone is different. Feel better :(

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I'll be thinking of you and hoping you feel better. Two weeks after my diagnosis, I thought it would be smart to see if this was really "it" and ate a brownie. Well, it is definitely gluten that hates me. I know its not necessarily the smartest thing to do, but it did teach me a valuable lesson and I have never been tempted to cheat again. Sometimes its important to learn something yourself rather than learning it from others.

Rest and feel better soon-take care.

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Hope you feel better soon, and that your will is renewed :)


~~~~~~~

Jen

Indianapolis, IN

gluten-free since Feb 2005

dairy-free

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I would have said "I told you so" but you had the wisdom to figuire that one out for yourself. Hope you recover quickly.


If all the world is indeed a stage and we are merely players then will someone give me the script because I have no f!@#$%^ clue as to what is going on!

What does not kill you makes you stronger.

Nobody cares about losers and quitters never win. If you fail with the cowards then what's the message you send?

Can't get it right, no matter what I do. Might as well be me and keep fu@$ing up for you. - Brian Thomas (Halloween, the greatest metal band ever!)

Ian Moore. Self diagnosed at 36 because the doctors were clueless.

Started low-carb diet early 2004, felt better but not totally gluten-free. Went 100% gluten-free early 2005 and life has never been better.

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Guest imsohungry

Thanks for the support (and no lectures) everyone. :)

I am beginning to feel better. Gosh, I need a good kick in the butt! :rolleyes:

I mean...the pizza WASN'T even that good!! :blink:

My mom always told me as a child pitching temper tantrums didn't get you anything.... Well, mom was right! :rolleyes:

Ya'll know I'm usually a positive person... thanks for your (((Hugs))) and support.

Take care of yourselves (and I'll do the same) B)

-Julie

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I was accidentally glutened about 3 weeks ago. I still don't feel completely better. <_< The really sad thing is that just before this happened, I was feeling the best I have felt in 20 years. Almost zero joint and muscle pain, sleeping better, ect. Then I was gluttened and now I'm still paying for it.

I've always said since I learned I was a celiac that "nothing tastes as good as not being sick"! :) Being glutened just reinforced that feeling. :)

Hope you feel better soon, I'm sorry you still have to go through so much. Do you take vitamins? A B-complex may help you feel better. Try omega 3 also.

Wendy

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I'm still amazed at times about being "glutened" and how powerful of a reaction it can be. I had my first 'documented' case of being glutened a few weeks ago I believe (it can be hard to tell for me). My friend had some balsamic dressing, homemade, at a restaurant, and commented on how nasty it tasted. I, being a cook-type, wanted to taste it and critique, and when I did taste it my brain went (*%#&! This isn't balsamic vinegar, its soy sauce!) I tried not to swallow, and wiped my tongue off, but had a similar experience later that day with a bar that was said to be gluten-free when I called the manufacturer. A day or so later I got the major fatique, brain fog and head ache that lasted for over a week. Arg. Watch out for those Peaceworks KIND fruit and nut bars. When I called the manufacturer they insisted they were all gluten-free--one of the bars I checked, for the heck of it, and the lable said wheat fiber. They must be smoking some crack over at Peaceworks if they think that is gluten-free :P !


~~~~~~~

Jen

Indianapolis, IN

gluten-free since Feb 2005

dairy-free

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I did kinda the same thing this weekend, only just once, not the whole weekend. I have been pretty much gluten-free for almost 4 weeks now. Diarrhea gone for the first time in literally years, for more than just a week at a time. I haven't gotten a positive diagnosis yet, (I go in for the results of the blood tests tomorrow). Anyway, I spoke to a dietitian when I started this, and she said to see how it goes, then if I see an improvement, try something with gluten in it and see what happens. I've accidentally had gluten a few times, but really didn't bother me--it was hidden in things that I didn't realize until too late. Then, Friday night, I was out running errands, and about 6 o'clock, I was starving, and 1/2 hr from home, so I decided since it was the weekend, I would test myself. I went thru the drive-thru at Burger King and got a hamburger and fries. I was fine that night, but Saturday afternoon, out of the blue, I got sick again. For about 4 hours. Sunday, I drank a glass of milk, and got sick several more hours. On and off for the last few days now I've continued to have diarrhea. I'm thinking when I have the diarrhea, I can't tolerate milk. Any other time, I have no problem with dairy.

I really was thinking I may not have this because it seems like everytime I get tested for anything but a urinary tract infection, the tests come back negative. ALWAYS. But after seeing how quickly I went from being "normal" to having diarrhea, and how long and bad it's been, I'm starting to think I do have it. Guess I won't be eating a hamburger with a bun again anytime soon! :(

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If anybody is going to eat gluten, or even THINK they might by accident, they should try this:

http://www.kirkmanlabs.com/products/enzyme...60_Spec230.html

I have some, and am going to try it the next time I go to eat out, or anytime I think I might get glutened.

This stuff COULD start changing the future of Celiac disease for many of us. One person on this board tried it, but got sick because she has another condition that does not agree with it.

A trial sample bottle only cost 3.50.

I'm going to show this to my gastro Dr. the next time I see him, which will be in a couple of months. I definitly will have tried it by then.

I'd like to know if anybody else had any experience with it - right now, it's the only choice we have for help.


Diagnosed with Celiac March, 2005: Positive endoscopy, blood tests and biopsy. Gluten free since March 2005.

Retested Jan. 2006: Negative blood tests: "Results do not support a diagnosis of celiac disease. Serological markers for celiac disease were not detected."

Results for 2006 endoscope/biopsy pending.

Ignorance is preferable to error, and he is less remote from the truth who believes nothing than he who believes what is wrong.

-Thomas Jefferson

Give me the storm and stress of thought and action rather than the dead calm of ignorance and faith. Banish me from Eden when you will but first let me eat of the fruit of the Tree of Knowledge.

- Robert Green Ingersoll

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Glad to hear that you're starting to feel better :)

and BTW

I mean...the pizza WASN'T even that good!!
Thanks for saying that the pizza wasn't good :D I am craving it right now. I just polished off a whole pint of blueberries though to make me stop thinking I'm hungrey :lol:

Carrie Faith

Diagnosed with Celiac Disease in March 2004

Postitive tTg Blood Test, December 2003

Positive Biopsy, March 3, 2004

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Guest imsohungry

Thanks for sharing your stories everyone! B)

Jen and Wendy

Yep, it stinks to get accidently glutened... especially b/c of label/manufacturer screw-ups! <_<

Drewsant,

I hope you get firm answers soon on your health...but either way, do what makes you feel healthy. Maybe you've found your answer! :)

Chap,

Thanks for the info.

Carrie,

Funny thing was...it really WASN'T that good :blink: I just knew in my mind that it would be delicious, but I was kind of disappointed. And it DEFINITELY wasn't worth the pain. Good grief! :rolleyes: Nah, I've become so used to my little gluten-free pizza until the gluten stuff didn't taste as good as I remember! :)

Take care ya'll. ;) -Julie

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If anybody is going to eat gluten, or even THINK they might by accident, they should try this:

http://www.kirkmanlabs.com/products/enzyme...60_Spec230.html

I have some, and am going to try it the next time I go to eat out, or anytime I think I might get glutened. 

This stuff COULD start changing the future of Celiac disease for many of us.  One person on this board tried it, but got sick because she has another condition that does not agree with it. 

A trial sample bottle only cost 3.50. 

I'm going to show this to my gastro Dr. the next time I see him, which will be in a couple of months.  I definitly will have tried it by then.

I'd like to know if anybody else had any experience with it - right now, it's the only choice we have for help.

<{POST_SNAPBACK}>

It may be something to try to see if it helps with symptoms after they have it but you can't see if its damaging your body you just see if it is masking the symptoms. I think people will think this is an oppurtunity to cheat when they still would do damage to themselves.


Kaiti

Positive bloodwork

Gluten-free since January 2004

Arkansas

Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

"One Nation, Under God"

Feel free to email me anytime....jkbrodbent@yahoo.com

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It may be something to try to see if it helps with symptoms after they have it but you can't see if its damaging your body you just see if it is masking the symptoms. I think people will think this is an oppurtunity to cheat when they still would do damage to themselves.
I agree. It would be something to take during accidents or when you are eating out and worried about cross-contamination. However, it would not prevent intestinal damage, just help relieve symptoms.

Carrie Faith

Diagnosed with Celiac Disease in March 2004

Postitive tTg Blood Test, December 2003

Positive Biopsy, March 3, 2004

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Hi,

And I thought I was the only one what wanted to rebel. I've got a major case of "why did this happen to me - screw it" .... and have been fighting off a major urge to eat what I want. It's been very difficult these past two weeks and I don't know if I'm over it just yet ... My biggest problem is that I didn't really get as sick as you all.

Sorry to hear the pizza wasn't worth it. I want a BLT on Wonder Bread .... it's the Wonder Bread that I crave.

Ann

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It may be something to try to see if it helps with symptoms after they have it but you can't see if its damaging your body you just see if it is masking the symptoms. I think people will think this is an oppurtunity to cheat when they still would do damage to themselves.

<{POST_SNAPBACK}>

From reading the manufacturer's information, it has the ability to actually DIGEST gluten - so hopefully there should be no damage, or symptoms to "mask", if the gluten is digested properly.

These are the same supplements that are being studied at Stanford and in Oslo.

http://mednews.stanford.edu/releases/2002/...ber/gluten.html

We can help by giving it a chance.

Having health problems from gluten ingestion, either accidental or deliberate, will eventually be unnecessary, and we may yet see that day in the not-too-distant future. :lol:


Diagnosed with Celiac March, 2005: Positive endoscopy, blood tests and biopsy. Gluten free since March 2005.

Retested Jan. 2006: Negative blood tests: "Results do not support a diagnosis of celiac disease. Serological markers for celiac disease were not detected."

Results for 2006 endoscope/biopsy pending.

Ignorance is preferable to error, and he is less remote from the truth who believes nothing than he who believes what is wrong.

-Thomas Jefferson

Give me the storm and stress of thought and action rather than the dead calm of ignorance and faith. Banish me from Eden when you will but first let me eat of the fruit of the Tree of Knowledge.

- Robert Green Ingersoll

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I agree. It would be something to take during accidents or when you are eating out and worried about cross-contamination. However, it would not prevent intestinal damage, just help relieve symptoms.

<{POST_SNAPBACK}>

How do you know that? Did you read these links?

Peptidase supplement product for Gluten ingestion now available. If the link does not work, it is by Kirkmanlabs.com and the product is called DPP-IV FORTE™ Capsules, under "enzymes":

http://www.kirkmanlabs.com/products/enzyme...60_Spec230.html :D

Research at Stanford University regarding Peptidase dietary enzyme supplement:

http://mednews.stanford.edu/releases/2002/...ber/gluten.html

Originally posted by Michelle:

http://www.nsf.gov/od/lpa/news/02/pr0277.htm


Diagnosed with Celiac March, 2005: Positive endoscopy, blood tests and biopsy. Gluten free since March 2005.

Retested Jan. 2006: Negative blood tests: "Results do not support a diagnosis of celiac disease. Serological markers for celiac disease were not detected."

Results for 2006 endoscope/biopsy pending.

Ignorance is preferable to error, and he is less remote from the truth who believes nothing than he who believes what is wrong.

-Thomas Jefferson

Give me the storm and stress of thought and action rather than the dead calm of ignorance and faith. Banish me from Eden when you will but first let me eat of the fruit of the Tree of Knowledge.

- Robert Green Ingersoll

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