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- trents replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications6Hidden Gluten in distilled vinegar
@Manaan2, have you considered the possibility that she might be cross reacting to some food or foods that technically don't contain gluten but whose proteins closely resemble gluten. Chief candidates might be dairy (casein), oats (avenin), soy, corn and eggs. One small study showed that 50% of celiacs react to CMP (Cow's Milk Protein) like they do gluten... -
- Lynnard commented on Jefferson Adams's article in Gluten-Free Foods & Beverages6Blistex Medicated Lip Balm and Other Gluten-Free Brands
I just looked up Carmex chapstick. I got to a screen that listed ingredients and was about to conclude it was safe. There was a button that said more about our ingredients and then I saw it listed colloidal oatmeal (which wasn't listed on the first screen).- blistex
- blistex medicated lip balm
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- DarcieJane commented on Scott Adams's event in Gluten-Free Community Calendar1NCA ROCK Virtual Meet-Up for High Schoolers (February 2025)
Was trying to register for the event but it says it already happened. May need to refresh your zoom link. -
- Lily Ivy replied to K6315's topic in Related Issues & Disorders5Newly gluten free… withdrawal?
Gluten withdrawal is temporary, eat well!! -
- Manaan2 replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications6Hidden Gluten in distilled vinegar
I realize I'm super late in the game regarding this topic but in case anyone is still reading/commenting on this one-does anyone who is especially sensitive have their personal observations to share regarding Primal Kitchen brand? My daughter was diagnosed almost 2 years ago with celiac and within 6 months, her follow up labs were normal and a year later...
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@Manaan2, have you considered the possibility that she might be cross reacting to some food or foods that technically don't contain gluten but whose proteins closely resemble gluten. Chief candidates might be dairy (casein), oats (avenin), soy, corn and eggs. One small study showed that 50% of celiacs react to CMP (Cow's Milk Protein) like they do gluten. -
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I realize I'm super late in the game regarding this topic but in case anyone is still reading/commenting on this one-does anyone who is especially sensitive have their personal observations to share regarding Primal Kitchen brand? My daughter was diagnosed almost 2 years ago with celiac and within 6 months, her follow up labs were normal and a year later vitamin levels significantly improving, but we are still battling GI symptoms; particularly, constipation, so much that she has been on MiraLax every day since she was 3. We've managed to get her down to a half cap every other day but without that, she continues to have issues (when she has a known, accidental ingestion unfortunately it takes a lot more MiraLax and additional laxatives to help her). I was searching for something else and found this and am wondering if anyone has any specific comments regarding Primal Kitchen. I feel like we are so incredibly careful with diet, logging diet and symptoms to look for patterns (we've had multiple dieticians help with this piece as well), not eating out, contacting companies and of course, there is always room for improvement but I'm running out of ideas regarding where her issues could be coming from. Even if the Primal Kitchen is contributing, I'm sure it's not the only thing contributing but I can't help but think there must be handful of things that are working together and against her. The ingredients list distilled white vinegar, but also white wine vinegar and balsamic, then "spices" which I'm always cautious about. However, after contacting the company, I felt more comfortable allowing her to consume their products but over time I've realized that the front-line customer service support people don't always provide the most accurate of information. Thanks for reading to anyone that does.
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By knitty kitty · Posted
Welcome to the forum, @Bebee, Yes, Celiac Disease has genetic commonalities with MS, hypothyroidism, arthritis, Reynaud, and rosacea. Usually a gluten challenge is done before endoscopy with biopsies taken, however I would not recommend a gluten challenge before endoscopy with biopsies for you since you have been gluten free for so long and have so many concurrent autoimmune diseases. You can still have the endoscopy with biopsy samples taken now. After several months with dietary changes, you can have another to compare results and check that intestinal health has improved. You can get a genetic test for Celiac disease which shares genetics with other autoimmune diseases that you have. Eating gluten is unnecessary for genetic tests. For the rosacea, get checked for SIBO (Small Intestinal Bacterial Overgrowth) that could be causing gastrointestinal symptoms as well as causing skin issues. Our skin is a reflection of our gastrointestinal health. Following the Autoimmune Protocol Diet has been helpful in keeping my own rosecea, eczema, and dermatitis herpetiformis and other autoimmune diseases in check. Be sure to be checked for nutritional deficiencies that occur easily in gluten free and dairy free diets. Keep us posted on your progress! References: Clustering of autoimmune diseases in patients with rosacea https://pubmed.ncbi.nlm.nih.gov/26830864/ And... Celiac disease and risk of microscopic colitis: A nationwide population-based matched cohort study https://pubmed.ncbi.nlm.nih.gov/36939488/
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