Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

What Can Happen To Me?


Simona19

Recommended Posts

Simona19 Collaborator

I'm fructose intolerant. I would like to ask:

What can happen to me, if I will eat more fructose than I suppose to?

I know that I will have cramp, bloating ..., but can something happen to my intestines like with gluten? Do I need to avoid all fruit forever. So far I can tolerate only berries. Even orange, or banana is out. I will eat them like ones, twice per week, but with consequences.

After going gluten free I react strongly to everything. Why?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

I'm fructose intolerant. I would like to ask:

What can happen to me, if I will eat more fructose than I suppose to?

I know that I will have cramp, bloating ..., but can something happen to my intestines like with gluten? Do I need to avoid all fruit forever. So far I can tolerate only berries. Even orange, or banana is out. I will eat them like ones, twice per week, but with consequences.

After going gluten free I react strongly to everything. Why?

its not all fruit- only fruit with a higher fructose content than sucrose content. i can eat plenty of berries and pineapple.. i can do a 1/2 of a banana more ripe than unripe, and a little bit of peaches & mango. and plenty of lemons and limes. most of the other fruits hurt me- esp. pears & dates. OH- i can also do some watermelon too.

google Fructose Malabsorption & the FODmap diet- every page may have a different list- so some of the items may be trial and error for you.

i have a friend online who had horrible fructose malabsorption (yes, she's also gluten free and dairy free)... anyways- she is now on the RAW VEGAN diet and hasnt had bad reactions to fructose so far. but i cant go ALL RAW VEGAN, as i also need to eat meat, and have to avoid corn & soy- so not my thing but i'd like to do it maybe 30%.

im thinking it might be possible that FM only has to be temporary- maybe our systems arent healed yet- or maybe we're deficient in some digestive enzymes... or maybe we have SIBO... i dont know- i hope it's temporary

i read somewhere but cant remember where- that if you continue to eat foods that hurt you so much that you cant digest- that it can mess up your kidneys.??

so, do some research- there is definitely SOME fruit you can eat!

Simona19 Collaborator

its not all fruit- only fruit with a higher fructose content than sucrose content. i can eat plenty of berries and pineapple.. i can do a 1/2 of a banana more ripe than unripe, and a little bit of peaches & mango. and plenty of lemons and limes. most of the other fruits hurt me- esp. pears & dates. OH- i can also do some watermelon too.

google Fructose Malabsorption & the FODmap diet- every page may have a different list- so some of the items may be trial and error for you.

i have a friend online who had horrible fructose malabsorption (yes, she's also gluten free and dairy free)... anyways- she is now on the RAW VEGAN diet and hasnt had bad reactions to fructose so far. but i cant go ALL RAW VEGAN, as i also need to eat meat, and have to avoid corn & soy- so not my thing but i'd like to do it maybe 30%.

im thinking it might be possible that FM only has to be temporary- maybe our systems arent healed yet- or maybe we're deficient in some digestive enzymes... or maybe we have SIBO... i dont know- i hope it's temporary

i read somewhere but cant remember where- that if you continue to eat foods that hurt you so much that you cant digest- that it can mess up your kidneys.??

so, do some research- there is definitely SOME fruit you can eat!

Hi! Thank you for reply. I know that I can have some fruit, but I

11475 Apprentice

Hi! Thank you for reply. I know that I can have some fruit, but I

Simona19 Collaborator

Hi, this may not be of any help to you personally, but it might. Have a look into amine, salicylate and glutamate sensitivities/reactions. The onion and green beans may be giving you problem related to fructose malabsorption, but cauliflower, broccoli, other vegetables, fruits that should be fine etc, may be due to salicylates and/or amines. Again - it might not be what's causing problems for you, but it's something to investigate and cross off the list if you are looking for other options.

Good luck!

I checked the list of fruit and vegetables and how high is the amount of salicytes in them and to my surprise everything fits. I will react very strongly to some vegetables, fruit and they will be in category of high or very high content. Thank you for your suggestion. It does look like this is IT.

Open Original Shared Link

Open Original Shared Link

+ other things :(:blink:

What should I eat? I do feel that I'm allergic or intolerant to everything. Can I have problems with enzymes in stomach, or some hormonal imbalance? I mean digestive hormones.

cassP Contributor

I checked the list of fruit and vegetables and how high is the amount of salicytes in them and to my surprise everything fits. I will react very strongly to some vegetables, fruit and they will be in category of high or very high content. Thank you for your suggestion. It does look like this is IT.

Open Original Shared Link

Open Original Shared Link

+ other things :(:blink:

What should I eat? I do feel that I'm allergic or intolerant to everything. Can I have problems with enzymes in stomach, or some hormonal imbalance? I mean digestive hormones.

you might be deficient in a lot of digestive enzymes.... i think if you're going thru phases where you only eat rice- then you're not getting any enzymes - so then, maybe it becomes a vicious cycle. ??

look at the lists above.. and also the fm lists- and get creative cause you gotta get some veggies and fruits down.

what about pineapple??? try it- it's supposed to help u with digestion- and it never hurts me. maybe also start juicing with the produce u CAN eat..... that way u can get a lot of nutrients in u.

also- do u eat yogurt??? i tend to have issues with dairy- and i never liked yogurt- but i started eating goat yogurt- and OMG YUM- i am addicted to the vanilla - and it really has made my BMs much more pleasant - and also my intestines seem more happier.

and YES- i can COMPLETELY relate to you about the real painful gas that doesnt ever come out - or takes forever- i COMPLETELY know what this is. it's always slow to come out... like 36 hrs sometimes. i could be making this up- but i THINK it's better since going on thyroid meds...

it was really bad after my colonoscopy- and the nurses were pissing me off big time- cause u know most people feel perfect afterwards- others just have some gas the rest of the day- well i had my painful gas- that wouldnt come out- and they were like:" oh you cant leave till you've passed a lot of gas"... and i was like "I KNOW MY BODY- THIS COULD TAKE 24 HOURS TO COME OUT"... nurse" try to turn from side to side- that helps"... me, after trying:" I JUST WANNA GO HOME AND LAY ON MY STOMACH ON A HEATING PAD".. nurse: " why dont u go use the restroom and see if it will come out".. me: " not with my iv in- i cant move- please take it out"....

OMG, this went on for some time- i think i ended up just lying and saying it was mostly all out LORD HAVE MERCY... itactually took me 5 days to get back to normal <_<

Simona19 Collaborator

you might be deficient in a lot of digestive enzymes.... i think if you're going thru phases where you only eat rice- then you're not getting any enzymes - so then, maybe it becomes a vicious cycle. ??

look at the lists above.. and also the fm lists- and get creative cause you gotta get some veggies and fruits down.

what about pineapple??? try it- it's supposed to help u with digestion- and it never hurts me. maybe also start juicing with the produce u CAN eat..... that way u can get a lot of nutrients in u.

also- do u eat yogurt??? i tend to have issues with dairy- and i never liked yogurt- but i started eating goat yogurt- and OMG YUM- i am addicted to the vanilla - and it really has made my BMs much more pleasant - and also my intestines seem more happier.

and YES- i can COMPLETELY relate to you about the real painful gas that doesnt ever come out - or takes forever- i COMPLETELY know what this is. it's always slow to come out... like 36 hrs sometimes. i could be making this up- but i THINK it's better since going on thyroid meds...

it was really bad after my colonoscopy- and the nurses were pissing me off big time- cause u know most people feel perfect afterwards- others just have some gas the rest of the day- well i had my painful gas- that wouldnt come out- and they were like:" oh you cant leave till you've passed a lot of gas"... and i was like "I KNOW MY BODY- THIS COULD TAKE 24 HOURS TO COME OUT"... nurse" try to turn from side to side- that helps"... me, after trying:" I JUST WANNA GO HOME AND LAY ON MY STOMACH ON A HEATING PAD".. nurse: " why dont u go use the restroom and see if it will come out".. me: " not with my iv in- i cant move- please take it out"....

OMG, this went on for some time- i think i ended up just lying and saying it was mostly all out LORD HAVE MERCY... itactually took me 5 days to get back to normal <_<

On top of my lactose intolerance I developed real milk allergy. I can’t have any milk. I will eat coconut yogurt from time to time (when I have money to visit Whole food store). I will buy plain or some times chocolate. I will have abdominal pain after any fruit flavor.

It is possible that I don’t have enough of digestive enzymes. Why? I don’t know. The truth is - I do eat mostly rice based food - milk, cereal, Udi’s bread, rice in my dinner and other.

Every week I will make vegetable soup in a bigger pot and I will eat it almost every day. I will cook in it many types of vegetables (even cauliflower or broccoli) . I will eat my soup, even if I know up front that I will have problems later.

Pineapple always gave mi mouth allergy. It got to the point that I ate just one slice and I had mouth burning, bloody sores on my tongue and very itchy throat. I have that also with cantaloupe.

I have allergy on all nuts( anaphylactic shock after 1 Brazil nut), peanuts, honey (choking and coughing and kiwi (the same reaction as honey), pineapple and cantaloupe( mouth allergy) , few times I had same reaction to watermelon. I have fructose intolerance, I was lactose intolerant and now I have casein allergy - milk is out. Than I have acid reflux - every food that is causing reflux is out for me (some time I will eat them anyway).

On top I will react very badly to any onion, garlic, beans, cabbage, broccoli, cauliflower, Clementine, plum, peach, and other.

I will eat them from time to time because I crave them, but with consequences.

I wish that I was able to eat everything again. Everything started after one surgery in 2005. It happened on Wednesday. Later, on Monday, my father went to ER with breathing problems (blood). He had surgery on Wednesday and died at 3:34AM on Saturday same week. He was 54 years old. I thing this was my breaking point. 7 months later I had anaphylactic shock and more and more intolerances and allergies (even to medicines). I started to react to dairy with BM from 5 to 15 minutes. Occasionally I had unexplained D. I got fat.

Last year by accident I found out that I have beginning of celiac disease - Marsh1, casein allergy, fructose intolerance and SIBO. Hm


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 5 weeks later...
Leli Newbie

I've been through what you describe - this is what I know. I hope some of it helps.

Gas production that doesn't come out is probably not in the colon - it's probably in the small intestine. Gas is produced by bacteria, but you're not supposed to have so many gas producing bacteria in your small intestine. The bacteria are most likely the kind that love fructose and other short chain sugars (which you get in fruits and veges), which is why fruit hurts you - the bacteria have a feast and produce lots of gas which give you cramps. The osmotic load in the gut is also changed, so water is either pumped in, causing diarrhea, or pumped out, causing constipation. Google FODMAPS. It will explain what's going on in more detail. Here's pubmed on FODMAPS. It's technical, and you can find lots of easier stuff out there.

Open Original Shared Link

Stress can bring on changes in the gut that cause this (sounds like Irritable Bowel Syndrome) which would explain the connection to your father's passing. My condolences.

If you starve these bacteria by depriving them of what they eat, they will reduce in number, and if you take a good probiotic you can maybe replace them, or crowd them out.

Reactions to salicylates are usually neurological, not gastric. You might have flushing and feelings of heat, and/or irritability and brain fog, or hives, or breathing difficulties. I have been extremely salicylate sensitive, and then I found this study:

Open Original Shared Link

Basically, if I take plenty of fish oil I'm ok with a moderate dose of salicylates! It's a whole new world for me! But I'm not sure salicylates are the problem for you. There's a big cross-over - lots of things are full of FODMAPS and salicylates, but the symptoms are different for each sensitivity.

So, if you reduce your fruit intake, and take a probiotic, and fish oil, you will hopefully improve. The other thing to consider is that with gut problems comes poor absorption of nutrients. This is, I think, the answer to your original question - what can happen? If you can't take in nutrients because your gut isn't functioning properly, even though your diet might be full of vitamins you could become deficient. Then all sorts of things can go wrong. Everyone is different and I could not diagnose vitamin deficiency, but it's likely you would benefit form some supplements. If you can get vitamin serum levels (blood tests) done you'll know what to take - otherwise consider vit D3, magnesium, and a mixed B vitamin with maybe extra B12. Always take with food.

Do you eat meat? I recommend it, and fish, and I recommend completely avoiding anything processed. Don't be afraid of olive oil and butter, but don't use other vegetable oils. No corn, soy, sunflower, safflower, canola or rapeseed oil. They are high in inflammatory omega 6 fatty acids, and highly processed. Eat what vegetables you can - they are usually lower in sugars.

Doing these things has saved me. For a while I could eat only rice, lettuce and meat, but now I can eat vegetable soup and berries and even drink coffee. I have reasonable energy most days, and almost never have the sort of gut symptoms you describe any more.

I hope this helps you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Breakfast ideas besides oatmeal as Avenin can be gluten?

    2. - RMJ replied to Ginger38's topic in Coping with Celiac Disease
      5

      The Struggle Has Overtaken Me

    3. - Aretaeus Cappadocia replied to Ginger38's topic in Coping with Celiac Disease
      5

      The Struggle Has Overtaken Me

    4. - Aretaeus Cappadocia replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten challenge - Need some guidance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,180
    • Most Online (within 30 mins)
      10,442

    Nancy sirois
    Newest Member
    Nancy sirois
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read gluten-free oatmeal Avenin can cause gluten like symptoms. I read Bobs Redmill gluten-free creamy buckwheat cereal and Millet are good alternatives with ultra low heavy metals, mold but it seems it takes longer to prepare the minute oats. What have you changed your breakfast to.
    • RMJ
      Ginger38, that sounds very difficult.  Each dietary restriction makes it harder to figure out what to eat. Before my celiac diagnosis I already watched out for my cholesterol level and migraine triggers, but those are much easier than diabetes restrictions. One “bad” meal isn’t that much of a problem for cholesterol levels, and my migraines only happened if I consistently ate the triggers. After many years I’ve figured out how to bake gluten free but I think many recipes have more starch which wouldn’t work for diabetes. If you go with the elephant eating analogy, I think the first portion to work on would be the diabetes, since the immediate consequences of not being careful (passing out from low blood sugar, or diabetic coma from high blood sugar) are so severe. The next portion would be celiac. The serious consequences aren’t as immediate, but if you have celiac disease, I think of eating gluten like a booster shot - revving up the immune system, but to attack yourself leading to long term damage. It sounds like you are experiencing this damage now. I did a google search on “gluten free food for diabetics” and a number of sites with advice came up.  If your insurance will cover it and you can find one, a registered dietician who knows about both diabetes and celiac disease might help you figure out what to eat safely. Hopefully my post will both scare and encourage you, as requested, with a big dose of compassion because this sounds very difficult and you are clearly suffering.
    • Aretaeus Cappadocia
      Reading the original post on this thread made me think of "How To Eat An Elephant". The key point is that a whole, big problem can seem insurmountable but if you break it into bite-sized pieces it is much easier to accomplish. Here is the google description. It's not bad: If you're facing a daunting goal, you can use these steps to "eat your elephant": Identify the Elephant: Clearly define the large project or goal that feels overwhelming. Break it Down: Divide the major task into smaller "bite-sized" pieces. If a piece still feels too big, break it down further. Prioritize: Decide which "bite" to take first based on necessity or impact. Focus on the Now: Instead of worrying about the whole animal, focus only on the single step you are taking right now. Maintain Consistency: Progress comes from taking the "next right step" every day until the task is complete. Celebrate Small Wins If I understood Ginger38's post correctly, you are facing the prospect of a gluten challenge, but you are already eating gluten on an intermittent basis. It also sounds like many of the symptoms you attribute to gluten consumption are in full expression. Step back and take a deep breath. Get a notebook and start a gluten-related diary. Don't try to make it perfect; just record what you can about food intake and what you experience as you go along. Talk to your Dr's office (nurse, Dr, whomever) about the challenge. The most rigorous challenge is for someone who has already gone truly gluten free but now needs a clear diagnosis. Someone who is already eating gluten should not need as much "challenge". Even at that, google describes an example challenge as 1-2 slice of bread or 1/2 cup of pasta a day. If that describes your existing diet you are already there. For the moment, try to focus on getting past the challenge and test. Once you have the results, start planning accordingly.
    • Aretaeus Cappadocia
      I don't know the answer to your question any better than a google search, but I am sure someone else will step up and answer. I am popping up to recommend that you keep a careful diary (in case you weren't already). Try to catalog what you are eating and experiencing. Bring a copy to your next visit (and if you have access to the Dr, also send a copy a couple days in advance). Don't assume that they will read it. They might, but they also might be under tremendous time pressure and not get to it. Two other suggestions: if your healthcare provider has a web portal, sign on and search for "gluten challenge". They may have a standard page and Dr assumed you would find it on your own. If that doesn't work, call the Dr's office and ask the office for their official advice. You probably wouldn't need to speak to the Dr directly. There should be some nurse or staff member who could answer that
    • Xravith
      After few months going gluten free, I decided to reintroduce gluten in my diet so I can do a proper diagnosis for Celiac disease. During the gluten free period I felt incredibly good. I stopped having hypoglycemia symptoms, I gained some muscle (Still, I am considerably underweight) and my anxiety totally disappeared. I felt totally like a new person. Now, I almost reached the second week of gluten challenge and all my symptoms are progressively coming back. The first days I was ok, just a bit of acid reflux I could control with medicines. However, after the first week I started to feel real stomach pain and tiredness, my face is growing acne and sometimes (specially when I walk) i feel painful migraines.  I am afraid If I am eating too much gluten or not enough, the "4 slices of bread" indication confuses me. I am actually eating 20 g of bread, 3 biscuits and 40 g of croissant each day. My doctor was not very specific when he gave me the medical order for the gluten challenge, so I invented my own daily gluten menu. Do you have any suggestions? 4 weeks will be enough to do the blood test with my current gluten intake?  Thank you
×
×
  • Create New...