Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

New And Worried


SteampunkTeapot

Recommended Posts

SteampunkTeapot Newbie

I'm a 21yr old female. I have been on medication for depression, anxiety and ADD for several years now. I'm overweight, yet anemic despite my attempts at keeping a good diet and exercising. I also have nearly chronic heartburn/indigestion and seemingly random bouts of stomach flu-like symptoms that come and go suddenly.

I'm concerned that I might have Celiac disease and intend to try a month gluten-free to see if that helps any of my symptoms. I must admit though, I'm rather worried about adjusting to gluten-free food. Most of my favorite foods contain gluten.

I'd love any suggestions and/or advice on the subject.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ktotheroll Contributor

I'm a 21yr old female. I have been on medication for depression, anxiety and ADD for several years now. I'm overweight, yet anemic despite my attempts at keeping a good diet and exercising. I also have nearly chronic heartburn/indigestion and seemingly random bouts of stomach flu-like symptoms that come and go suddenly.

I'm concerned that I might have Celiac disease and intend to try a month gluten-free to see if that helps any of my symptoms. I must admit though, I'm rather worried about adjusting to gluten-free food. Most of my favorite foods contain gluten.

I'd love any suggestions and/or advice on the subject.

Gluten free isn't as hard as it sounds. I was really worried too, because I used to be the person that would have meals of bread & butter, lol, but after some time passed, it got a lot easier. Plus, I felt SO much better after just a couple of weeks. It's definitely worth a try! My advice is to stick to natural foods first: meat, vegetables, fruit, and dairy are all naturally gluten free. Chex cereal is gluten free, as is rice, coffee, popcorn, etc. And then slowly try replacing pastas and breads, etc. Udi's bread has been my favorite so far, Udi's also makes really good muffins. I love the pizza crusts from Kinnikinnik. They would all be in the frozen section of the natural foods. The point is, there are a LOT of things that don't have to change and a lot of options to replace the things you miss. Good luck!

SteampunkTeapot Newbie

Gluten free isn't as hard as it sounds. I was really worried too, because I used to be the person that would have meals of bread & butter, lol, but after some time passed, it got a lot easier. Plus, I felt SO much better after just a couple of weeks. It's definitely worth a try! My advice is to stick to natural foods first: meat, vegetables, fruit, and dairy are all naturally gluten free. Chex cereal is gluten free, as is rice, coffee, popcorn, etc. And then slowly try replacing pastas and breads, etc. Udi's bread has been my favorite so far, Udi's also makes really good muffins. I love the pizza crusts from Kinnikinnik. They would all be in the frozen section of the natural foods. The point is, there are a LOT of things that don't have to change and a lot of options to replace the things you miss. Good luck!

Thank you so much!I'll see if I can find those products~

I've always been a big baker, so going gluten free makes me kinda sad... Not to mention I have trouble not being picky when it comes to unusual textures...

cahill Collaborator

Thank you so much!I'll see if I can find those products~

I've always been a big baker, so going gluten free makes me kinda sad... Not to mention I have trouble not being picky when it comes to unusual textures...

This is a link to a site that has great gluten free baking tips and recipes

Open Original Shared Link

Welcome to the forums :)

krystynycole Contributor

I was the same way. I had pasta at least 3 nights a week and a large portion of bread to go along with it! I didn't see any way to survive happily. However, the pay off will be more incentive that you can imagine! Hang in there! I personally don't eat gluten-free bread, though many find it worth while. If you are a baker I know people have a ton of success making it from certain blends of bread. Check out the baking forum on here for tips on that. I just use gluten-free betty crocker bake mixes. I also use gluten-free bisquick for a ton of different stuff. I still eat pasta. My favorite brand is tinkyada. It is a brown rice pasta and isn't too bad. Hang in there and stay on this board...you will find encouragement!

domesticactivist Collaborator

Before you go gluten-free you should note that by doing so you eliminate your ability to get test results without going back on gluten for a long time, in high doses. It might make more sense to get a celiac panel done before your gluten-free test.

When you do really go gluten-free, you won't necessarily feel the difference if you don't actually eliminate the gluten completely. I have a post about how to do it on the blog linked from my profile.

And... I agree completely with the others who say stay away from the "gluten-free" products, at least at first.

domesticactivist Collaborator

You might also look into the GAPS diet (Gut and Psychology Syndrome). I have a resource page on the same blog mentioned above. It is all about the connection between gut health and mental/emotional issues.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sb2178 Enthusiast

I'm a 21yr old female. I have been on medication for depression, anxiety and ADD for several years now. I'm overweight, yet anemic despite my attempts at keeping a good diet and exercising. I also have nearly chronic heartburn/indigestion and seemingly random bouts of stomach flu-like symptoms that come and go suddenly.

I'm concerned that I might have Celiac disease and intend to try a month gluten-free to see if that helps any of my symptoms. I must admit though, I'm rather worried about adjusting to gluten-free food. Most of my favorite foods contain gluten.

I'd love any suggestions and/or advice on the subject.

Ditto the get testesd suggestion first if it's at all possible that you'll have a hard time with wondering whether you have celiac without doing the full medical work-up. I did all the testing and then did a strict elimination diet with a gluten challenge and felt a little bit like I was dying for a few days during the challenge. Mind, I ate gluten for 36 hours after 3 weeks of no gluten, no major allergens. It was pretty miserable, and I don't think I could have eaten it long enough for testing results to be valid.

I also found it easier to stick to non-gluten based foods that I like for the first few months. So, think tortilla chips, tortillas, rice, curries, risotto, polenta, lentils, veggies, spring rolls, sweet potatoes, mashed potatoes, fruit, good chocolate... if you have any particular favorite you'll die without, post it up and we'll see what we can think of. It's also not a bad idea to keep a few things on hand for the first few weeks in case you find yourself sobbing from the frustration of wanting a feakin' cookie. Even if they are less than perfect, it might help you maintain the diet through the first and roughest stage.

beebs Enthusiast

I agree about getting tested first. I did what you want to do, went gluten free with full intentions of doing a challenge and getting tested at a later date. I have eaten gluten once since then and ended up in hospital. I actually can never eat gluten ever again so I doubt I will ever get a proper diagnosis. Not saying you really need one - but it is rather frustrating when talking to Drs etc.

SteampunkTeapot Newbie

Thank you everyone for the kind advice! I have a doctor's appointment scheduled so I can get tested ASAP! I'll probably try going gluten-free afterwards, regardless of the result though.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Iron loss and potential celiac.

    2. - Joseph01 replied to bethmon's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      We Keep Getting Glutened With Vegetable Oil

    3. - ThomasA55 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Iron loss and potential celiac.

    4. - Aretaeus Cappadocia replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Edy's and Dreyer's ice cream

    5. - knitty kitty replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Edy's and Dreyer's ice cream

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442

    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
    • Joseph01
      This is way past due for your post.  I have Celiac and have been recovering for more than a year.  Doing well.  Used Essential oil to day to fry some chicken.  Read the label all good.  Then ate some chicken.  Here comes the gluten reaction.  I haven't had a gluten reaction since year.  I am angry.   I have been so careful with this crap and don't wan't any set backs!!!!! Good luck to you with your post.   Celiac is HELL!
    • ThomasA55
      Hey everyone. I'm a young adult who had very high iron in 2024. 64% saturation 160 ferritin. In 2025 I had far lower iron. 26% saturation and 130 ferritin. I know this is still in range but it seems to be a large drop. That combined with the fact that I developed some intermittent joint pain between the two years makes me wonder if I could be celiac. My dietary intake of iron was pretty steady (mostly in the form of red meat). I did carnivore (therby eliminating gluten) for a bit after the second test and felt improvements in my joints and digestion. I still consume gluten occasionally socially, for religious reasons, and through cross contamination/food sharing. For these reasons, I would need to know if I had it, because although my lifestyle is low gluten its not at the strict level it should be if it turned out I was celiac. I will get a gene test first and hope I don't have DQ2.5,DQ2.2, or DQ8, but if I had any combination of those do you guys think I need proper screening through a gluten challenge / blood test? Other context. From 2024-2025, my b12 stayed about the same in the mid 600s folate went up slightly, but I heard it takes longer for celiac to affect the absorption of these. ANA negative, CRP low, ESR low.  I don't know how much noise exists around the saturation and ferritin, but it caught my eye and Celiac seemed like a possibility. I'm under no illusion that it is probable that I have celiac, only that it may be worth screening given my overall profile.   
    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
×
×
  • Create New...