Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Miserable Waiting For Test

smvillers

Recommended Posts

smvillers Newbie
smvillers
Posted

I am being tested for celiac next week Tuesday and I am absolutely MISERABLE on my gluten filled diet. Before scheduling the test I was about 95% gluten free and feeling OK--going back to gluten full time is horrible. Pain, bloating, D, heartburn, tiredness, brain fog, anxiety, depression, can't sleep--I've got it all. I know you all have been there, I really just need to vent. In my brain right now, it doesn't even feel like I'm going to make it until Tuesday. I just burst into tears at my desk at work thinking about dealing with this for several more days. I was dealing with a lot of symptoms with over the counter meds and supplements and I'm not supposed to take any the week leading up to the test and it is making things even worse. My brain is just so messed up right now.

My worst fear is that because I was mostly gluten free for so long that the test won't show that I have celiac. I know I'm giving up gluten after Tuesday regardless, but I would really like the diagnosis. Is it weird to hope for a disease?

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

were you full on gluten for at least 3 months before this test? If not it could give inaccurate results.

Not weird at all.

Link to comment
Share on other sites
smvillers Newbie
smvillers
  • Author
Posted

were you full on gluten for at least 3 months before this test? If not it could give inaccurate results.

No, I have not been full on gluten for 3 months. I've been eating gluten once or twice a week for about the last 6 months (some weeks more, some weeks less) and am doing two weeks of full gluten for the test. I know I may get a false negative but there after a week and a half of full gluten, I know there is no WAY I could do it for 3 months. Oh well.

Link to comment
Share on other sites
ravenwoodglass Mentor
ravenwoodglass
Posted

It sounds like your body is giving you the answer no matter what the tests results are. You may not have been back on full gluten long enough for a positive on the tests but it sounds like you are going to go back to gluten free when the tests are done. Do be sure to be strict about it when all testing is done. As you are finding out after being gluten free or low gluten the symptoms can be worse. I hope you recover quickly.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Bayb
      - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep...
    2. Aussienae
      - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain.
    3. trents
      - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    4. trents
      - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

      What kind of stool test was done? Can you be more specific?
    5. mishyj
      - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,221
    • Most Online (within 30 mins)
      7,748
    lortaine
    Newest Member
    lortaine
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Bayb
      Trying to read my lab results

      By Bayb · Posted

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      Constant low back, abdominal and pelvic pain!

      By Aussienae · Posted

      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      Why?

      By trents · Posted

      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      Why?

      By trents · Posted

      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Why?

      By mishyj · Posted

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
×
×
  • Create New...