Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Rash


Kellietmac

Recommended Posts

Kellietmac Newbie

Can someone please tell me how long does it take this rash to go away after going gluten free, I have not yet been diagnosised with anything as I cant get an appointment with a dermitologist for three months but I have had a rash for eight weeks, two rounds

predisone and rash still not going away read about DH and my rash sounds like it could be that. I stopped all gluten foods two weeks ago and yet rash although nit as itchy wont go away. Someone please help I am so frustrated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Try a low-iodine diet with the gluten-free. If it's DH that should help reduce it.

It can take years to clear up DH without Dapsone (talk to your doc), bit iodine withdrawal is a good way to snuff out the fire.

For info on a low-iodine diet google "thyca". They have info and a cookbook.

rosetapper23 Explorer

Yes, definitely eliminate iodine! It can be found in seafood, iodized salt, dairy products, and asparagus. Once you eliminate BOTH gluten and iodine, you should feel/see a difference very soon if you do, in fact, have Dermatitis Herpetiformis. Good luck!

Kellietmac Newbie

Try a low-iodine diet with the gluten-free. If it's DH that should help reduce it.

It can take years to clear up DH without Dapsone (talk to your doc), bit iodine withdrawal is a good way to snuff out the fire.

For info on a low-iodine diet google "thyca". They have info and a cookbook.

Thank you for your advice I will look into reducing iodine. I have asked my dr for Dapsone to try it however she won't give it to me because I have not yet been diagnosis yet. I don't have an appt with the dermitologist until November and the allergist I saw was a jerk and told me other then a rash I appear to be in picture perfect health. He didn't seem to care to much.

pricklypear1971 Community Regular

Another thing, if it's DH make sure you moisturize with a gluten-free lotion. I like Vanicream. DH lesions get very dry and you must baby the skin while they heal. Dry skin is itchier, too.

Probably good advice for itchy skin, period.

Kellietmac Newbie

Thank you good to know

rosetapper23 Explorer

One thing you should know before seeing the dermatologist is that most dermatologists have absolutely NO idea how to biopsy for DH. Invariably, they'll biopsy a lesion itself, and that will result in a false-negative. You must insist that he/she biopsy the clear skin just adjacent to a lesion, NOT the lesion itself. You might try reading some of the articles on DH to see if you can print out a good one on the correct way to biopsy DH lesions so that you'll have something to back you up. Otherwise, you're likely to walk out of the visit with your dermatologist thinking that he's Dr. Jerk No. 2.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442

    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...