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alexsami

Anyone Gluten-Free Before Endoscopy?

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great, i have been gluten free 4 weeks as well

I was gluten free for a little over 4 weeks when my egd was scheduled. I was told to eat as much bread as I could for the next 2 weeks and I did (whole wheat tortillas, 4-8 a day). I'm supposed to get the results tomorrow, but my GI said she saw all the classic signs of celiac (cracked river bed appearance, scalloping, etc.).

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if so, how long and what were your results

I was gluten free 4 weeks before with about 2 days in there of eating normal to see if it was truly gluten. My MD felt that if it were celiac 4 weeks with several exposures wouldn't be long enough to be false negative. My blood work and EGD were negative so they are recommending I get skin tested for an actual wheat allergy instead. If its not that, then it is a "wheat intolerance". Either way, no gluten for me, not worth it.

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I had stopped eating gluten for three weeks prior to my endo. My blood labs showed positive. When I went to the GI for my consult about my upcoming endo they said nothing about gluten loading before the biopsy, even though I informed them I had stopped eating it. The biopsy was negative. Then going back to my primary doctor she basically said a positive is a positive when it comes to blood work and endo's may not be the "gold standard" that they use to be. I felt a little led astray by the GI now that I'm out $500 on an endo that came back negative.

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You know how fast your mouth heals if you happen to bite yourself in the chin?

Same with the gut, so three weeks off gluten can do a lot of healing so that hte damage is not visible in the microscope anymore.

But if they had incubated the sample together with gluten and looked at it, and/or measured ttg in that sample, it would have showed celiac. (I read that Dr. Greene had done that with a patient who had been gluten-free for years but the diagnosis was unsure)


gluten-free since may 06 after neg. biopsy symptoms went away and DH symptoms which I had since 03 got gradually better.

daughter officially diagnosed celiac and casein intolerant.

non-DQ2 or DQ8. Maybe DQ1? Updated: Yes, double DQ5

Hypothyroid since 2000, thyroxine first started to work well 06 on a low-carb and gluten-free diet

Lost 20 kg after going gluten-free and weighing 53 kg now. neg. biopsy for DH. Found out afterwards from this forum that it should have been taken during an outbreak but it was taken two weeks after. vitaminD was 57 nmol/l in may08)

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