Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Synthroid Brand


Skylark

Recommended Posts

Skylark Collaborator

I just went to the Dr. this morning and he's willing to switch me to either Levoxyl or Synthroid from my generic. I strongly prefer Synthroid because it is a sugar base. Most other tablets including Levoxyl are made of microcrystalline cellulose which can bind T4, making it harder to absorb and I still have some malabsorption issues. I have to chew up my generic thyroid tablets and pray. Sugar dissolves completely and it doesn't bind the thyroid hormone so I'm willing to pay a bit more and give it a go. Problem is, Abbot does not test Synthroid for gluten. People have asked and they basically say the ingredients should be naturally gluten-free but they have no control over their suppliers. Standard legal wiggle words. Levoxyl tests and guarantees their pills are gluten-free.

The Synthroid sample package lists: acacia, confectioner's sugar (contains corn starch), lactose monohydrate, magnesium stearate, providone, and talc. My strength also has FD&C blue no. 2 aluminum lake.

I don't see anything in that tablet that would give me pause at the grocery store and I tolerate lactose without any trouble. I cook with confectioners sugar and corn starch that haven't been specially tested for gluten. The generic thyroid I'm taking now has blue coloring so that won't be a problem.

Is anyone taking Synthroid brand comfortably? I just want to check that some other folks on the board are doing OK on it before I get the scrip filled.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

I'm on a compounded version from my compounding pharmacy. I asked if it was gluten-free and iodine free and they said yes. Haven't asked about anything else.

Interesting thought re: absorption.

Skylark Collaborator

This is where I learned about thyroid and cellulose. I'm assuming if it's bad in dessicated, it's probably also bad in synthetic. It's also one of the places I learned about T3 and while I'm not on a natural thyroid I do take synthetic T3 as well as T4.

Open Original Shared Link

Open Original Shared Link

pricklypear1971 Community Regular

This is where I learned about thyroid and cellulose. I'm assuming if it's bad in dessicated, it's probably also bad in synthetic. It's also one of the places I learned about T3 and while I'm not on a natural thyroid I do take synthetic T3 as well as T4.

Open Original Shared Link

e-is-a-problem-with-desiccated-thyroid/

Open Original Shared Link

Wow. Yes, I was on Armour and had to switch.

I will definitely ask about this next time I have my meds made.

Thanks for bringing this up!

kimis Collaborator

I take a combo of Synthroid and Cytomel. Are you on generic T3? I always wondered if the Synthroid was gluten free because I have heard so many different things about it. If you don't mind me asking.....how much T4 and T3 do you take? I take 25mcg of Synthroid and 70mcg of cytomel. I do plan on switching things up soon. I hear good things about natural.

Skylark Collaborator

I'm on the Mylan generic T3. I'm less worried about generic T3 than T4 though that might be a mistake. :lol: My Dr. just took me up to 150 mcg of T4 and I'm on 25 of T3. My poor thyroid gland is shot.

wjp Newbie

I was on Synthroid for the lst year I was gluten free. I didn't realize at the time that Synthroid for causing a problem. I am very strict with my diet and did not realize that the dizziness/vertigo I was still getting was caused by Synthroid. When I read back in the Spring about Synthroid possibly having cross contamination, I switched to Levoxyl. Stopped the dizziness/vertigo. Have not had a problem since. Good luck in your decision.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



boysmom Explorer

I've been taking Synthroid (25 mcg) for 20 years now, and was only diagnosed celiac just over 2 years ago. I read that the makers of Synthroid don't guarantee Gluten-free status, but my doctors have always insisted that I stay with the brand name. When I'd asked I was told that the balance of hormone was so delicate that you couldn't be assured it was accurate in generics, so it's possible newer technologies have improved that situation. At any rate, I haven't had any problems with it that I can tell. I do have occasional symptoms that I can't pin down, but since I take Synthroid every day and these are only occasional occurrences I don't think there's a connection.

Luanne

kimis Collaborator

I've been taking Synthroid (25 mcg) for 20 years now, and was only diagnosed celiac just over 2 years ago. I read that the makers of Synthroid don't guarantee Gluten-free status, but my doctors have always insisted that I stay with the brand name. When I'd asked I was told that the balance of hormone was so delicate that you couldn't be assured it was accurate in generics, so it's possible newer technologies have improved that situation. At any rate, I haven't had any problems with it that I can tell. I do have occasional symptoms that I can't pin down, but since I take Synthroid every day and these are only occasional occurrences I don't think there's a connection.

Luanne

I agree with your Dr. about the fluctuation in generics, but you have other brand name T4 options.

Tigercat17 Enthusiast

HI everyone!

I know I was getting some CC of gluten from the synthriod brand about two years ago. I called the Abbott company twice & they told me the same thing - "They didn't add gluten to the synthriod but they didn't test for gluten & they couldn't guarantee it was gluten free." Last year after being on the gluten free diet for three months, I didn't get any better at all & I was taking synthyiod at the time. When I got my new prescription for that third month, I suddenly felt worse. I started to suspect that it was the synthryiod. So, I called the Abott company again & the rep. told that "Synthriod was not advertised as a gluten free product." That really made me wonder even more. So, I started eating nothing but natural whole foods & still I was feeling worse. I weeded out all of the processed foods & I was really worried that I was never going to get better, maybe I had other food allergies or even another disease. I was sooo sick. I really didn't want to change my thyroid hormone med, but I called my doctor & told them how I was feeling. My Endo doctor called the Abbott company also & they told him the same thing, so they switched me to Levoxyl from King Pharmaceuticals.

Today, I feel great! I've been taking Levoxly for the last almost two years and I've never had any problems with it. I have realized that I'm super sensitive and I still haven't found a multi vitamin that I haven't had a reaction to. But I feel great - haven't taking any multi vitamins and all I take now is Levoxyl and iron and some Nature made calcium once in a while.

My TSH levels didn't change much when I switched brands. The only thing that changed is I didn't need as much thyroid hormone anymore since I started to absorb nutrients a lot better since I was newly gluten free. It's a good idea to get tested every 6 weeks if someone is new at the gluten free diet and you're taking thyroid hormones. You'll start absorbing meds and nutrients a lot better.

I hope this helps someone... :)

Skylark Collaborator

Boy, it sounds like everything else. Some people are OK on Synthroid and others react. How confusing. Thanks a million for your input, kimis, wjp, Luann, and Lisa!

My Dr. did give me two weeks of samples and so far I have no weird GI issues or canker sores. If I get a canker sore I'll know for sure it's gluten!

mushroom Proficient

Our synthroid down here contains gluten :(

Skylark Collaborator

Our synthroid down here contains gluten :(

It's different from country to country? That explains a LOT. I don't see how the US form, which is basically a sugar pill, would contain gluten.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,201
    • Most Online (within 30 mins)
      7,748

    Chissers
    Newest Member
    Chissers
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JuggaloDad
      My daughter has only been eating gluten free for maybe 2weeks and she is still complaining about her stomach pains and I'm under the impression that that is probably long term sign effects that her body is dealing with.... She went months before the diagnosis and well if she is still doin the eating disorder things then I'm sure that is only prolonging recovery on her guts.... She is very withdrawn with This entire process so I can only go off what I see and am aware of.... She at first refused all gluten free food and is now only eating gluten free but not 3 meals at day or anything... dietary doctor said for he to eat in like snack portions ,which she does but i would like to see her eat more but I'm ok with he atleast tryin.....I know it's a lot on her....but Im hoping maybe within a month she will stop experiencing the pains in stomach ( as long as she isn't sneaking gluten) and she will see the positive side of it all....., I'm also hoping that once we get a diet situated that her depression and etc balances out...... She is anti medication ( which is weird knowing she was self medicating with THC ) , so I'm hoping the nutrition and diet balancing will improve some of her mental pain as well .... I know that at 16 alot of factors come into play but I just want my daughter healthy and successful and this Celiac is nothing to try to overlook... ..
    • Wheatwacked
      You could try CBD for her instead of THC, although I don't think it enhances the appetite the way THC does.  With anorexia appetine is everything.  CBD also attaches to the opiod receptors, without the psychotropic effect so it may help with the withdrawal from gluten. There are lots of vitamin and mineral deficiencies caused by Celiac Disease the the doctors are often not aware of.  Vitamin D, Thiamine (B1). Also B2, B3, B5, choline and Iodine are very common and it takes larger doses at first to replenish than the minimum RDA.  Deficiency in these slows the healing process because they process glucose for energy and iodine is essential for replacing old and defective cells.  Especially when dealing with anorexia.  As her small intestine heals she will begin to absorb most of the other 20 essential vitamins and minerals will be fullfilled though diet.
    • Wheatwacked
      Hello @Farmerswife As @trents said talk to your doctor about changing to a different drug.  I I was given a prescription for Zanax, took one dose and could not sit down for four hours.  Twitching all over, and my eyes felt like they were propped open with toothpicks.  Perhaps the old standard, often refered to as "mother's little helper" Valium would help. Celiac Disease causes deficiency of vitamim D.  Low vitamin D causes depression.  Starting at 1,000 IU a day I increased every few days until at 10,000 IU after 3 days it hit me "This is sunshine in a bottle" and I haven't been depressed since.  That ended a depression that had lasted from when I was 39 until 63 years old.  It was like an unending SAD Seasonal Affective Disorder. Another mineral deficiency that helped me was low dose, 5 mg, Lithium Orotate.  It reduced the anxiety that it had to get done now.  Most of our lithium comes in our drinking water.  With everyone drinking filtered or bottled water, we become deficient.  I think it may explain the explosion of mass shootings.  Between low vitamin D and low lithium intake, we are in a mental meltdown.  
    • trents
      Welcome to the forum, @Farmerswife! You are correct. Cornstarch should not contain gluten unless there is an issue with "cross contamination" with wheat/barley/rye in the processing. Even then, I can't imagine there being enough gluten in those pills/caplets/capsules to cause a reaction. Is this med in pill form, caplet form or capsule form? If capsule, it is possible that the capsule itself is made from wheat.  Another possibility is that your are "cross reacting" to the cornstarch. Maize is a fairly common cross reactor in the celiac community. But even so, there would likely be little maize (the protein component of corn) in the starch. Still another possibility, and the most likely one I'm thinking, is that you are experiencing a side effect of the med itself. It is an SSRI. Have you tried other SSRIs. SSRI's listed side effects include nausea and diarrhea. However, Escitalopram has the reputation of having less of a tendency than other SSRIs to produce these side effects. But you never know. Every individual is different. Have you tried other SSRIs?
    • Farmerswife
      Recently diagnosed with Celiac and trying to figure out all the things. One concern I have is I have taken Escitalopram for years. Insurance does not pay for name brand so that is not an option. Cannot get it compounded at any local pharmacy. The generic brand that I have says it is not gluten free due to it having cornstarch in it. From what I understand cornstarch is gluten free. I do feel "glutened" most of the time when I take this. Anyone else have this issue and did you find a solution? Everything I google says Escitalopram is gluten free, but I don't think this one is. 
×
×
  • Create New...