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Greg85

Gastroparesis And Maybe Celiac?

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I have gastroparesis, my stomach literally stopped working. On protonix, had 5 scopes, 1 colon, 1 pill cam, and one time 6 ulcers with no h-pylori. Had my gallbladder out last year, and have chronic gastritis, and no reason for any of this.

I can only tolerate now potatoes, only. Lost 75 pounds this year, and still on the down swing.

I like to start eatting spinich at least again, but scared because it feels like my stomach is a raw sack, with nerve burning to my left elbow and left knee.

Could there been celiacs maybe here? I had blood test but negative, but I could touch pasta, or cereals, even baby cereal I could not touch or even white rice. Rice crackers I could not even do!!! I'm lost i'll will add in more info when people start posting. I am lost and only on potatoes because pain is so bad, feels like no stomach lining with severe cold chills, back pain that daggers, and constipation beyond bad.

Thanks,

Greg

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Spinach would not likely be a very good choice to add in first off if you are only able to tolerate potatos at this point. Add in some other well cooked easy to digest veggie or fruit instead like applesauce, peas or sweet potatoes. Adding some baked plain chicken might also be a good idea as you need some protein.

As far as celiac goes if you are already gluten free, which you are if all you eat is potatos, then testing would not be possible as you need to be eating gluten for testing.

Some of us do have gastroparesis and some have had gallbladders out. Whether there is a connection for you between celiac and your other issues I can't say.

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Greg, our stories are almost identical except for I could tolerate potatoes and jello. I have been diagnosed with gp since 2001 followed by a celiac positive, then celiac negative...I am now attempting to be gluten free. I also believe that I have developed a wheat allergy. I would not suggest you eat spinich, look up a low residue diet and follow and try to exclude gluten. If you stomach feels that raw you should talk to your doc about putting you on liquid carafate, it really helps and it will allow you to eat more foods. One of my mainstays was chicken broth with carrots, celery and potatoes ,it was perfect.

I have gastroparesis, my stomach literally stopped working. On protonix, had 5 scopes, 1 colon, 1 pill cam, and one time 6 ulcers with no h-pylori. Had my gallbladder out last year, and have chronic gastritis, and no reason for any of this.

I can only tolerate now potatoes, only. Lost 75 pounds this year, and still on the down swing.

I like to start eatting spinich at least again, but scared because it feels like my stomach is a raw sack, with nerve burning to my left elbow and left knee.

Could there been celiacs maybe here? I had blood test but negative, but I could touch pasta, or cereals, even baby cereal I could not touch or even white rice. Rice crackers I could not even do!!! I'm lost i'll will add in more info when people start posting. I am lost and only on potatoes because pain is so bad, feels like no stomach lining with severe cold chills, back pain that daggers, and constipation beyond bad.

Thanks,

Greg

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Did they do biopsies with all those scopes? I was told I have gastroparesis and given reglan for a few years. I ended up figuring out celiac on my own and being gluten free has done wonders for my symptoms... Then I saw an allergist recently and he said it was more likely eosinophilic esophagitis and my triggers are pretty normal (wheat, dairy, eggs).... But all this time they assumed a nondiabetic young adult would have gastroparesis, and it's not that at all!

Are you gluten-free now?

I suggest working up to more root veggies (different potato strains, carrots, beets, rutabaga) before hitting the super fibrous stuff like leafy greens, or just a little spinach at a time. That fiber may be a drastic change if you're just eating potatoes? (you know yourself best though!)

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