Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Finally, Got Myself Tested Today...

kendon0015

Recommended Posts

kendon0015 Rookie
kendon0015
Posted

Back this past February, I had two pints of draught Blue Moon beer (wheat beer), and the next day spent over an hour in the bathroom. My first thought was that the beer was bad as I never has this problem before. Two weeks later I had the same bowel urgency (loose but formed stool) and spent another hour in the bathroom. Long story short as this repeated every two or three weeks, I decided to go gluten free in May. This decision was based on having Hashimotos, osteopenia, low D, and elevated homocysteine. I felt better immediately for the next three months and had the bonus of losing 8 pounds. The last month or so, I'm having the bathroom episodes all over again. Still gluten free, and strict about it. I haven't cheated once.

I went to the GI doctor last week and he has ordered blood work for Celiac and IBS. He didn't think it was IBS but is checking anyway. Also, stool samples for bacteria since I had recurring UTI's over last fall and winter...around 4-5 of them using Cipro each time. I went to the lab today and hopefully will have results by late next week. I LOVE this doctor. He is open minded, thorough, and current with gluten intolerant issues. I just hope that at least of these tests shows something.

Thanks for "listening".

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Newbee Contributor
Newbee
Posted

You did consume some gluten containing food before having the blood test, right? I ask because you need to be eating food with gluten in it for the tests to come out correctly. Otherwise you may come back with a false negative result. My doctor did not tell me this when I had my blood test. Luckily I was eating gluten anyway, but I was disturbed that no one told me about this before I had the test.

Link to comment
Share on other sites
mushroom Proficient
mushroom
Posted

Yes, unfortunately if you have been gluten free (or mostly so) for the last four months the likelihood of positive bloodwork is slim. You may have been getting some gluten cross-contamination from an unlikely source - lip gloss, meds, something unexpected. Did you start using any new products in the last month?

Link to comment
Share on other sites
Jenniferxgfx Contributor
Jenniferxgfx
Posted

Do you take thyroid meds? Are they gluten free? (same with your other meds but I hear the most popular thyroid med isn't gluten-free.) just a thought-- maybe you're getting gluten from elsewhere.

I'd gone gluten-lite before being tested so my results were negative, although I'm sure gluten is bad for me and I'll never go back on for a test.

Good luck and welcome!

Link to comment
Share on other sites
kendon0015 Rookie
kendon0015
  • Author
Posted

Just came home to a message from my doctor....one stool sample came back positive and he wants to treat me right away. Positive for what I don't know yet, but at least that may be all or part of my problem. i have to call him tomorrow.

Link to comment
Share on other sites
kendon0015 Rookie
kendon0015
  • Author
Posted

I've got a C difficile infection and will be treated for 10 days with Flagyl and probiotics, which I have been taking for months anyway. If I wasn't taking the probiotics, I think I'd be a lot worse! Blood work for gluten intolerance not back yet, but I feel a heck of a lot better without gluten. Wouldn't it be nice if that is all that was wrong with me for the past year? sheesh...

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,075
    • Most Online (within 30 mins)
      7,748
    Kim64
    Newest Member
    Kim64
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Nacina
      14 year old with Celiac & EOE still suffering...

      By Nacina · Posted

      Well, that's a big question. When he was seeing the nutrition response testing dr. that changed each time we went in. He hasn't been seeing him regularly for theist ten months. When he had a horribly week in March I started him back on the 4 that were suggested to keep him on. Those are: Standard Process Chlorophyll Complex gluten-free, SP A-F Betafood gluten-free, SP Tuna Omega-3 Oil gluten-free, And Advanced Amino Formula. He also takes a one a day from a company called Forvia (multivitamin and mineral) and Probiotic . Recently he had to start Vitamin D as well as he was deficient.  
    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      14 year old with Celiac & EOE still suffering...

      By knitty kitty · Posted

      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      This forum might be the last hope I have in my life. Please I beg you

      By knitty kitty · Posted

      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      This forum might be the last hope I have in my life. Please I beg you

      By BluegrassCeliac · Posted

      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
×
×
  • Create New...