Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Pain When Eating

kate12345

Recommended Posts

kate12345 Apprentice
kate12345
Posted

Is pain once you start eating a symptom of celiac? If so, what is it that is hurting? Thanks, Jennifer

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AVR1962 Collaborator
AVR1962
Posted

Is pain once you start eating a symptom of celiac? If so, what is it that is hurting? Thanks, Jennifer

I'm assuming that you are talking about your stomach. If this is the case, your stomach is more than likely tore up a bit. If you are having any burning, it is acid in the stomach which can do alot of damage and you will need to take steps to protect the stomach by using antacids. Sometimes when the stomach is sensative from all the awful things that have passed thru it that has caused damage we have to resort to foods that are easily digested for awhile. Meats can be hard to digest so take that in small amounts. Acidic foods, coffee, soda, alcohol, and dairy are among serveral foods tha can be hard on the system.

kate12345 Apprentice
kate12345
Posted
  • Author

As far as I know it is her stomach, but transient small bowel intussusception showed up on the ultrasound. I was told not to worry about it, but if it is what is causing her pain I need to know that. She turned up positive only on DGP IgG and none of the others, so she has a biopsy scheduled for next week. She is on Prevacid and started eating once we put her on that but says her stomach hurts every time she starts eating. It is really sad. She keeps telling me she is hungry but she is limited from the pain. She will not eat fruits or sweets. Everything seems to make her hurt, it does not matter what food I give her. I also give her Tylenol, and Malox if she does not quit complaining as she begs me to do something. What does the gluten do to the stomach? I am aware of the small intestine damage, but what about the stomach? Thanks, Jennifer

kate12345 Apprentice
kate12345
Posted
  • Author

I forgot to say she is on Prevacid 15 mg twice a day, so really I would think it would help more if it was just acid. It does allow her to eat for a few bites. I have to take her off that after today because of the biopsy. I dread it. Jennifer

beebs Enthusiast
beebs
Posted

Hi Kate,

Wow- is it your daughter!? Sounds like it absolutely could be celiac causing transient i/s - the problem with that is that Drs don't know anything about celiac anyway and they know even less about the connection between transient i/s and celiac. Anyway you can find a Celiac specialist in your area? Where are you? States or somewhere else?

Make sure they take 8 biopsies, my son only had 3 and then came back borderline :rolleyes:

I read somewhere (in the many med journals) that 20% of adults who presented with i/s in emergency were found to have undetected celiac disease- that is a huge number considering that I/S is so rare.

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Good luck!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,085
    • Most Online (within 30 mins)
      10,442
    ThomasA55
    Newest Member
    ThomasA55
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...