Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bursitis And Ra

saintmaybe

By saintmaybe
in Related Issues & Disorders

Recommended Posts

saintmaybe Collaborator
saintmaybe
Posted

So I got a diagnosis of bursitis of the hip yesterday, as well as mild hypermobility. My question is, how did the doctor rule out RA if she didn't run any blood tests for at least ANA's when bursitis is a symptom of RA? Honest question here. Full disclosure, I have a heavily physical job so it can easily be an Overuse injury unrelated to celiac. She seemed skeptical but at least open to celiac/ malabsorption issues.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

Since any ---"itis" means inflammation (I know because I have a bunch myself: osteoarthritis, sacroiilitis, glossitis, blepharitis...blah blah blah) why wouldn't it be related to celiac malabsorption? Could very well be.

I do not know how you could RULE OUT RA if she did not do any testing.

Sed rate, C-reactive protein, ANA??? These would be done.

My hips have calcifications, too. Bummer. Hurts pretty good, doesn't it? Sorry kiddo. :(

Maybe your pain will decrease off gluten? :)

Hypermobility is something else, however. Here is what I read when a friend told me she had "loose joints":

"In some people, hypermobility causes joint pain and results in a higher incidence of dislocations, sprains and secondary osteoarthritis. Doctors refer to this as benign hypermobility syndrome. In benign hypermobility syndrome, the ligaments that provide joint stability are loose and weak. This increases the risk of ligament injury or strain and can cause pain."

What did your doc say about it?

lynnelise Apprentice
lynnelise
Posted

I too have been diagnosed with bursitis of the hip. Of course this was only after negative ANA and Rheumatoid factor. I'm really not certain how they could rule that out without the bloodwork though. Even with the bloodwork being negative she advised continued monitoring of the condition as there are sero-negative cases.

saintmaybe Collaborator
saintmaybe
Posted
  • Author

Since any ---"itis" means inflammation (I know because I have a bunch myself: osteoarthritis, sacroiilitis, glossitis, blepharitis...blah blah blah) why wouldn't it be related to celiac malabsorption? Could very well be.

I do not know how you could RULE OUT RA if she did not do any testing.

Sed rate, C-reactive protein, ANA??? These would be done.

My hips have calcifications, too. Bummer. Hurts pretty good, doesn't it? Sorry kiddo. :(

Maybe your pain will decrease off gluten? :)

Hypermobility is something else, however. Here is what I read when a friend told me she had "loose joints":

"In some people, hypermobility causes joint pain and results in a higher incidence of dislocations, sprains and secondary osteoarthritis. Doctors refer to this as benign hypermobility syndrome. In benign hypermobility syndrome, the ligaments that provide joint stability are loose and weak. This increases the risk of ligament injury or strain and can cause pain."

What did your doc say about it?

Yeah, the bursitis hurt quite a bit. I finally gave in and got the cortisone shot in my hip. I realize this is just a mask and the inflammation can come back, but I couldn't sleep and I couldn't work! Doctors might suck, and ordinarily I prefer natural, but meds are okay when the situation calls for it.

The hypermobility clusters with celiac (which I learned from our own ravenwoodglass), so I'm not surprised. The doctor encouraged me to go to a GI and get officially diagnosed, but I'm not going back on wheat for anything. I was near death when I finally got off it. She also said get a job where I don't walk seven miles a day and lift heavy things, with which I heartily agree!

The Doctor made some good points, and she seemed to think I need to fire my PCP though she didn't come right out and say it. But overall it still felt like one of those "backing away from the cray cray hypochondriac" meetings. So frustrating!

saintmaybe Collaborator
saintmaybe
Posted
  • Author

I too have been diagnosed with bursitis of the hip. Of course this was only after negative ANA and Rheumatoid factor. I'm really not certain how they could rule that out without the bloodwork though. Even with the bloodwork being negative she advised continued monitoring of the condition as there are sero-negative cases.

That's good to know that I should be keeping an eye on it. Maybe I'll get my PCP to throw in an ANA and RF next spring just for giggles.

mushroom Proficient
mushroom
Posted

That's good to know that I should be keeping an eye on it. Maybe I'll get my PCP to throw in an ANA and RF next spring just for giggles.

Don't forget the C-reactive protein (CRP) and sed rate. :)

IrishHeart Veteran
IrishHeart
Posted

Don't forget the C-reactive protein (CRP) and sed rate. :)

DITTO from moi. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,421
    • Most Online (within 30 mins)
      7,748
    ChristinaS16
    Newest Member
    ChristinaS16
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • glucel
      Headaches / Migraines and Hypoglycaemia

      By glucel · Posted

      hey knitty, thanks for the follow up. I did buy the benfotiamine before I saw a couple of the side effects that concerned me esp bracardia. I already have irregular heart beat and have had elevated liver enzymes before. I lowered the count by taking milk thistle in case anyone interested. I realize that many side effects are simply for legal protection but at my age and as a recovering heart patient can not take risk. Anyway, been strictly gluten-free since we last talked. I did add 200 mg of vit b1 in addition to the b complex. Not as much b1 as you suggested because of my conservative nature but at least an attempt. I still have substantial bloating which unfortunately is probably not caused by gluten, as I was hoping that gluten-free would clear it up a bit.  I wish that I could report a major benefit from going gluten-free but I can't. But I never got desperately ill as many have reported here and my poor brother who was completely overcome til diagnosed.  Take care  
    • knitty kitty
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By knitty kitty · Posted

      Since lectins occur in almost everything, it's pretty unrealistic to avoid them all.  I didn't understand the rationale behind Dr. Gundry's lists either. Many fruits either contain high histamine amounts or are histamine releasers.  Histamine is made by our body, but we can also consume it in foods, because plants and animals make histamine, too.  Histamine is a neurotransmitter, that results in alertness.  That cup of coffee in the morning?  Releases histamine, so we wake up more.  But histamine is released as part of the immune response in Celiac and other illnesses, causing inflammation.   Our body can clear histamine, but if the body can't keep up with the histamine we are making ourselves as well as the histamine we're eating, we can have serious problems, digestive problems, insomnia, depression.  Some fruits can have high levels of fructose, one kind of sugar in fruits.  Some intestinal bacteria can ferment fructose, resulting in gas, bloating, diarrhea.  So, yes, Fructose Malabsorption can occur in Celiac.   Your dont list...Honey, maple syrup, lectins (and their attached carbohydrates), sugar... ....bedridden...These are all carbohydrates, sugars.  We need Thiamine to turn carbohydrates into energy.  Without sufficient thiamine, we can develop Gastrointestinal BeriBeri which has the classic digestive symptoms, nausea, diarrhea, abdominal pain. Tannins in tea and coffee cleave thiamine in two, making it nonfunctional.   Your do list...hazelnuts, pistachios, pressure cooked potatoes, and yogurt, butter, cheese.... These are foods that contain thiamine.  Pressure cooked mashed potatoes have more thiamine than boiled potatoes.  Those nuts are high in thiamine.  Dairy products are a good source of thiamine.   I can't diagnose, I'm not a doctor.  You read these articles and let me know if anything rings a bell with you.  Yes, I see thiamine deficiency everywhere because it is unrecognized by doctors.  I recognize it because I had it. Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/ Refeeding Syndrome (a different article...) https://pubmed.ncbi.nlm.nih.gov/33232094/
    • knitty kitty
      Abscesses on legs

      By knitty kitty · Posted

      The AIP diet restricts carbohydrates for the first few weeks.  Excluding carbohydrates changes your microbiome.  The bacteria that live in the intestines that feed on carbs get starved out when you don't eat carbs.  Small Intestinal Bacterial Overgrowth (SIBO) occurs frequently in Celiac Disease.  SIBO can cause gas, bloating, and diarrhea, symptoms similar to Celiac symptoms.   When the digestive system is feeling better, then additional foods are added back slowly to look for reactions.  I did not consume carbs for a several months because I felt better without them.  Currently, a "Modified AIP diet" has allowed rice, but doing this won't starve out the SIBO that occurs in celiac disease. I took vitamins and minerals throughout the day and felt great improvement because those essential nutrients were finally being absorbed. Thanks for letting me share what made my celiac journey better.
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Hello there!  Just wondering how things are going for you.  Did you try the Benfotiamine?  I'm always curious how others fare after taking thiamine.  Hope you can post an update. Hope you're doing well!  
    • Liquid lunch
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By Liquid lunch · Posted

      @knitty kitty maybe I’m a little out of touch with fashion having been pretty much bed ridden for so long but this seems ridiculous to me.. ‘As a result of their potential for toxicity and their “anti-nutritional effects” it is almost inevitable that lectin exclusion could well become a big food fad‘ I just can’t imagine anyone avoiding lectins if they didn’t have to. When I first looked at the gundry avoid list I couldn’t understand why so many things were on it that are not high lectin (fruit ect.) and assumed high sugar items must’ve been added because people use the diet for weight loss so I tried eating them and got sick. He’s recently added honey and maple syrup to the approved list by popular demand but I can’t eat them. For me it seems to be almost all lectins, sugar, and possibly tannins because I can’t have tea and not sure what else could be causing the nausea. I’ve had some luck with pressure cooked mashed potato but pressure cooking white rice as gundry recommends didn’t help. The aip diet doesn’t match the foods I can tolerate as well as the gundry list and it seems to be mostly the high sugar things, also some of the aip avoid foods I’m fine with, hazelnut, pistachio. Yogurt and butter is on the aip avoid and again my guts agree with gundry on this, cheese yogurt and butter fine, milk not so much. Now it’s possible to get an igg test it seems an unnecessarily painful and slow process to attempt aip or total lectin avoidance and reintroduction, I wish I’d known about these tests before, it’d have saved me a lot of bother.  
×
×
  • Create New...