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SkylerGurl05

Blood Test Negative But...

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So i told my doctor I wanted to do a blood test for celiac and I waited 2 weeks for the results.. Came back negitive she told me that doesnt mean I'm not Gluten Intolerant.. She said that I really don't need a biopsy cause it's just gonna prove what I already know.. I can't eat gluten.. So should I get a biopsy and see what's really going on down there? Or not?

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If you are not already gluten free you could ask for a referral to a GI if you need a diagnosis for school or other family or yourself to take the diet seriously. You could also ask the doctor for a note for school/college if you are still in them so they will accomodate your needs.

It would be a good idea to post your test results as sometimes not all the ones that are needed are done or a doctor will consider a low positive to be negative. If you are in the US you have a legal right to all copies of tests and it is a good idea to get them.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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It's not for sure that a biopsy would prove what you already know. It could be positive or negative. The benefit of doing the biopsy would be to find the extent of celiac damage if there is some, or to confirm negative for celiac if there isn't. Either way it sounds like you'll want to try the gluten free diet for a couple months to see if it helps.

Did you get a copy of your test results? What was run?

I have a new post on the blog listed on my profile called "celiac testing myth #4 doctor knows best" that lays out all the typical celiac testing and why you'd want it.


Our family is transitioning off the GAPS Intro Diet and into the Full GAPS Diet.

Gluten-Free since November 2010

GAPS Diet since January/February 2011

me - not tested for celiac - currently doing a gluten challenge since 11/26/2011

partner - not tested for celiac

ds - age 11, hospitalized 9/2010, celiac dx by gluten reaction & genetics. No biopsy or blood as we were already gluten-free by the time it was an option.

dd - age 12.5, not celiac, has Tourette's syndome

both kids have now-resolved attention issues.

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Here are the test results

H Pylori IGM Neg

TTG IGG....<3

TTG IGA....<3

NA+...142

K...4.2

CL-...109 High

CO2...22 Low

Glucose...72

Bun...11

Creat...0.67

CA...9.3

Protein total...7.8

albumin...4.1

alk phos...76

ast...19

alt...12

TBILI...0.5

Anion Gap...11

GFR...>60

Pretty much its been 3-4 weeks since ive ate gluten and im feeling better until ive been "glutened". Ive already got a note from my doctor saying im Gluten Intolerant for my work and i dont need one for my school because i take classes online! lol

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It's not for sure that a biopsy would prove what you already know. It could be positive or negative. The benefit of doing the biopsy would be to find the extent of celiac damage if there is some, or to confirm negative for celiac if there isn't. Either way it sounds like you'll want to try the gluten free diet for a couple months to see if it helps.

Did you get a copy of your test results? What was run?

I have a new post on the blog listed on my profile called "celiac testing myth #4 doctor knows best" that lays out all the typical celiac testing and why you'd want it.

I cant seem to find that blog of yours! =[

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I cant seem to find that blog of yours! =[

The link is on her profile page, on the left, under 'website'

https://www.celiac.com/gluten-free/user/39886-domesticactivist/


"But then, in all honesty, if scientists don't play god, who will?"

- James Watson

My sources are unreliable, but their information is fascinating.

- Ashleigh Brilliant

Leap, and the net will appear.

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Here are the test results

H Pylori IGM Neg

TTG IGG....<3

TTG IGA....<3

NA+...142

K...4.2

CL-...109 High

CO2...22 Low

Glucose...72

Bun...11

Creat...0.67

CA...9.3

Protein total...7.8

albumin...4.1

alk phos...76

ast...19

alt...12

TBILI...0.5

Anion Gap...11

GFR...>60

Pretty much its been 3-4 weeks since ive ate gluten and im feeling better until ive been "glutened". Ive already got a note from my doctor saying im Gluten Intolerant for my work and i dont need one for my school because i take classes online! lol

I only see two celiac tests on your panel, two versions of the ttg. They should have done a serum IgA at least, anti-gliadin (which should be the deamidated version) and anti-endomysial. You should have further testing.

Although, unless you need a diagnosis for school or other purposes (as mentioned by another poster) you don't need a doctor's order to eat gluten-free. Just doing the diet will tell you a lot.


1999 - Hypothyroid

2003 - Hashimoto's Disease

2008 - Diverticulitis

2009 - Significant Vit D Deficiency

2011 - Diverticulitis again

2011 - HLA-DQ2.2

2012 - TtG IgG positive... I am now, finally, Gluten Free - 5/16/2012

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Beachbirdie is right, you don't have all the necessary tests there. You can't even know the validity of any test involving IgA unless your Total IgA has been tested. I hope you were able to find my blog post - all the tests and descriptions are listed there. I'm not allowed to link to it which is why I didn't give you the link.


Our family is transitioning off the GAPS Intro Diet and into the Full GAPS Diet.

Gluten-Free since November 2010

GAPS Diet since January/February 2011

me - not tested for celiac - currently doing a gluten challenge since 11/26/2011

partner - not tested for celiac

ds - age 11, hospitalized 9/2010, celiac dx by gluten reaction & genetics. No biopsy or blood as we were already gluten-free by the time it was an option.

dd - age 12.5, not celiac, has Tourette's syndome

both kids have now-resolved attention issues.

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