Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Booked In For Endoscopy! Argh!


*charliesmum*

Recommended Posts

*charliesmum* Apprentice

I have just got booked in for endoscopy procedure. Any advice? I havent had it done before and dont want sedation as will be driving myself there and back. Has anyone got any experiences of it they would like to share??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jeanzdyn Apprentice

Personally I could not have the endoscopy without sedation!! I have a very strong gag reflex. I came out of sedation a bit when they were removing the endoscope.

It can be done without heavy sedation -I have witnessed that. It is an uncomfortable procedure, but I would have liked to be able to watch the video feed!

Advice:

Learn a relaxation exercise, something to focus your attention away from what they are doing. Ask if you can have them play some kind of music that soothes you -or will they allow you to use an IPod (if you have such a device) and listen to music that is soothing to you.

Have a positive attitude, think "I can do this, I can get through this..."

or something, like a mantra you can say in your head.

and good luck to you!

navigator Apprentice

I took the sedation and was totally unaware of the whole thing.My daughter also had sedation so unable to be of much help. Relaxation breathing the only thing that I can think about - other than scouring all your family and friends until you get a lift! Hope it goes well.

cahill Collaborator

I have just got booked in for endoscopy procedure. Any advice? I havent had it done before and dont want sedation as will be driving myself there and back. Has anyone got any experiences of it they would like to share??

In the US ,most if not all centers will not allow you to drive your self home. Check with your center and ask about this.

I would not have it done with out sedation,.

*charliesmum* Apprentice

In the US ,most if not all centers will not allow you to drive your self home. Check with your center and ask about this.

I would not have it done with out sedation,.

I am in the UK. You can drive home if you have it done without sedation. I also have 2 young children so cant really be falling asleep or feeling drowsy after I get out plus I want to be in and out as fast as possible. They give a numbing spray so im hoping thats enough. I dont think I will be overly anxious about it. I just keep thinking well it has to be done so lets just get it done lol. Im probably being quite naive but on the other hand maybe its better to not over think things.

ravenwoodglass Mentor

Did you have a positive blood test? If you did you need the diet regardless of the endo results. You won't be really sleepy after you are done with the procedure but you can't drive if you have had sedation. Is there any way that you can get someone to drive you home? My concern is that because you won't be sedated the doctor might just do one or two biopsies instead of the 6 to 8 we should have done thus increasing you chances of a false negative.

*charliesmum* Apprentice

Did you have a positive blood test? If you did you need the diet regardless of the endo results. You won't be really sleepy after you are done with the procedure but you can't drive if you have had sedation. Is there any way that you can get someone to drive you home? My concern is that because you won't be sedated the doctor might just do one or two biopsies instead of the 6 to 8 we should have done thus increasing you chances of a false negative.

My bloods were unclear. I dont even really understand them tbh. I scored 20 where the normal is between 0-15 and then the 2nd one said negative. I was told that if the 2nd one had been positive then the 1st would have been more reliable. I had to have further investigation as my dad is comfirmed coeliac and my son (2yrs old) has positive blood work and waiting on his biopsy results. Should have them by end of next week im hoping.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442

    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...