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Did Anyone Else Have This Issue?

Ryniev

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Ryniev Apprentice
Ryniev
Posted

Sorry if this sounds silly but I've lost my fullness radar since going gluten free. What I mean is my stomach normally hurt because I've always had stomach cramps, gas and bloating after eating. I mentioned to my mother the other day I'm so used to having a stomach ache or heartburn pretty much all the time that it seems foreign to not have one. However, now I seem to want to eat all the time because I don't think

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eatmeat4good Enthusiast
eatmeat4good
Posted

I don't know how long you have been gluten free, but some people become ravenously hungry as they heal. I speculate it is the body trying to heal you and make up for lost time. I lost my appetite and never wanted to eat at all but I made myself eat. Then a few months later I got the "ravenously hungry" stage. It was strange to be eating so much and not feeling bad. What I have read on here from people who had a similar experience as yours is- just go with it. Your body is trying to heal and you should feed it when it asks you for food. The stage passes as you heal. I'm not an expert, just telling you what I have read here when others have had this happen to them.

Hope your healing goes well.

squirmingitch Veteran
squirmingitch
Posted

I have dh & never had too much bad GI symptoms & I've never had a weight problem unless you want to say I had a lack of weight problem. I always ate throughout the day ~~~ 5 small meals per day & like that. When I went gluten free I became horrendously RAVENOUS 24/7. I could eat a large breakfast & within 1 hour I was starving again. It still happens but to a lesser degree. I just chalked it up to my body (gut) healing & it's trying to get the nutrition I've been behind on. I had no choice but to go with the flow & I have. I have not gained one ounce yet (but I could benefit from at least 5 lbs.). I'm still hoping.

faithforlife Apprentice
faithforlife
Posted

I can relate. I thought it was because corn, potatoe and white rice are so starchy so I'm trying a low carb diet but I'm still learning it. I've gained 10-12 lbs and dont want /need to keep gaining. I go to bed hungry at night! But I know I've eaten plenty.

adab8ca Enthusiast
adab8ca
Posted

When I first got diagnosed, if it wasn't nailed down, I was eating it.

I put on 12 pounds in a heartbeat. It did pass eventauly.

dani nero Community Regular
dani nero
Posted

If you read a book called "Eating Less: Say Goodbye To Overeating" by Gillian Riley, she states that when you are aware that some food are forbidden, then your mind gets fixated on breaking free because it's aware of the new restrictions. The book can probably help you regulate your eating so you don't put on any weight without dieting. Hope this helps!

Bellanovia Newbie
Bellanovia
Posted

holy cow, this explains my extreme hunger too..

Since my stomach has stopped hurting like yours I am always feeling like I am hungry..something I rarely felt before because it was overshadowed with pain and bloating.

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    • akebog
      Fusilli Pizzeria, Miller Place, NY

      By akebog · Posted

      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious. They also have Tuesday night pasta specials & Thursday night chicken pasta specials. We plan on going back for dinner soon.
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
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