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Getting Tested Tomorrow

Mateto

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Mateto Enthusiast
Mateto
Posted

Well since the lab tested my blood for everything but coeliacs -- which was the REASON I was tested to begin with...I'm going for more bloodwork tomorrow morning.

My new doctor is not the best, my old doctor was excellent but she's on break right now, and the fill-in...well I don't believe she has a clue as to whether anaemia and anorexia are two different things.

So please keep me in mind and say a prayer for me that this will be it, other than the possible biopsy.

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mushroom Proficient
mushroom
Posted

I wish you the best of Irish luck, Mateto. Just to be clear, these are the tests you should ask for:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

:)

Skylark Collaborator
Skylark
Posted

Good luck! I hope you get a clear answer.

Type1CDE Newbie
Type1CDE
Posted

Not to hijack the thread but skylark you seem so knowledgable about the labs... Why would my DGP-IGA be over 100 but my DGP-IGG be negative (16)? Any ideas?

Skylark Collaborator
Skylark
Posted

Not to hijack the thread but skylark you seem so knowledgable about the labs... Why would my DGP-IGA be over 100 but my DGP-IGG be negative (16)? Any ideas?

I believe I answered multiple times in your original thread where you put all the information. If you have new information it's easier to bump the old thread so we can see all your labs together.

Mateto Enthusiast
Mateto
Posted
  • Author

They should bloody well know what's wrong with me by the end of the week, after taking 6 or 7 vials of blood.

To be sure, when the nurse was finished taking my blood, I said "and what am I being tested for?". "We're doing a general run-through, and also checking for coeliac sprue".

Mushroom, nothing you listed was on my sheet-thing that I had to give to the nurse, but she knew she was checking for coeliacs, so there must have been something written on it.

Skylark, if I don't get a clear answer I think I might as well dig a hole and live in it, to keep my anger levels down. I've become quite angry with the medical "profession" as of late, but I think they've become quite angry with me.

I don't know. I know being a doctor must be quite stressful, but would it hurt for them to actually care about their patient? Pills and bloodwork doesn't solve anything.

If this doesn't work, I'm going to go gluten free, and see if my symptoms (all symptoms of coeliac) do away. I think they will. I can't go gluten free yet, just in case I do need a biopsy after this bloodwork.

I keep saying to myself with gritted teeth "Keep calm...put the kettle on....smiiiiile" :lol: <-my fake happy face. Picture exaggerated fake smile.

mamaupupup Contributor
mamaupupup
Posted

Yes, we have a saying in our house, "Celiac with a Smile." Thinking about you! The only thing worse about having to do labs twice is when you have to take a 35 pound 5 year old in because the pediatrician forgot to check all the boxes...I feel for you too!

Hang in there! It's great to get info!

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      Biopsy results - second opinion?

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      Welcome to the forum, @ellyelly! How much gluten were you eating in the weeks prior to the endoscopy?  Many people with indeterminate results had cut down or eliminated gluten from their diet beforehand.  This can lower the autoimmune response and decrease the symptoms (lower antibody levels,  reduced inflammation and intestinal damage may heal).   If you weren't eating a sufficient amount of gluten per day in a minimum of two weeks prior to the endoscopy, you may want to do another gluten challenge with repeat endoscopy. Here's an article that explains, be sure to read the comments.   
    • ellyelly
      Biopsy results - second opinion?

      By ellyelly · Posted

      Hi all, Such valuable insights shared here - I am so grateful to be able to read along! Thank you all for sharing your wisdom.  I (37yo female) have recently had an endoscopy to screen for celiac given a strong family history and extremely low Ferritin for the past 7 years (not responsive to oral supplements). I am awaiting celiac blood panel results (completed post-endoscopy to provide another piece of the puzzle, I think was just an accidental oversight not doing earlier).  The endoscopy results are as follows: Gastroscopy:  Stomach: Mild gastritis and one 4mm benign appearing inflammatory polyp in the body.  Duodenum: Largely normal but few shallow erosions seen in the duodenal bulb. Microscopy:  1. Sections show specialised and non-specialised gastric mucosa with increased numbers of chronic inflammatory cells within the lamina propria including occasional clusters of plasma cells amounting to mild chronic inflammation. No active inflammation, intestinal metaplasia, dysplasia or malignancy is seen. Immunostains for Helicobacter organisms are negative. 2. Sections show small bowel mucosa with normal villous architecture. A mild non-specific intra-epithelial lymphocytosis is noted at the villous tips of uncertain clinical significance. The lamina propria contains a normal population of chronic inflammatory cells. No granulomas or parasites are seen. There is no dysplasia or malignancy. Conclusion 1. Gastric: Mild chronic inflammation 2. Duodemum: Mild non-specific intraepithelial lymphocytosis with preserved villous architecture.  The GI specialist, assuming blood tests come back normal, feels it is unlikely that it is celiac given the normal villous architecture. Suggested continuing on as usual and monitoring for symptoms etc, screening with blood test if required in the future.  Worth a second opinion or does this seem accurate? Anything else I should be considering? I feel a little lost as to how to best proceed! Thanks again.  
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