Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

New And Unsure

MistyRG

Recommended Posts

MistyRG Apprentice
MistyRG
Posted

I recently gave birth to my 5th child and had a horrible itchy rash break out on my elbows and arms . . . then my knees. All my research said DH, but I had no other symptoms and dismissed it. Then I read a blog about a mom who had no stomach issues but a few others and was diagnosed with celiac. I decided to get tested . . . just in case. Now, reading stories and blogs, it's like a light bulb is exploding!!!!

Here are the results I have so far:

TTG IgA - 6.6 (4-10 is a weak positive)

Gliadin AB, Deamid. IgG - 72.3 (>30 positive)

Gliadin AB, Deamid. IgA - 18.4 (<20 negative)

Endomysial IgA - 1:20 (expected range <1:10 - weak positive)

Anyone clue me in to what this all means???

I am waiting for the referral to a gastroenterologist, and I guess we'll go from there.

Honestly, it was just the rash that made the wheels start turning. Now, I realize so many other things could be linked. It will be nice to have an answer . . . even if it is life changing!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Cara in Boston Enthusiast
Cara in Boston
Posted

Pregnancy can be a trigger for celiac disease.

If you still have the rash, I believe they can do a biopsy on that for a diagnosis. But, with your positive blood tests, you already have your answer. The GI will probably want to do an endoscopy. Whatever the results of that, you should go gluten free after the test based on your blood tests alone.

DO NOT go gluten free (it is very tempting to experiment) until after you are done with all the tests.

Also, you should have your children tested - even if there is no symptoms. Test every few years after that - sooner if one develops symptoms. Let your family know as well. All first degree relatives (parents, siblings, children) should be tested.

Welcome to GLUTEN FREE! It is not as hard as it first seems. I got lots of help and tips from this board and a year later, I feel great.

Cara

beachbirdie Contributor
beachbirdie
Posted

I recently gave birth to my 5th child and had a horrible itchy rash break out on my elbows and arms . . . then my knees. All my research said DH, but I had no other symptoms and dismissed it. Then I read a blog about a mom who had no stomach issues but a few others and was diagnosed with celiac. I decided to get tested . . . just in case. Now, reading stories and blogs, it's like a light bulb is exploding!!!!

Here are the results I have so far:

TTG IgA 6.6 4-10 weak positive

Gliadin AB, Deamid. IgG 72.3 >30 positive

Gliadin AB, Deamid. IgA 18.4 <20 negative

They also told me on the phone that my EMA was a weak positive. 1-10 is normal, I am 1-20.

Anyone clue me in to what this all means???

I am waiting for the referral to a gastroenterologist, and I guess we'll go from there.

Honestly, it was just the rash that made the wheels start turning. Now, I realize so many other things could be linked. It will be nice to have an answer . . . even if it is life changing!!!

You have some positive celiac tests. The EMA tests antibodies to a specific kind of tissue, a thin layer that covers muscle tissue. If that is positive, it indicates autoimmune damage to the lining of your intestine. The TtG test is also a test of autoimmune activity against your gut.

The positive gliadin antibodies show that your body is reacting negatively to gluten, actually seeing the gluten as an invader and attacking it...those gliadin tests are NOT about autoimmunity, but still point to a possible celiac diagnosis.

You would be fortunate indeed to have gotten an answer so quickly! Most celiac patients don't get diagnosed for years, I think average is about eleven.

Welcome to the forum!

MistyRG Apprentice
MistyRG
Posted
  • Author

Thank you for the replies.

I guess I'm wondering if these results can mean something else, or if I can just hang it up and call it what it is!!! I'm guessing that I will at least have to cut out gluten. As far as an official Celiac diagnosis, I will probably have to wait for the biopsy. But do these results pretty much mean Celiac or could they point to something else?

Sorry if I sound like I'm in denial or grasping at straws!!!! LOL :)

squirmingitch Veteran
squirmingitch
Posted

They pretty much or a lot much mean Celiac. That's why everyone is saying welcome to the board which I will echo. Ask anything, anytime. And now is a good time to start reading a LOT of posts on here so you'll be ready after the endoscopy. Read the newbie 101 & everything you can read on here. You can start making lists now. That way you won't freak out in a panic & get all overwhelmed. You'll just start planning & organizing now.smile.gif

MistyRG Apprentice
MistyRG
Posted
  • Author

Thanks . . .

I have been reading this forum (and any other website showing up in google!) all day!!

I have said that while this isn't optimum, it does explain A LOT (though I don't have a lot of symptoms), and it is good to have answers.

One part that is really getting to me is my father died from non-Hodgkins Lymphoma. I wonder if he had undiagnosed Celiac. :(

Now begins my push for family members to get tested.

Thanks again. I am not going to be uneducated when I walk in that office!!! :)

beachbirdie Contributor
beachbirdie
Posted

Thanks . . .

I have been reading this forum (and any other website showing up in google!) all day!!

I have said that while this isn't optimum, it does explain A LOT (though I don't have a lot of symptoms), and it is good to have answers.

One part that is really getting to me is my father died from non-Hodgkins Lymphoma. I wonder if he had undiagnosed Celiac. :(

Now begins my push for family members to get tested.

Thanks again. I am not going to be uneducated when I walk in that office!!! :)

I'm so sorry to hear about your father. It's hard to look back and think how things might have been different with a little bit of knowledge :( .

My mom has early stage multiple myeloma (not yet malignant) and indications of possible non-Hodgkins lymphoma as well. Both supposedly can be related to celiac.

Hope you'll be able to get your family on board so they can protect themselves before they get any kind of sickness/damage!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MitziG Enthusiast
MitziG
Posted

Your tests show you have celiac. The tests you had were specific for it, and you would not be showing positive for another reason.

The biopsy may or may not show celiac. Depending on how severe the damage is, they may not biopsy the correct spot. Unfortunately, most drs will say you don't have celiac if the biopsy is negative. Which is unfortunate because false negative biopsies are very common.

You have celiac. After the biopsy go gluten-free. And welcome to the boards!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442
    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...