Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Did It Take?


phil1

Recommended Posts

phil1 Apprentice

What symptoms did you have and how long did it take for them to go away after you went gluten free? I

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jigsawfallingintoplace Newbie

well done on your first 11 days. I have been gluten-free for just over 2 months and felt really good - totally symptom free after about 5 days.

I had some issues creeping back around week 3 when I realised through the wisdom on this forum that I must cut out dairy. I did this and felt better again in a matter of days.

I have had a bad week this week after accidental glutening by a prepacked microwaveable rice which was inadvertently served up by my other half as he got the packets mixed up. This brought a severe crash to constipation, irritability, brain fog, numbness, severe cramping and general low mood.

I cannot believe how low I was at the start of the week but I used the opportunity to remind myself firmly that it is my reponsibility to check and double check everything I eat while I am at the kindergarten gluten free stage of recovery.

To feel any benifit for me I had to go strictly gluten free - i dont have any issues with that as I am desperate to lead a normal pain free life. I know I am serious about it as I have actually had nightmares where I am being forced to eat gluten and those dreams have been highly traumatic.

Keep coming back here and read, read, read - knowledge is ultimately power to us as we go through this journey.

Link to comment
Share on other sites
sreese68 Enthusiast

Sorry to have to tell you this, but 8-9 months. Stomach felt better after 2 months give or take, but I had to eliminate a LOT of foods to get there. Here's a link to a post I made at my one-year mark: I now feel better than I have in 20 years. I feel alive and energetic. I'm 43 and have been known to tire out my 30-something friends. :) As much as I hate the restrictions, the end result is well worth it. Keep at it!

Link to comment
Share on other sites
Victoria6102 Contributor

I've been gluten fee for a year and 8 mOnths and maybe feel a little bit better. I'm starting to wonder if I'm just going to feel sick for life! :P but from what I've read on here, most people feel better within a few months. Good luck!:)

Link to comment
Share on other sites
Pauliewog Contributor

I went gluten free in Feb. and in April I finally felt the foggy brain was gone. My energy was back. In fact, there were days when I'd go to take a nap as usual and I couldn't even sleep! For me, I really started feeling better once I relaxed about going gluten-free. And to do that I just stopped eating ANYTHING processed (and I don't eat out). I have a handful of spices, oils and gluten-free soy sauce that I rely on. Other than that I eat whole food. I think eliminating all the chemicals in processed food is a big help. It becomes a lifestyle change but after a while it gets easier. I make sure to cook extra for dinner so that I can use it somehow for lunch the next day. For breakfast today I had an egg, rice and some sauteed kale. Lunch was a salad, salmon and olives... I won't get sick from a carrot and I find eating this way really reduces my stress over food and I feel better.

Link to comment
Share on other sites
GladGirl Rookie

Three months into this now after being dxd. The first week I lost 11 lbs! I am sure it was due to edema in my body tissues, but like many here have said, I stopped all "processed" foods and made my meals to include eggs, fish, steamed veggies (thank God for my steamer), and yogurt. I have also dabbled with making my own bread with rice flour, and other gluten free ingredients. Kind of enjoy this part!

So, at this point I have now lost 20 lbs, still need to lose about another 20 to be at ideal weight. I have not tried excercising too much at this point since my muscles and joints were so inflamed, but plan to do so soon. Since our bodies have been "poisoned" by gluten, my take was trying to eat foods that would be easily digestible, and that would mean to me as something my system did not have to work too hard to break down. Steamed foods along with tapioca, rice, so forth. I have not eaten much in the meat department since that is not so easy to digest, staying with fish and chicken.

Amazing how much better I feel at this point, and am thankful that so far I am not lactose intolerant!

Wishing you the healing that you need to feel better soon!

Link to comment
Share on other sites
GF Lover Rising Star

If you have other conditions other than celiac, I'm talking thyroid. Arthritis, heart disease, etc, in those conditions where damage has already taken place it won't resolve 100%. You may find some relief in inflammation but the arthritis has already caused damage. Same with thyroid, you will still need meds for life. And I'm sure there are 1000's more that won't be reversed because of damage. Even tho in Celiac the villi do tend to heal, there is a point where it cannot come back from. I have read research on that celiac statement.

I know you want everything you have to resolve in 3 weeks but that's just not how it works. I am gluten free and still being diagnosed with unrelated crap. I am not in the medical profession and these are my options. Be well.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BabsV Enthusiast

Everyone is going to have a different answer for this...depends on how long you were ill before diagnosis, what your symptoms were, how your body heals, how strictly you follow the diet, accidental glutenings, etc.

The doctor who diagnosed me said to give the diet a minimum of 3 months for ANY improvement and 6-12 months to see real improvement.

I am at 9+ months gluten-free and most of my symptoms have improved or disappeared except for abdominal pain. We're still working to figure out what is causing it and how best to treat it.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,031
    • Most Online (within 30 mins)
      7,748

    Novazen
    Newest Member
    Novazen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      But that's the point Scott is trying to make. It is up to you. You do not have to go forward with another biopsy simply because your doctor wants you to. They work for you, not the other way around.
    • Jammer
      Hi Kate,   I am unsure if this is helpful or not. I have Webber calcium citrate everyday. I also react to less than 20 ppm of gluten. I have not reacted to Webber ever. (Fingers crossed it stays that way). Also, I get my blood tested every 6 months to ensure I have zero gluten exposure. It consistently comes back negative(0) to gluten.  A few years ago, my stomach would feel nauseous after taking Ca+  but thankfully that doesn’t happen anymore. Good luck and I hope you find something that works for you.    all the best,    J 
    • J1707
      Honestly that's a good question, but I would like an official answer since I'm not a professional and my doctor's in my opinion no offense to them I'd say gone about it in a unprofessional way unless other's have been told to go gluten free, get a biopsy, just to go back gluten due to a possible false reading and then gotta go back for another biopsy But if it really was up to me per say then I'd definitely stay gluten free like this diet change has really helped me a lot in a lot of ways, not just for health reasons, but discipline toward not indulging to much on things i used too, not to mention being more aware of what I'm intaking by reading labels more and calling the manufacturers to find more answers if needed.
    • captaincrab55
      iceicebritney,  I read where you were referred to John's Hopkins.  If you live in that area/suburb and still have the rash, I can give you my Dermatologist's name(https://www.brderm.com/dr-robinson.html I se Dr Robinson, who diagnosed me with dermatitis herpetiformis/celiac disease 2 weeks after my first visit)
    • Scott Adams
      Welcome to the forum @Karen Rakhshan, this article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...