Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Celiac Or Something Else?

V1981

Recommended Posts

V1981 Newbie
V1981
Posted

Hi everyone,

I am new to this forum and I am hoping I can get some help. I think I may have celiac, but it could very well be something else... Have any of you experienced the following symptoms -

Alternating constipation/Diarrhea

Gas and bloating

chronic rash in groin area

swollen lymph nodes in groin area and sometimes behind ears and on back of neck or lower jaw line

PCOS/Endometriosis symptoms

Weight gain

dry irritated eyes

Nausea

Chlorine taste in mouth and smell chlorine around you.

Dizzy to the point that the room is literally spinning.

I have been to the doctor and gotten many blood tests and most of them have come back "normal". I did however flunk (this is the term my doctor used) the Glucose Tolerance test and when I did a salivary hormone test my Progesterone, DHEA and Cortisol levels were below normal. I have been taking Iodoral for my thyroid (which is underactive) and started on some natural supplements to treat the PCOS symptoms. But, so far I only feel better part of the time.

Anyways, sorry to go on and on. I am just looking for some help so any feedback is appreciated.

Thanks!

V

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

"Flunking" the glucose tolerance test means diabetes. Did your doctor talk to you about that?

The rest of your symptoms sure sound like Celiac to me. Even the "diabetes" can be part of Celiac symptoms. Ask him to test you for it. I'm not sure which tests to ask for (there are several) because I am self-diagnosed based on family history, my symptoms, and the fact that the gluten-free diet cleared up those symptoms. But someone will be along shortly to tell you all about testing.

So welcome to the forum. Stick around and read a bunch. Ask as many questions as you can. There are some real experts here who are so helpful. In the meantime, here's a (((HUG))) and high hopes that you will be feeling better soon.

squirmingitch Veteran
squirmingitch
Posted

I agree with bartful in that your symptoms sound like celiac. And get that flunking the glucose test straightened out with your doctor & make him/her tell you exactly what that means & what you are to do about it. And if the doc isn't forthcoming enough then get a new doc!

You should get tested for celiac. Make sure they do the FULL celiac panel! Double check what they order & make sure all these are on it.

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

The DGP test was added recently to the full panel.

Also can be termed this way:

Endomysial Antibody IgA

Tissue Transglutaminase IgA

GLIADIN IgG

GLIADIN IgA

Total Serum IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

And if you are going to be tested for celiac then no matter what the doc says DO NOT stop eating gluten until all celiac testing is finished including an endoscopy. Do not eat gluten light. There are enough false neg. on the tests --- you don't want to add to that. It's possible the rash is Dermatitis Herpetiformis (celiac rash). There is a biopsy for that too & if it turns up positive then that IS a diagnosis of celiac disease. There is a 37% false neg. return on hd biopsies though & you need to have a derm who is well versed & experienced in recognizing & taking biopsies of dh. And you MUST be eating gluten for the dh biopsy.

Welcome aboard. Ask questions & read as much as you can.

V1981 Newbie
V1981
Posted
  • Author

"Flunking" the glucose tolerance test means diabetes. Did your doctor talk to you about that?

The rest of your symptoms sure sound like Celiac to me. Even the "diabetes" can be part of Celiac symptoms. Ask him to test you for it. I'm not sure which tests to ask for (there are several) because I am self-diagnosed based on family history, my symptoms, and the fact that the gluten-free diet cleared up those symptoms. But someone will be along shortly to tell you all about testing.

So welcome to the forum. Stick around and read a bunch. Ask as many questions as you can. There are some real experts here who are so helpful. In the meantime, here's a (((HUG))) and high hopes that you will be feeling better soon.

Thank you so much for replying. Yes, my doctor said that even though I "flunked" the GT he didn't think I have diabetes. More like Insulin Resistance I guess. I am definitely leaning towards Celiac though for the real cause of all my symptoms. It all started when I was a toddler and began eating solid food. No one new what celiac disease was back in the 1980's, so my mother had no idea that I shouldn't have been eating gluten.

V1981 Newbie
V1981
Posted
  • Author

Thank you! I am going to have the tests done ASAP! :)

squirmingitch Veteran
squirmingitch
Posted

Get a copy of the test results & the ref. ranges & post them here when you do if there is any doubt or the doc gives you grief. There are ppl here very well versed in interpreting the tests.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442
    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...