Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Need Support Group In Boston


jenna

Recommended Posts

jenna Newbie

Hi

this is my first time here.

new to celiac-can someone pls email me re: a supt group in boston area-actually live in watertown


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sb4480 Newbie
Hi

this is my first time here.

new to celiac-can someone pls email me re: a supt group in boston area-actually live in watertown

<{POST_SNAPBACK}>

Hi Jenna,

I live in Reading but I would be totally willing to be an email buddy until you find a group. I'm looking for one as well.

Steph

Stephberry2002@yahoo.com

jenvan Collaborator

Hey ladies! Here is info I could find on you for boston groups--just contact them and ck it out. Good luck!

Group: The Healthy Villi, Boston Chapter, CSA/USA

City: Boston

Contacts:

Ann Dodds-Frerichs

84 Mill St.

Westwood, MA 02090

781-255-9033

Nola Ford

6 Ellery Square

Cambridge, MA 02138

617-547-1828

Marjorie Rogers

28 Bacon St.

Natick, MA 01760

508-653-5465

Internet:

Marjorie Rogers, mwrogers67@aol.com

Danna Feldgoise, gooseink@BITWISE.NET

Nixie Raymond, raymond@world.std.com

Updated: 10 Mar 2001

Group: Children's Celiac Support Group

City: Boston

Contacts:

Laurie A. Higgins

GI/Nutrition, Hunnwell grd

Children's Hospital

300 Longwood Ave.

Boston, MA 02115

Tracy Keegan

617-355-2127

Internet:

Laurie A. Higgins, Higgins@a1.tch.harvard.edu

Tracy Keegan, eaglekeeg@aol.com

WWW: WWW.childrenshospital.org/celiac

Updated: 21 Mar 2003

Chaula Hopefisher, Pittsfield

413-499-4380, hopefisher@chaula.com

CSA Healthy Villi Boston Chapter #67 Click here for this chapter's Website

Greater Boston Celiac/DH Support Group, Inc. Chapter phone #: 617-262-5422 toll-free: 1-888-4-CELIAC

CSA Massachusetts & Rhode Island Celiac Support Group for Children and Adults, Too #72 Click here for this chapter's Website

Mary Arruda, West Greenwich, RI

401/385-9175

Tanis E. Collard, Attleboro

508/399-6229, csgc@ix.netcom.com

  • 2 years later...
fruhead Newbie

hi there,

Unfortunately, I am unable to find **any** local support groups in Boston. :unsure: I am aware of The Healthy Villi (and joined a month or so ago)...their meetings are OUTSIDE the general Boston area. I understand this is due to traffic volume issues. However, this poses a problem to people (like me!) who do not own a car. :(

Is there a way to get a Boston group going? Actually **IN** the city of Boston...or at the very least, accessible by the MBTA system? (Preferably by train, not by bus.)

Otherwise, if anyone attends the Healthy Villi meetings, would they be willing to give us car-less folk a ride to the meetings?

I am at wits' end looking for a support group. I was just diagnosed earlier this year and mostly have a grip on it, but I would still like a support system of folks who have gone through the same illness as me.

thank you,

Lisa

melmak5 Contributor

I am in Cambridge and in the same "no car" situation.

Maybe if there are enough people who post in this thread we could all meet up and go from there.

rbh Apprentice

Hi Lisa -- unfortunately I can't be of help in getting to the Healthy Villi meeting as we probably won't go this time. However, I did want to let you know that the Not Your Average Joe's Restaurant in Watertown is very willing to accommodate gluten free diners. Apparently, they are in the midst of planning a specific gluten free menu too, but even now they are very friendly. (I live in Newton)

Rochelle

carriecraig Enthusiast

I used to love going to Not Your Average Joe's in Needham (where I worked) and Watertown (where I lived)! I haven't been there since before I was diagnosed and used to LOVE eating their bread with that olive oil/garlic/cheese dipping sauce.

I now live in NJ, but I'm glad to know that NYAJ is going to have a gluten-free menu - it will be good for when I visit.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rbh Apprentice
I used to love going to Not Your Average Joe's in Needham (where I worked) and Watertown (where I lived)! I haven't been there since before I was diagnosed and used to LOVE eating their bread with that olive oil/garlic/cheese dipping sauce.

I now live in NJ, but I'm glad to know that NYAJ is going to have a gluten-free menu - it will be good for when I visit.

The dipping sauce for the bread itself is gluten free, so if you bring your own bread, they will mix up the sauce.

  • 3 weeks later...
melmak5 Contributor

Would anyone seriously be interested in meeting up in/around Boston?

  • 3 months later...
superbeansprout Rookie

Would anyone seriously be interested in meeting up in/around Boston?

Hi there, so I know this thread has been not answered in a while, but if anyone out there in Boston or thereabouts is still interested in getting together, I'm game. My name is Liz, I work in Medford (there is a Not Your Average Joe's in my office complex!) and it's accessible by MBTA orange line at Wellington Station. I am also willing to travel around the city and to the south shore as well, as I live in Marshfield...and have a car...so if anyone hears of a good support group, and wants to go, I'm willing to carpool. Or if we just want to start our own group, we can do that too!

Nina12488 Rookie

I am in college during the school year... but am from Hull, MA! If a support group does get started around the Boston area... let me know!

sallyterpsichore Explorer

Darn it, I just lost my post. Anyway, I live in Brookline, work in JP, and am a member of the Healthy Villi, but also am dependent on public trans. I was thinking awhile ago about starting a dinner group with local celiacs in the area, but have since added other things to my platter and don't have enough time anymore for that, really.

However, I'd be very open to meeting up with all of you. We could just head downtown and grab a bite at Legals or PF Changs. None of my friends have celiac and they're probably sick of hearing about it! :D

There's also a place out by me in Washington Square that has Redbridge and are aware of celiac disease and know enough about the diet to be able to make gluten free stuff, I've heard.

Looking forward to meeting you all!

~Sally

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    2. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    3. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    4. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    5. - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,125
    • Most Online (within 30 mins)
      10,442

    psasso76
    Newest Member
    psasso76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...