Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Pre Dx-Testing In Progress

Dnnysm

Recommended Posts

Dnnysm Newbie
Dnnysm
Posted

So I've been complaining of the same issues for as long as I can remember: upset stomach, naseau, bowel moments that are never consistent usually very very soft, headaches day in and day out and numb to painful arms hands and feet and as a child told growing pains, as an adult I've just confused all doctors. Recently I've lived some very stressful events that have lasted for months and have been dx'd as having anxiety.

Well the symptoms will leave for a bit then come back and they always come back hard so I went to the doctors again.

His resident was the one who asked if I have ever been checked for celiac disease and here comes the testing again (first time for this of course but all this gets so tiring.)

I've already had quite the blood test with multiple things checked off but unfortunately I didn't really read what (as a doctors secretary I'm disappointed in myself) but results have not yet been discussed. Tomorrow I am going for an esophagus, stomach and Duodenum fluoroscopy test which I'm dreading as I always struggle with fluroscopy. I'm also currently awaiting an appointment with a GI which I hope isnt too long of a wait.

I really am struggling to eat as I normally do as I just wanna say f it and eat gluten free if it means I could possibly feel better but I know I should hold off.

I've been researching it intently and taking down tips, I am now keeping a food guide and poop guide as per the suggestion on my GP so the gi has info to go on. Any tips in the mean time to numb the stomach ache during this process or even calm it a bit or really anything! I'm just such a zombie these days with symptoms all over the board!

I really do believe it's this and with or without a positive Dx I will attempt this lifestyle since all my ailments finally fit, and my poor mom has closure on my nail nutrition hospitalizations as a child even though I was a well fed healthy eater as a kid! Haha!

Thanks guys! Look forward to sticking around this board!

Dianna!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rosetapper23 Explorer
rosetapper23
Posted

I also had ALL those symptoms (and more) before being diagnosed with celiac. I would BET that you either have celiac or gluten sensitivity. Hopefully, the testing will be over soon....but if your tests come out negative, I hope you'll still consider going gluten free. The tests are notoriously inaccurate....and you could be suffering from gluten sensitivity rather than celiac.

You're definitely on the right track!

WitsEnd Rookie
WitsEnd
Posted

I also have had all those symptoms and more. Im still in the middle of testing but it looks like I have a gluten intolerance.

Good luck with your tests! I know they are scary and annoying, but hopefully you'll get some answers.

Dnnysm Newbie
Dnnysm
Posted
  • Author

Just thought I'd update! Today was the first day I ever succesfully drank the disgusting barium and completed a fluoroscope test without throwing up. Only a ct, an appointment with a gi and what my gp assumes will be a biopsy left! What a process! I'm really itching to get gluten free. The quicker this process is over the sooner I can start to try and feel better! My family is very support on me trying this out regardless of test results!

Dnnysm Newbie
Dnnysm
Posted
  • Author

I`m not sure if there is a forum board all about bloodwork- i may be missing it but I recieved a call from my GP today telling me that my bloodwork showed elevated white blood cell counts- I don`t have specifics (I`ll be asking for a copy when I go see him monday) and was asked to repeat my labwork. Is this something normal or seen in celiacs? I honestly have no clue.

kareng Grand Master
kareng
Posted

I`m not sure if there is a forum board all about bloodwork- i may be missing it but I recieved a call from my GP today telling me that my bloodwork showed elevated white blood cell counts- I don`t have specifics (I`ll be asking for a copy when I go see him monday) and was asked to repeat my labwork. Is this something normal or seen in celiacs? I honestly have no clue.

It's fine to continue on with your thread.

Sounds like you didn't have the Celiac blood teast run? I would ask to get those done.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442
    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...