Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

New To Celiac

Dezzyray123

By Dezzyray123
in Meet Up Room

Recommended Posts

Dezzyray123 Newbie
Dezzyray123
Posted

I'm a 17 year old girl and I was told about two weeks ago I have celiac and have to live gluten free if I want the pains I get to stop. The problem is my family is Italian and my fav food is pasta and seeing all my fav foods that I can't eat is killing me inside and it's really messed with my emotions and I haven't really been happy since I've had to be gluten free and I don't know what to do to get out of this upsetting state. I guess I just really need someone to talk to about it because my boyfriend thinks he understands cuz his dad has celiac but it's not the same and it's just been hard trying to ajust and I would really just like someone to talk. Thanks.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nay-Nay Newbie
Nay-Nay
Posted

I feel your pain. I just got diagnosed yesterday with Celiacs Disease. I feel very discouraged and scared to eat anything because a lot of foods contain gluten. I am meeting with a nutritionist who can give me more information about gluten free diets. All I know is that I must try my hardest to stick to gluten free living because the abdominal pain is unbearable.

I bought my first gluten free cracker yesterday to see how it tasted. It wasnt bad, tasted kind of bland and super dry but, it went down (with some water and prayer)... I guess I can get use to it. Keep hope, just remember that there is someone somewhere that has it way worse then us.

FYI Try looking into gluten free pastas and rices. They sell at whole foods. They are a lil more pricy but hopefully that will make your transition a little easier.

Link to comment
Share on other sites
LexiBrowni Newbie
LexiBrowni
Posted

I'm a 17 year old girl and I was told about two weeks ago I have celiac and have to live gluten free if I want the pains I get to stop. The problem is my family is Italian and my fav food is pasta and seeing all my fav foods that I can't eat is killing me inside and it's really messed with my emotions and I haven't really been happy since I've had to be gluten free and I don't know what to do to get out of this upsetting state. I guess I just really need someone to talk to about it because my boyfriend thinks he understands cuz his dad has celiac but it's not the same and it's just been hard trying to ajust and I would really just like someone to talk. Thanks.

I completely understand what you are going through. The first few months are extremely hard, but your taste buds do get used to eating gluten free foods. Gluten free pasta is amazing and has helped me get through this a TON. It tastes almost exactly the same as regular pasta (my family can't even tell the difference). You can find it in most major grocery stores in the pasta section (I use Walmart/Publix). Also, something else you can look into is seeing if there is an actual gluten free section in the grocery store. My Walmart does in the chip/snacky area. They have granola bar-like things, sweet mixes (brownies are my personal fave), other pastas, cereals (Chex cereal is amazing), and other nice things to have. I hope this helps! It just takes some time to adjust to this new life style but it is well worth it!

P.S. - I have been gluten free now for around 5 months

Link to comment
Share on other sites
eatmeat4good Enthusiast
eatmeat4good
Posted

I know it is a huge loss when you have to totally change the way you eat. You will be grieving for a while. But I think you are in for a nice surprise as soon as you start trying gluten free pasta's. They are excellent. My son says they are better than "Regular Pasta" and he really liked his pasta! That is the one thing we had no trouble replacing on the gluten free diet. Wish you the best of luck. We like Ancient Harvest pasta, but there are a whole lot of brands to try. Good luck! :)

Link to comment
Share on other sites
  • 2 weeks later...
shauniscrazy Explorer
shauniscrazy
Posted

I'm a 17 year old girl and I was told about two weeks ago I have celiac and have to live gluten free if I want the pains I get to stop. The problem is my family is Italian and my fav food is pasta and seeing all my fav foods that I can't eat is killing me inside and it's really messed with my emotions and I haven't really been happy since I've had to be gluten free and I don't know what to do to get out of this upsetting state. I guess I just really need someone to talk to about it because my boyfriend thinks he understands cuz his dad has celiac but it's not the same and it's just been hard trying to ajust and I would really just like someone to talk. Thanks.

Hi im a 16 year old guy and im sorry you feel so bad. I just recently found out im allergic to gluten and i love pasta type foods too but i cant have it anymore either lol :P but there is gluten free noodles you can buy which i am going to try asap

Link to comment
Share on other sites
mamaw Community Regular
mamaw
Posted

Welcome to all of you young new celiac people.. Now, I'm an old celiac person but my two grandkids are 11 & 14 both celiac.. So I go to extremes to find "REAL " tasting gluten-free goodies plus I test market gluten-free goodies. So within this forum there are many conversations for newbies to celiac..All very good & Very helpful.

Here are some of the better gluten-free things..

Pastas:

Bi Aglut ( our fav)

Tinkyada

Le Veneizane ( sp may be off)

Schar

``````````````````````````````````````````````````````````

Egg noodles:

The best to date is Seitenbacher gluten-free egg ribbons...

``````````````````````````````````````````````````````````````````````

Cont'e:

pierogi's

ravioli

`````````````````````````````````````````````````````````````

English muffins, bagels pizza & much more

Joan's gluten-free great bakes

`````````````````````````````````````````````````````````````````````

Egg rolls, Asian dumplings

Feel Good Foods

``````````````````````````````````````````````````````````````````

Gravy mixes & sauces

Full Flavor Foods

``````````````````````````````````````````````````

Donuts, crossiants & more

Celiac Specialites

````````````````````````````````````````````````````

cakes brownies & such

123 gluten free

Betty Crocker

King Arthur

Namaste

many more available

```````````````````````````````````````````````````````

Ready belnded gluten-free flours

Better Batter

Jules

meister's

omata living flour

Tom Sawyer

many more

``````````````````````````````````````````````Breaded fish & Shrimp

Starfish

```````````````````````````````````````````````````````````

Depending where you all live these items may need to be ordered by mailorder....

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      120,996
    • Most Online (within 30 mins)
      7,748
    Eehendrix
    Newest Member
    Eehendrix
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • GardeningForHealth
      10 years later, my celiac is progressing

      By GardeningForHealth · Posted

      As a side note, it seems that medical science has evolved in the past 5-6 years regarding Celiac Disease, and I am now catching up. It seems that anything that disrupts the microbiome sufficiently enough can--in genetically susceptible individuals--lead to Celiac Disease. I have been reading now that antibiotics, excessive simple carbohydrates such as refined sugars and starches, the manner of birth such as C-section vs vaginal delivery, the diversity of one's diet, the presence of certain bacteria or viruses, can all contribute to microbiome dysbiosis, which can lead to Celiac. This is fascinating research.
    • GardeningForHealth
      10 years later, my celiac is progressing

      By GardeningForHealth · Posted

      I mostly eat healthy. My diet has varied over the past 10 years but mostly consisted of meals I cooked at home made from scratch. Ingredients I used over the years include (not in order): non-wheat grains such as teff, sorghum, millet, and eggs, butter, cheese, some milk, meat (poultry, red meat, but very little processed meat), gluten-free baked bread (mostly Canyon Bakehouse brand), vegetables, fruits, nuts, legumes, peanuts, chocolate (not in the past 6 months). However, the mistakes I made in my diet are that I consumed too much sugar and carbohydrates from gluten-free baked goods that I baked myself at home such as gluten-free dessert items, and also I ate pretty much the same exact meals over and over, so a great lack of diversity in what I ate. I got lazy. I think this messed up my microbiome. The meals I ate were mostly healthy though. I always made sure to eat vegetables and fruits on a daily basis.  I have checked for nutrient deficiencies over the years and I am sometimes low in Vitamin D. I started supplementing it after that. What concerns me is the progressive nature of the food intolerances, which indicates the gut is not healing and has been leaking all along. 
    • TessaBaker
      Hair loss

      By TessaBaker · Posted

      It sounds like you're dealing with a complex situation, and I can understand how frustrating it must be not to have a clear answer. Gut health can indeed play a significant role in various aspects of our well-being, including hair health.
    • Celiac16
      Thiamine supplementation

      By Celiac16 · Posted

      I have found similar benefits from thiamine. I was diagnosed with celiac at 16 and never really recovered despite strict gluten and dairy free diet and no detectable antibodies on checkup bloodworks. I’ve tried stopping the b1 but start to feel bad again- I wanted my doctors to do more extensive testing for the different thiamine transporters and enzymes which would be a better indication if I was deficient or dependent on it but everyone dismisses it (there are know genetic mutations where you need to take it daily for life). I have looked into Thiamine Responsive Megablast Anemia and I have a lot of the more mild symptoms of the disease that manifest when thiamine isn’t given to the patient such as optic neuritis… I just find the parallels interesting. i think that celiacs could be a side issue of inflammation that resulted from vitamin deficiencies. I was eating a lot of sugar leading up to my diagnosis and since eating gluten free didn’t make me feel much better, I’m wondering if this was more the underlying issue (sugar heavily depletes b1). I usually take 1.5g thiamine a day.
    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you for your welcome and reply.  Yes I've been carefully reading labels looking for everything in bold and have been amazed by what I have seen. However Heinz tomato and basil soup is wheat free so I m thinking I already have ulcers?  The acid could be causing the pain . My pain always starts in one place then follows the same route through me . GP confirmed that is the route of our digestive system.  So much pain from stabbing to tearing. If I throw in milk with lactose it's horrific.  Many years of it now, won't go into details but been seeing a consultant for a supposedly different problem . Wondering what damage has been done over the years. Many thanks for your reply. Wishing you the very best.    
×
×
  • Create New...