Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Grand Rapids, Mi Area Doc?

Crzycatlady

By Crzycatlady
in Doctors

Recommended Posts

Crzycatlady Newbie
Crzycatlady
Posted

Hi, I was diagnosed with celiac by a GI doc 8 months ago after having biopsies done during an endoscopy. I have been gluten free since but am not noticing improvement in the amount of stomach and muscle/bone pains I have. I am also getting flare ups, every 3-4 weeks, that keep me in bed for a few days at a time with worse symptoms. So I'm really motivated to want to feel better! Does anyone have a doc in this area that has helped them recover?? Thanks much for your help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

I don't have a name of a doctor but I do know that there is a great group from the Anchor Baptist Church, the total church is gluten-free & they put on a great gluten-free vendor fair yearly.. Sorry, its over this year... But call the church & ask to have Nancy call you , she can maybe give you a heads up...I think her last name is Speers...I don't have the church address but it is in Grand Rapids area....the vendor fair was held at the Deltaplex...

I sure they can supply a doctors name ....

Crzycatlady Newbie
Crzycatlady
Posted
  • Author

I don't have a name of a doctor but I do know that there is a great group from the Anchor Baptist Church, the total church is gluten-free & they put on a great gluten-free vendor fair yearly.. Sorry, its over this year... But call the church & ask to have Nancy call you , she can maybe give you a heads up...I think her last name is Speers...I don't have the church address but it is in Grand Rapids area....the vendor fair was held at the Deltaplex...

I sure they can supply a doctors name ....

Thank you again!!! This is really helpful. My GI doc hasn't been helpful and said that I may have IBS on top of celiac. I've heard the IBS diagnosis for the last 10 years and my symptoms have continued to get worse. I don't feel that he is taking me seriously. So it's time to move on.

Best of luck to you :)!

mamaw Community Regular
mamaw
Posted

You are so welcome! I too, had many dx's before going gluten-free, IBS being one of them,gallbladder removed,& so on.. It's enough to drive a person crazy hearing doctors say over & over its all in your head but I living proof say keep on fighting.....Years ago I was given the death sentence of ALS, I thank God everyday for this not being the case... Been gluten-free ever since & most issues are long gone but still have weak days now & then.. BUt I'm talking, walking & remaining very healthy.......

You too will get through all the issues & the clueless doctors...

Maybe we can meet next year in Grand Rapids! I /we had a great time at the vendor fair & the group is so nice... I love Nancy....

Crzycatlady Newbie
Crzycatlady
Posted
  • Author

You are so welcome! I too, had many dx's before going gluten-free, IBS being one of them,gallbladder removed,& so on.. It's enough to drive a person crazy hearing doctors say over & over its all in your head but I living proof say keep on fighting.....Years ago I was given the death sentence of ALS, I thank God everyday for this not being the case... Been gluten-free ever since & most issues are long gone but still have weak days now & then.. BUt I'm talking, walking & remaining very healthy.......

You too will get through all the issues & the clueless doctors...

Maybe we can meet next year in Grand Rapids! I /we had a great time at the vendor fair & the group is so nice... I love Nancy....

Wow, how scary to be told you may have ALS!! Thank goodness that is not the case--Celiac is treatable and I'm very grateful for that also. A good friend of mine made it to the gluten-free fair this past May (I was too sick to go at the time) and really enjoyed it, so I want to go next year and would like to meet up with you if you are there also. I do feel very fortunate that there is so much available that is gluten free. I'm going to contact Nancy and appreciate the advice...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,075
    • Most Online (within 30 mins)
      10,442
    Nan7472
    Newest Member
    Nan7472
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      Terrible Neurological Symptoms

      By Aretaeus Cappadocia · Posted

      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
×
×
  • Create New...