Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Some Second Opinions Needed.

Stephanie Young

Recommended Posts

Stephanie Young Newbie
Stephanie Young
Posted

Today was my first visit with a new doctor, since I have just moved and don't have insurance, he explained that he was not about to rack up some bills to do all these tests that I was expecting to pay for anyway. ANYWAY, I got an overall IBS diagnosis and a prescription for Alprazolam... :S

I explained to him that my previous tests (4 years ago, yes, i've not been very active in this venture to find out how intolerant I am actually to gluten) showed I was HIGHLY deficient in Vitamin D and some B's. My thyroid was fine and a diabetes test showed nothing wrong. I am not overweight and never really have been. I also explained to him that when (if) I drink any hard alcohol, my face swells up almost like ecsma, and I have killer hangovers/sickness after 1 drink. I think I really must have downplayed how nauseas I really feel after I eat most anything glutenous, and probably sounded a lot more stressed/anxious than I really am. I won't be back there.

How can I get a rushed doctor to listen?

I plan on visiting a diet coach soon instead of a doctor - I am starting now for one week a regular diet log with my normal diet, and exactly how I feel after eating exactly what I ate. I can already see after one day that there is something wrong with how many times I go to the bathroom. I should not have to feel like this ay longer, but this log is deffinitely a good idea before I start my real gluten-free trials!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beachbirdie Contributor
beachbirdie
Posted

Today was my first visit with a new doctor, since I have just moved and don't have insurance, he explained that he was not about to rack up some bills to do all these tests that I was expecting to pay for anyway. ANYWAY, I got an overall IBS diagnosis and a prescription for Alprazolam... :S

I explained to him that my previous tests (4 years ago, yes, i've not been very active in this venture to find out how intolerant I am actually to gluten) showed I was HIGHLY deficient in Vitamin D and some B's. My thyroid was fine and a diabetes test showed nothing wrong. I am not overweight and never really have been. I also explained to him that when (if) I drink any hard alcohol, my face swells up almost like ecsma, and I have killer hangovers/sickness after 1 drink. I think I really must have downplayed how nauseas I really feel after I eat most anything glutenous, and probably sounded a lot more stressed/anxious than I really am. I won't be back there.

How can I get a rushed doctor to listen?

I plan on visiting a diet coach soon instead of a doctor - I am starting now for one week a regular diet log with my normal diet, and exactly how I feel after eating exactly what I ate. I can already see after one day that there is something wrong with how many times I go to the bathroom. I should not have to feel like this ay longer, but this log is definitely a good idea before I start my real gluten-free trials!

If you were planning to pay out of pocket anyway, you could consider ordering your tests through a company like Open Original Shared Link. You go to the website, look for a LabCorp location near you, choose and order your tests, then go get the blood drawn. I've used them many times, especially during times we've been uninsured, and saved a lot of money. If you Google for discount codes, you can save a little too...a recent one was "STTM10" which netted a 10% discount, it is from the Stop The Thyroid Madness website.

There are other companies who do the same, but I've found for my uses that Healthcheck was the least expensive.

I don't know why your new doc would resist testing when he has no financial stake in the process at all. None of his business how you want to spend your money. Says a lot about his willingness (rather, lack thereof) to think "outside the box".

tom Contributor
tom
Posted

Good idea to get a diet/symptom log going. ;)

Stephanie Young Newbie
Stephanie Young
Posted
  • Author

Good idea to get a diet/symptom log going. ;)

Day one of my Diet Log and I couldn't eat a normal breakfast after all. I did gluten-free this morning because I have to be at a desk for 5 hours :/ Already feel like I can face the day. Victory! Stephanie 1 - Gluten 0 :D

Stephanie Young Newbie
Stephanie Young
Posted
  • Author

Good idea to get a diet/symptom log going. ;)

I wasn't really into getting the testing much, because if I went Gluten free on my own and felt better, there was no reason to really know for sure. Until I learned that Vit D definciency among all the other symptoms are red flags for Celiac. I've always had a definciency, plus bruising easily and general pale complection + fatigue. I think I just have to push for some testing.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442
    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...