Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Going The Primal Route....


LauraB0927

Recommended Posts

luvrdeo Apprentice

It definitely makes you feel "lighter" if that makes sense. I didnt feel weighed down like I did after eating a bowl of brown rice or rice pasta. I hope it works for you! Let us know how you're doing and if it helps!!!

After another horrible day yesterday, and a rough start today, I am officially paleo/primal! I'll keep you all posted, I truly hope this is the answer for me and my body. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 59
  • Created
  • Last Reply
eatmeat4good Enthusiast

I feel stronger and "lighter" mentally and physically now.

I hope this makes you feel better. Anyway, it's worth the ole college try!

LauraB0927 Apprentice

After another horrible day yesterday, and a rough start today, I am officially paleo/primal! I'll keep you all posted, I truly hope this is the answer for me and my body. :)

I have a feeling that it's going to make you feel a whole lot better - you just seem to hear/feel your body telling you "Ok, THIS is what I wanted all along!!" Remember to put butter on everything!!! (Thats the most fun part for me) - I'll add you as a friend and let me (and the rest of us) know how you're doing!!! I give it three days and you'll be back on here with a new outlook on life.... :)

luvrdeo Apprentice

I have a feeling that it's going to make you feel a whole lot better - you just seem to hear/feel your body telling you "Ok, THIS is what I wanted all along!!" Remember to put butter on everything!!! (Thats the most fun part for me) - I'll add you as a friend and let me (and the rest of us) know how you're doing!!! I give it three days and you'll be back on here with a new outlook on life.... :)

I sure hope so!! Butter...that makes me laugh, as I have never put butter on anything! Maybe I'll try it!! :) I am also going to call my doctor today to make sure there isn't something else they should test me for...better safe than sorry! Thank you for the encouragement, looking forward to this! Day 2, here I come!! :P

eatmeat4good Enthusiast

Yes! Butter your steak too!

haha!

The only thing I don't put butter on is bacon.

Bacon needs no help. :D

luvrdeo Apprentice

Yes! Butter your steak too!

haha!

The only thing I don't put butter on is bacon.

Bacon needs no help. :D

Too funny!! I've made it (almost) through 2 days...my only complaint is I constantly feel hungry, and have low energy (which unfortunately is nothing new)...perhaps tomorrow will be better!

LauraB0927 Apprentice

Too funny!! I've made it (almost) through 2 days...my only complaint is I constantly feel hungry, and have low energy (which unfortunately is nothing new)...perhaps tomorrow will be better!

From my understanding you can eat as much as you want on the primal diet - a handful of nuts (cashews, pistachios) will fill me up and hold me over for a while. I always keep cheese, pumpkin seeds, beef jerky, and apple slices with me too when I'm at work. How much are you eating? Do you think you're not eating enough since you are still healing from your not-so-good couple of days last week?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



luvrdeo Apprentice

From my understanding you can eat as much as you want on the primal diet - a handful of nuts (cashews, pistachios) will fill me up and hold me over for a while. I always keep cheese, pumpkin seeds, beef jerky, and apple slices with me too when I'm at work. How much are you eating? Do you think you're not eating enough since you are still healing from your not-so-good couple of days last week?

I feel like I eat ALL day!! :P I'm a big snacker, so I find myself munching non-stop, on something! I brought more chicken for lunch today in hopes that it fills me up longer than what I had yesterday. I also had horrible stomach aches and D yesterady morning so that didn't help feeling so hungry. I'm giving up cheese for a while to see if that is a culprit in the bad days...I'm hoping not, as I could live on the stuff. Today will be better!! :D

Jennmc31 Newbie

I'm doing it too :) Really no other way to eat and once goal weight is reached it's an 80/20 deal. Raw milk is illegal here in Ohio too but we have raw milk cheese and as long as it's grass fed that's what I get. I buy pasteurized but Non homogonized grass fed milk. It tastes no different and is much better for you. Some people use some dairy and a lot use none. I think it's individual.

luvrdeo Apprentice

I'm doing it too :) Really no other way to eat and once goal weight is reached it's an 80/20 deal. Raw milk is illegal here in Ohio too but we have raw milk cheese and as long as it's grass fed that's what I get. I buy pasteurized but Non homogonized grass fed milk. It tastes no different and is much better for you. Some people use some dairy and a lot use none. I think it's individual.

I do crave chips and tortillas though...the rest is easy, because it's how I would normally eat anyway! I don't drink much milk so that's no loss...just the cheese. After I get adjusted to this and see what the results are, I'll throw cheese back in - maybe even try to find a "raw" healthier brand!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Coeliac or not coeliac

    2. - Wheatwacked replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Coeliac or not coeliac

    3. - Wheatwacked commented on Scott Adams's article in Origins of Celiac Disease
      19

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

    4. - trents replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Coeliac or not coeliac

    5. - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Coeliac or not coeliac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,187
    • Most Online (within 30 mins)
      10,442

    Dennis E. Schertz
    Newest Member
    Dennis E. Schertz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • CC90
      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
    • cristiana
      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal.  My TTG score was completely through the roof at the time, greater than 100 which was then the cut off max. for my local lab.  Yet when my biopsy results came back, I was told I was stage 3 on the Marsh scale.  I've come across the same thing with at least one other person on this forum who was told everything looked normal, but the report was not talking about the actual biopsy samples, which had to be looked at through a microscope and came back abnormal.
    • trents
      My bad. I should have reread your first post as for some reason I was thinking your TTG was within normal range. While we are talking about celiac antibody blood work, you might not realize that there is not yet an industry standard rating scale in use for those blood tests so just having a raw number with out the reference scale can be less than helpful, especially when the test results are marginal. But a result of 87.4 is probably out of the normal range and into the positive range for any lab's scale. But back to the question of why your endoscopy/biopsy didn't show damage despite significantly positive TTG. Because they took the trouble to take seven samples, it is not likely they missed damage because of it being patchy. The other possibility is that there hasn't been time for the damage to show up. How long have you been experiencing the symptoms you describe in your first post? Having said all that, there are other medical conditions that can cause elevated TTG-IGA values and sometimes they are transient issues. I think it would be wise to ask for another TTG-IGA before the repeat endoscopy to see if it is still high.  Knitty kitty's suggestion of getting genetic testing done is also something to think about. About 35% of the general population will have one or both genes that are markers for the potential to develop active celiac disease but only about 1% of the population actually develop celiac disease. So, having a celiac potential gene cannot be used to definitively diagnose celiac disease but it can be realistically used to rule it out if you don't have either of the genes. If your symptoms persist, and all testing is complete and the follow-up endoscopy/biopsy still shows no damage, you should consider trialing a gluten free diet for a few months to see if symptoms improve. If not celiac disease, you could have NCGS (Non Celiac Gluten Sensitivity). 
×
×
  • Create New...