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GottaSki

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Everything posted by GottaSki

  1. GottaSki
    Welcome! Which IgG test? It could be: tTG-IgG DGP-IgG AGA-IgG Can you provide the reference range -- labs uses different ranges, without the range we can't interpret the result.
  2. GottaSki
    So...I never was a peep fan ....but....needed to restock some things at the big w today...the peep displays were impossible to miss. Mine had the cake and blue raspberry flavors that I saw....somehow a couple packs of the extra large white bunnies ended up in my cart to make choc dipped marshmallow bunnies for my boys...lol...they are damn cute
  3. GottaSki
    Elevated liver enzymes correct with time gluten-free. Mine were very high at diagnosis and came down at a consistent rate until they were normal. They have lived at a nice "normal" low for about three years now. Welcome to the club....with time those elevated liver enzymes become part of the puzzle and their decrease is comforting....at least it was...
  4. GottaSki
    I agree with Nicole. Hang in there
  5. GottaSki
    Is it possible our new cheerleader crashed the site? She is awfully peppy Dinner tonight: Baked Chicken Thighs with Honey Lemon Sauce Pad Thai Noodles with Honey Lemon Chili Sauce Broccoli Encore Strawberry Pie for the Men -- Hey...guess who finally made an awesome flaky, rolled out pie crust -- yep, that's right -- never had issue with...
  6. GottaSki
    Yep, what she said
  7. GottaSki
    A bit of paranoia happens to many (if not all) of us -- it is a really tough transition -- especially when it takes a long time for health to improve gluten-free. Healing happens and one day you'll feel much better which will allow you to be more secure in how cautious you need to be. Hang in there
  8. GottaSki
    Yay! Call off the search Glad you were able to check in Laura Sorry it was a rough procedure Rest up Absolutely!!!!
  9. GottaSki
    Keep looking for answers, do talk to your doctors -- if it continues an elimination diet should happen in addition to medical investigation. I've had intestinal inflammation continue despite being completely gluten-free these past five years -- it can be very frustrating finding the cause.
  10. GottaSki
    I wish the testing was this perfect. No -- it does not mean you do not have celiac -- it only means one of two things: 1. the damage is early and not advanced enough to classify as celiac 2. the doctor took biopsies from areas that do not yet have the level of damage to call it celiac with certainty Welcome...would normally respond with...
  11. GottaSki
    This is fantastic news Addie .... keep up the walks! I am so very happy it went well. I'm not worried about Laura...I am certain she is fine...but likely having a bit harder time in the hospital than you. She'll be back online very soon -- right, Laura? Love and hugs to you both : )
  12. GottaSki
    Welcome!! Thank you for being so honest about your concerns -- i don't have enough time to respond properly, but will be back. I think others will be along to welcome you and advise before I return. Hang in there
  13. GottaSki
    I love the title of this thread : ) And peeps taking it too seriously is not a problem -- they did the right thing and as your time gluten-free increases you can dictate how careful your family and friends need to be around you.
  14. GottaSki
    Exactly which IgG based celiac antibody test? Would like to help, but I don't understand the question.
  15. GottaSki
    Ummm... For me the dreaded flares have no exact rhyme or reason -- for many years people would tell me that I am doing too much, not processing stress, not eating right (lmao), not getting enough sleep, etc, etc, etc. Sorry, but that is strikingly similar to the words doctors used to dismiss me for decades. Sometimes a flare is simply a flare --...
  16. GottaSki
    you got me on that one...will have to look it up...only so many numbers stick in this old brain lol...i'll check back with an answer later edited to add: ok...you made me look and it seems my results pre-dx in 2009 are not available online -- which means I'll have to pull an old fashion paper file -- um, no -- not happening any time soon.
  17. GottaSki
    Ferritin is a bit low -- that is what I meant by looking for high/low within referenced ranges. B12 - not bad (some suggest it should be much higher for optimum -- mine was 150s at dx and has risen to the 700s gluten-free (just an example..everyone is different)
  18. GottaSki
    Gotcha! By the way...that lactose intolerance can be a result of celiac as well. If you aren't going to be tested soon -- I strongly suggest you remove all gluten for six months and then trial lactose/casein to see if you can tolerate it. Regardless of the dairy deal -- since you have symptoms consistent with celiac or ncgs and you had some improvement...
  19. GottaSki
    yep...liver is fine -- I forgot general ranges and just wanted to check. The challenge is up to you. I'll tell you that if you continue to improve it may become even more difficult to complete a gluten challenge. FWIW - if you think you'll want to be tested, do it now. Is there a celiac support group where you live? It may help you find a good...
  20. GottaSki
    Speckled 1:640 here....been there since just prior to celiac diagnosis - good to hear it can improve! I always think of that test around this time of year when I see the speckled easter egg dye kits in the store
  21. GottaSki
    You are right...what was run looks pretty good. It's hard to know what they mean for sure without ranges -- not all labs use the same ranges. To save you some tying -- what was the range for ALT in the liver section and the range of the tTG Antibody? Not to bum you out...but you did not have sufficient celiac blood work to know anything with any...
  22. GottaSki
    We took digestive enzymes with every meal during the early days -- now my teens just carry them with them -- one takes when he eats out of the home -- the other just takes if he feels uncomfortable after a meal. Lots of water and rest -- I hope he is feeling better very soon
  23. GottaSki
    Good Morning CaptainJack! Sorry you had a frustrating doctor's appt. Many of us have a great deal of experience with dismissive doctors. First thing -- always get written or electronic copies of all medical tests -- I have had several doctors or their staff tell me incorrect information -- one left cancer untreated for nine months until a computer...
  24. GottaSki
    Every one of these tests is strong positive, which is what it looked like - but I do like to see ranges because ranges vary between labs. Glad you'll be seeing another doctor soon. It takes time for symptoms to improve gluten-free. Sometimes it is days, weeks, months and sadly even years....but things do improve. Healing happens. The tTG-IgA...
  25. GottaSki
    This is wonderful to hear! Congratulations Edited to add -- lol -- just noticed - knew it was coming, but completely forgot -- today makes 5 years gluten-free for me -- wow time flies!
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