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GottaSki

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Everything posted by GottaSki

  1. GottaSki
    Total Serum IgA Tissue Transglutaminase IgA -- (commonly called tTG-IgA) Tissue Transglutaminase IgG (tTG-IgG) Endomysial IgA (EMA-IgA) Demiadated Gliadin Peptide - IgA (DGP-IgA) Demiadated Gliadin Peptide - IgG (DGP-IgG) older Gliadin Tests: Anti-Gliadin Antibody IgA (AGA-IgA) Anti-Gliadin Antibody IgG (AGA-IgG) Nutrient testing is also important...
  2. GottaSki
    two shades of green sprinkles and bright green polka dots
  3. GottaSki
    Thanks IHeart There is a lovely rich vanilla cake about to be decorated for St. Patty's Day on my kitchen counter....but sadly I completely forgot to purchase a brisket to get it bathing in brine so my guys will get a cake...but will have to take a raincheck on their corned beef this year -- going to run out to pick one up soon so that I can at least...
  4. GottaSki
    While your DGP-IgG was not positive, I would run the Complete Celiac Antibody panel again to compare results -- while it will not be proof for official diagnosis -- if it has come down substantially it is yet another piece of the puzzle. If it has gone up it will be an indication that gluten is sneaking in your diet and you need to review your diet, meds...
  5. GottaSki
    Are you talking about tTG-IgA and tTG-IgG -- i think you have answered this before, but if she has only had Tissue Transglutaminase antibody tests, then she should have the remaining celiac antibody tests run: EMA-IgA DGP-IgA DGP-IgG Good luck with the biopsies -- I hope they bring the answers needed for your family -- make sure the GI is going...
  6. GottaSki
    Welcome! Just wanted to let you know....this member has not been active here since March 2010.
  7. GottaSki
    Yes....and I was diagnosed with all markers. I most especially hate your number five which played a very large part in it taking 43 years and completely destroyed health to finally find celiac disease was an issue for my entire family. Pregnancy is one of the common triggers for celiac disease. As for testing your child. Are they currently eating...
  8. GottaSki
    lol....I was looking for this just last night for a flour tortilla recipe....I usually get my flours from amazon...and they don't currently carry, so I am going to try with plain tapioca starch which is pretty darn elastic and expanding. If I fail, I'll look elsewhere. Thanks for posting
  9. GottaSki
    Absolutely you are welcome...regardless of diagnosis we all struggle with the same issues.
  10. GottaSki
    just an added thought -- perhaps genetic testing would be enough to help you stay the course?
  11. GottaSki
    Welcome Waking....that can't sleep The severe reaction you are experiencing would not happen unless you have either Celiac Disease or Non-Celiac Gluten Sensitivy -- either have the same treatment -- complete removal of all gluten -- even cross contamination while cooking (ie restaurants with gluten-free menus that cook those gluten-free items in common...
  12. GottaSki
    Thanks Guys...just reported to a great gal whom has been gluten-free for a year and her boyfriend has joined in too!
  13. GottaSki
    For me...I think the difference is to whom you are speaking. In our family - after I was finally diagnosed my teens tested negative yet had complete symptom resolution gluten-free -- one of them has officially been dx'd by symptoms, genes and symptom resolution and the other is happily NCGS without dx. My eldest was an adult at the time of my dx - had...
  14. GottaSki
    I -- Black Sabbath
  15. GottaSki
    Lookie there...I ask and poof it appeared...thanks Addie! I still have my big plans that took a back burner last spring/summer to Mom's and then my health...but I am still dreaming and if things keep on the right path healthwise -- I am ready to flip my yard into something Shroomie would be proud of. If I don't get that far...my patio herbs will be very...
  16. GottaSki
    jealous of the rainbow of carrots...too soon to assume i'll be gardening...but it doesn't stop me from planning oh hey...we need to bump the garden thread -- you know me with my stoopid city kid questions
  17. GottaSki
    Zippity Do Da...Zippity eh!!! So the recent med changes have kept me mostly vertical for well over a week and I haven't had any food reactions (even with safe foods) only minor heat related hiccups....so today I made a sauce the same color as Velveeta with an entire butternut squash along with some cream cheese (first cheese since the failed "i want a...
  18. GottaSki
    You are not too sensitive and most definitely not alone here....I can't imagine anyone with Celiac Disease that hasn't had to deal with some level of scepticism from family, friends or co-workers. Others have said everything I would have so I'll just add a little story. A few years back I was working as an employee in an office situation after many years...
  19. GottaSki
    It is tough when healthful foods cause us problems. Since you have removed grains..I'm assuming celiac antibody tests will not be accurate. The reason I asked if you were eating any gluten...for those of us with Celiac the reaction to small amounts of gluten can become worse after we have removed gluten. If there has been consistent gluten ingestion...
  20. GottaSki
    This is good news....we must first take care of our families....then educate when an opportunity presents itself. Quite frankly, this pediatrician dismissed your very good attempt to provide correct celiac testing knowledge...there really is nothing left but to find a new doctor for your children. As for gene test...in our family it was helpful because...
  21. GottaSki
    Old Man -- Neil Young
  22. GottaSki
    Increased lymphocytes is Stage One of the Marsh Scale used in Celiac Disease...the problem being Stage One and Two are not specific to Celiac Disease. If the pathology report mentions increased crypt size or hyperplastic crypts -- the crypts are the spaces between villi -- in Stage Two these spaces become larger - even if villi atrophy (flattening) is...
  23. GottaSki
    No, gluten has no effect on DNA. The problem with gene tests is roughly 30% of population has the genes associated with Celiac Disease, while only an estimated 1% of population develops celiac. If he only ran gene tests - HLA tests -- not having consumed gluten is not an issue...but without celiac antibody tests you really don't have any real answers...
  24. GottaSki
    Sounds like a great plan...also good that her CMP and Iron showed no deficiencies. It is possible that she has Celiac without much damage yet, which is a very good thing. Even if she is NCGS you will likely see great improvement with complete removal of gluten. Take care
  25. GottaSki
    Often the EMA is only run with a positive tTG-IgA, so I wouldn't worry about that one. All three of these are negative...regardless of what the ranges were -- usually we ask for you to post ranges to as they vary between labs. So it is a very good sampling....are you sure they didn't run a Total Serum IgA? Without that test the results can be misleading...
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