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GottaSki

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Everything posted by GottaSki

  1. GottaSki
    Welcome Ami! Looks like your doctor is wrong and you do have Celiac Disease in addition to your wheat allergy - Make sure your primary doc gets copies of all these tests -- unless you want to proceed with an endoscopy, there is no need for a celiac specialist. If you decide to proceed with an endo -- try to find another GI that has training/experience...
  2. GottaSki
    hmmm, I read it to be #1 and #2 were single samples Was the report generated by the pathology lab or your doctor's office? I would definitely have your uncle look at it -- every lab words things differently and it's hard without seeing the report to help more. I think positive celiac antibodies with symptom resolution after removing gluten is enough...
  3. GottaSki
    With Me -- Sum 41
  4. GottaSki
    Irish made me snort -- it wasn't pretty -- was shacking on baby cucs with cilantro garlic (heavy garlic) sauce -- ouch!!! "I'm down about 6 organs at this point and apparently, I don't need them. lol"
  5. GottaSki
    I was a post-op barfer too -- really didn't work out great for the inner ear surgery...but I did learn to ask for the best antinausea meds too -- haven't had trouble since - well with vomit. All morphine derivatives make me itch terribly -- love when i was doped up after hysterectomy and my family thought it was funny that i couldn't explain how bad I was...
  6. GottaSki
    I agree with Nicole It is extremely frustrating, but the endoscopic biopsy is not perfect and only two samples from the small intestine is not optimum. It is done now, so remain gluten free to monitor symptoms. Repeat your antibody tests at six months -- if they have come down with the removal of gluten it is celiac and not ncgs. Gene testing is...
  7. GottaSki
    Now -- The Carpenters
  8. GottaSki
    Not the only one
  9. GottaSki
    She is currently off most of her medication except for some of her pain meds -- she has been on every combo of meds for pain and inflammation there is over the past twenty years.
  10. GottaSki
    Go get it PoPT! You can thank my original Celiac Doc for the vitamin K suggestion -- my primary giggles now when I give her my laundry list of nutrients and celiac antibodies to order so that they'll be at the ready for my annual celiac appointment (in case anyone is ready along -- annual celiac doc appts are not necessary -- but the annual testing should...
  11. GottaSki
    You are not unwelcome. In fact, you are very welcome. We all get the frustration that comes with accidental glutening. Please try to understand....this forum has roughly six or seven hundred guests each and every time I log on...for these folks along with those newly diagnosed...we try to keep the facts of celiac very clear. Perhaps if you re...
  12. GottaSki
    Yes...it is possible to be glutened anywhere. Yes, I have to take my food everywhere I go. Yes, some of us need to be extremely cautious. Everyone diagnosed with Celiac Disease needs to be cautious, most are safe at the 20ppm level....yet, some of us can't eat any food not prepared at home. Understand...many people visit this forum...most of which...
  13. GottaSki
    Hi Laura.... Is tomorrow your procedure? Good luck to you and Addie...you are both tough and will come through with flying colors. Wish I could drop dinner by, but will be keeping you and your surgeons at the top of my list!!!
  14. GottaSki
    These are very strong claims without support. I have what I consider very strong celiac genes. I am adopted so I do not know the up leg -- yet I do have three celiac genes and my children and grands all have celiac. I've done a bit of genetic research and I must say - I have no idea what being second generation American has to do with celiac disease...
  15. GottaSki
    You have a positive result in the most important test. Your health has begun to improve gluten-free. I am a staunch proponent of science -- yet the testing for celiac disease remains imperfect. We do not know what all NCGS encompasses. Until science catches up...you are ahead of the game. You know that you can't ingest gluten. Your health...
  16. GottaSki
    Hang in there. These autoimmune disorders share many common symptoms. For what it is worth...my daughter was diagnosed with SLE, RA and Fibromyalgia during her teens -- she has since added two more AIs in addition to Celiac Disease. She was 25 when I was finally diagnosed. All of her AI symptoms have improved gluten-free. Take all the time...
  17. GottaSki
    Coconut Oil is wonderful for many things. I don't see any issue if you were to apply to your skin and/or try to re-introduce to your diet. I do not mean to make light -- you have to understand -- as a child I hated all things coconut and I was not a fussy eater...but if there was a tiny bit of coconut in something I could taste it -- fast forward to...
  18. GottaSki
    Welcome! Anyone that moves from mostly grain carbs to a mostly whole meat and veggie diet is going to lose substantial weight over eight months. I lost 40 pounds when I was finally diagnosed -- granted my weight had increased over decades without any known cause -- lots of exercise along with a pretty darn healthy diet. I am not clear on what changed...
  19. GottaSki
    I absolutely have to chime in on this. I respect everyone's decision with regard to the celiac diagnostic process - and firmly believe -- that unless a diagnosis is derailed by circumstance -- it is a very good thing to pursue. While I fully understand every frustration that comes along with the gluten challenge...I can't help but post this: We,...
  20. GottaSki
    Very frustrating....it was new the year I was diagnosed -- very, very frustrating that it is not yet available everywhere (five years later). Perhaps I should go back to suggesting AGAs -- unless the DGP is available. Sorry to stop the flow of your thread CMC....carry on
  21. GottaSki
    Country Pork Ribs in the Crock Pot with green chili salsa "Flour Tortillas" - really gluten-free crepes Spanish Rice Salad Lemon Peach Bread for desert -- loosely used this recipe: https://www.facebook.com/photo.php?fbid=214886652042158&set=a.143404299190394.1073741827.143205102543647&type=1&theater subbed Pamela's Bread Mix for...
  22. GottaSki
    Glad to hear he is feeling better
  23. GottaSki
    I used a teatowel/cheesecloth to squeeze out as much moisture as possible from my grated cauliflower -- thinking I may need to do again when I defrost each packet for pizza -- making cauli "rice" won't have the same issue.
  24. GottaSki
    Yay Nicole and Addie!!! -- I'm still stuck at 1024 -- haven't played for past couple of days -- must make 2048 soon --
  25. GottaSki
    Is it possible it just got left off the order? That is strange...hoping it was just a minor error and his staff can fix it.
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