Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

I'm Too Hot Or Too Cold, Chills, Never In Between Today!


learning2cope

Recommended Posts

learning2cope Apprentice

Ok, I've not been yet diagnosed with anything relating to celiac but I have my doc appt on Friday and will request the specific blood tests to be done. Today I can't seem to get to a normal feeling temperature. I have my legs covered up and my feet are sweating (too hot!!) but if I put my fan on I'm way too cold! I get chills and goose bumps all over if I have my fan on. I can't get comfortable and I don't know why. I did check my temperature and it's perfectly normal today (which is odd since for over a year I've had eleveated temperature in the evenings/nighttime). I'm bloated feeling and always a little gassy. I just ate ice cream about a half hour or so ago and as I type this I'm starting to get nauseated and it feels now like I'm getting more bloated which is causing the nausea. I had a sandwich about an hour or so ago (wheat bread). This is happening more and more day by day I've noticed. I tend to always eat wheat with any meal, and have for many years.

 

I have what I truly believe is DH instead of palmoplantar pustular psoriasis. (mostly same symptoms but poss caused by celiac). I've already posted a lot of my health problems in other threads I've recently started but I need to know if this temperature things is normal?! I cannot sleep without a fan directly on my head and body, otherwise I wake up soaked in sweat, even a nap during the day. Been like that for about 2 years. But today the temperature thing is out of control. My arms are cold with goose bumps but my main upper body and head feels too warm like I want the fan on. My legs are chilly and frozen yet they are too warm and my feet are sweating. Yuck! I don't know if this is somehow a new manifestation of gluten intolerance.. I tried searching this forum for "hot and cold" but the search was fruitless. I feel like I'm going to go insane! If I cover up my arms, i immediately get too hot yet my arms still feel cold. Is this considered a "neurological" symptom?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

HI,

 

try searching for "night sweats". there are some threads about them.  Maybe something in one of them will help.

GottaSki Mentor

For years pre-diagnosis -- the only way I could describe the crazy temperature fluctuations I felt was that I had a broken thermostat -- I'm tired now -- but will re-read your post and try to give a more detailed answer in the morning.

jhol Enthusiast

the only way i know ive eaten "the wrong thing" is because i go absolutely freezing cold, get the chills, thankfully since ive gone gluten free i dont get the bloating any more. i hate getting wrapped up though because then im too hot!! it happened last night when i had some popcorn - think it was the soya!!!

 

it could be a gluten symptom or could be a thyroid problem -although they do tend to go hand in hand, id mention this to your doctor when you go and get them to check it out.

cavernio Enthusiast

I don't know why this is, but I definitely experienced similar things to what you are, just not to such an extreme. Being gluten free I've experienced far fewer of these episodes. Notably, dairy seems a likely culprit for these reactions in me too.

 

What you have sounds worse than how I was though. I would described it as feeling like I was getting the flu, mildly icky all over, and getting randomly hot and cold, but of course the thermometer always showed my body temp was fine even though I felt like it wasn't.

 

Since I felt like it was flu-like in nature, and since finding out I have celiac disease, I've assumed it was a more or less regular bodily reaction to the bombardment of antibodies being produced. It's how your immune system reacts to illnesses that usually makes you feel sick, not the illness itself, (at least until an illness starts to cause serious damage.)

 

In any case, you say you eat wheat with every meal, but that's normal. And you're getting it from more sources than you probably think. For instance, your ice cream probably has wheat in it or enough traces of wheat to make you sick too, ignoring the dairy.

learning2cope Apprentice

I ended up falling asleep and when I woke up about 2 hours later all that crazy temperature fluctuations were gone. So, I'm not sure what happened. I was so relieved when I woke up and realized it was gone. i wonder if it was from lack of sleep from the previous 2 days. I really didn't get much quality sleep during those days, had insomnia pretty bad. If I did fall asleep, I woke up very often during the time i was sleeping. But I had never experienced that kind of reaction to lack of sleep before. Thank you all for your replies. :)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,083
    • Most Online (within 30 mins)
      10,442

    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...