Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

In Pain, Questions About Being Glutened.


wystearya

Recommended Posts

wystearya Rookie

This morning I woke up with another of my migraines.  Thankfully I am not in too much pain, but enough to bother me.  I am also frustrated because I don't know why this happened, and I think I must have eaten something.

 

I seem to have a delayed reaction from when I eat gluten and when I show symptoms.  The last time I noticed it, it was several days before the full effect was on me.   This was only a couple of weeks ago.

 

Can symptoms come and go after being glutened?   If so how long can they linger?

 

I am also concerned because I ate some chili my Mom had fixed the other day.  I know they use several canned items in the chili, so I am worried maybe this is my problem.   I'm going to have to not eat her cooking for a while...  This should be 'fun' to explain to her. 

 

I fixed a meal last night and realized one item I used had citric acid in it.  From what I have been reading, this can come from wheat, correct?  - I always thought this was from citrus fruit!  I'm not sure this is my problem, since I have eaten this same thing before and not had a problem.  But I am concerned.

 

I'm just frustrated that I don't know why I am hurting.  I'm upset with myself too.  I'm still new to eliminating ALL sources of hidden gluten.  I am trying and making progress, but it makes me upset when I mess up.

 

Thanks for any help and listening to me,

~Wystearya


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

If you are in the US, wheat has to be listed. So, it is highly unlikely that the citric acid came from wheat.

 

I believe i have heard that it can come from corn, but I could be wrong. Feel free to correct me if I am.

 

I would be more concerned about that Chilli, as well as any cooking item (pans, spoons, ect) that could be cc'd.

w8in4dave Community Regular

 You have to be careful eating at someone else's home , we are so careful at our home we clean we buy new pots and pans, we throw away a bunch of stuff so we don't get CC'd then we go eat at someone ele's house. My friends try but they just don't understand the CC thing. I try not to hurt anyones feelings , I just say I am sorry I cannot eat right now. Or bring a dish and eat what I take over. It is hard! It is very hard!! 

 

I have been having problems with Corn, If you do a food diary you may find your possibly having an issue with something eles.... besides Gluten

GF Lover Rising Star

I have seen wheat as an ingredient in canned beans.  As always, read labels. 

 

Colleen

wystearya Rookie

I have seen wheat as an ingredient in canned beans.  As always, read labels. 

 

Colleen

This is probably it then.    

 

While I didn't cook it, and thus didn't read the labels, I know it's my fault for eating it without -knowing- it was gluten-free.

 

I'm going to have to have a sit down with my parents, and probably go back to the doctor for some testing.  My Mom probably won't believe me unless I go to the doctor.  She is terribly stubborn. 

 

---

 

Thank you all for the replies!

Adalaide Mentor

Citric acid will be fine in the US. Any ingredient sourced from wheat will actually have the word wheat on the label.

 

A very simple rule you need to live by. Every label, every time. If you haven't read the label of every product that went into what your mom made, you don't eat it. Oh, she stirred her chili with a wooden spoon. You don't eat it. Oh, it's in that old, chipped, non-stick pan? You don't eat it. She cut up the onions on that old cutting board she always used for bread? Don't eat it. See where this is going?

 

I'm not sure how old you are, but unless you are a minor you don't need to justify your decisions to your mother. You have a medical condition that is treated by diet, instead of taking a pill you eat a particular way to be healthy. It isn't a terribly difficult concept.

wystearya Rookie

Every label, every time.   I like this, and will remember!

 

My Mother is another issue.  I'm 33 and know she can't legally tell me what to do or control me.  She is just so controlling in nature and stubborn and easily angered that it makes it hard for me to talk to her about anything, especially something important.  It's sad, but I am much closer to my Dad than my Mom.  She also treats my Dad like a child at times, and I don't know why or how he puts up with it!  Not to say he lets her run everything, but keeping the peace with her means letting her have her way...a lot.   So, that is why I am concerned about talking to her, especially without 'official' proof from a doctor. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

when you are trying to figure out what is making you sick, keep a food journal and write down everything (i mean EVERYTHING) that passes your lips.  then it is a process of elimination. 

 

have you not been to the doctor?  you may want to rule out other things that could be making you ill... 

wystearya Rookie

About a year ago I went to the doctor thinking I might have IBS, and she recommended I try a gluten free diet.  No tests were done at the time.  I felt better and thought I was "just gluten sensitive" and would be OK.

 

Fast forward to now:

 

I have learned that I used to get DH.  I had a bad reaction to eating gluten two weeks ago.  The more I read and learn the more I believe I am Celiac.

 

--------

 

I actually did make an appointment to see my Doctor this Monday.  I will be telling her all this and see if there is any testing I should get done.

notme Experienced

very good - you know that if she wants to test you for antibodies you will have to be on gluten for them to show up on the test.  

 

my doc also tested me for crohns, thyroid, intestinal blockage, cancer, etc, to rule out other problems that needed other treatments.  i had telltale vitamin deficiencies (and dh, but they never could catch it to test it - "here's your dermitologist appt in 2 weeks" by that time it would clear up, sneaky rash <_< )    good luck! 

NoGlutenCooties Contributor

Citric acid is safe.

 

From glutenFreeLiving:

 

Citric Acid

This ingredient is gluten free. It is usually made from corn, beet sugar or molasses. Even when made from wheat, citric acid is so highly processed and purified that no gluten protein would remain.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

    2. - glucel replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

    3. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

    4. - knitty kitty replied to Bogger's topic in Related Issues & Disorders
      6

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,003
    • Most Online (within 30 mins)
      10,442

    michelinagiggles
    Newest Member
    michelinagiggles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @glucel,  There's a strong correlation between thiamine deficiency, hypoxia, and insomnia.  Thiamine is needed to help red blood cells carry oxygen.  In thiamine deficiency, hypoxia (lack of oxygen in tissues) occurs, and this can result in insomnia. Hypoxia causes systemic inflammation, increases inflammatory markers, and is associated with cardiovascular events.  Curiously, thiamine deficiency is correlated with excessive daytime sleepiness and oversleeping.   I found a combination of Tryptophan, Pyridoxine B 6, magnesium, and L-theanine works very well for inducing sleep.  Sometimes, I add Passion Flower Extract and/or Sweet Melissa.  There's no side effects the next morning with Passion Flower, it just induces sleepiness.  Sweet Melissa is groovy, and has anti-inflammatory effects on the digestive system.   I prefer to take 250 mg Benfotiamine and 100 mg Thiamine TTFD in the mornings and another dose of Benfotiamine at lunch.  I try not to take any thiamine after four p.m. because it keeps my brain so energized and wanting to think... Oh, I do take a combination of another form of thiamine (sulbutiamine), Pyridoxine and Cobalamine for a pain reliever sometimes, but I can sleep after taking that.  But thiamine does help regulate circadian rhythm.   Make sure you're getting Omega Three fats! They'll help you satisfy that late night carb craving with fewer carbs.  Flaxseed oil, olive oil, sunflower seed oil.  Nuts and nut butters, like walnuts and cashews, are good, too, if you can tolerate them.    Try taking the 100mg thiamine HCl before your aerobics and see if there's a difference.  Sweet dreams! References: Network Pharmacology Analysis of the Potential Pharmacological Mechanism of a Sleep Cocktail. ......(Skip to Section Four) https://pmc.ncbi.nlm.nih.gov/articles/PMC11201840/ Effects of Melissa officinalis Phytosome on Sleep Quality: Results of a Prospective, Double-Blind, Placebo-Controlled, and Cross-Over Study https://pubmed.ncbi.nlm.nih.gov/39683592/
    • glucel
      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
    • knitty kitty
      I have osteoporosis and have crushed three vertebrae.  I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health).   I tried Fosomax, but it tore up my insides.  I prefer the supplements.  I feel better and my bones feel stronger.   References: A composite protein enriched with threonine, lysine, and tryptophan improves osteoporosis by modulating the composition and metabolism of the gut microbiota https://pubmed.ncbi.nlm.nih.gov/41915427/
    • knitty kitty
      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1.  I am no longer on high blood pressure medication.  I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine.   The particular high blood pressure medication I took was Norvasc (amlodipine), which causes thiamine deficiency by blocking thiamine transporters so that thiamine cannot enter cells.  Benfotiamine can get into cells by merging with the cell membrane, thus bypassing nonfunctional thiamine transporters.   Indapamide also blocks thiamine transporters! The use of this type of medications that block thiamine precipitated Wernickes Encephalopathy.  My doctors did not recognize the connection to Thiamine deficiency.  I nearly died.   Talk to your doctor and dietician about supplementing with Benfotiamine, a fat soluble form of thiamine that bypasses thiamine transporters.  Ask for an Erythrocyte Transketolace Activity Assay to check your thiamine levels asap.  Routine blood tests for thiamine are not an accurate measure of  thiamine in the body.   Absorption of essential vitamins like Thiamine is altered in Celiac Disease due to damaged villi, inflammation and dysbiosis.  The Gluten Free diet can be lacking in vitamins and minerals.  Discuss supplementing with all the eight B vitamins,  the four fat soluble vitamins and necessary minerals. Please keep us posted on your progress! References: Drug-nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3) https://pubmed.ncbi.nlm.nih.gov/31764942/ The Pivotal Role of Thiamine Supplementation in Counteracting Cardiometabolic Dysfunctions Associated with Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC11988323/
    • knitty kitty
      Hi, @Sue7171, I thought you might be interested in this article about Lyme disease and the discussion after the article.   I found this article enlightening.  The finding that not only can alpha gal be problematic, but advantageous infection with Staph aureus can be problematic.   The Acari Hypothesis, VII: accounting for the comorbidity of allergy with other contemporary medical conditions, especially metabolic syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11983536/  
×
×
  • Create New...