Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Sister Doesn't Understand


ryann14

Recommended Posts

ryann14 Rookie

Hey guys, my older sister has recently moved in with my mom and I she eats gluten all the time. But I have also labeled everything and talked to her about cross contamination and everything but she still uses everything and I still get sick because she refuses to understand how sick. Any ways to get her to understand, I was diagnosed in February and living by myself but I came home after a injury. Any ways to get my boyfriends mom to understand.

Thank you, this website is awesome

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I think your mom should lay down the rules to your sister. It is your mom's house. Does your mom " believe" your diagnosis and cc, etc?

For your boyfriends mom, does your boyfriend " get it"? Maybe he could speak to her first? Or the two of you together? For myself, I wouldn't expect her to fix food for me. But I would want her to understand why I brought my own food for get- togethers.

Link to comment
Share on other sites
ryann14 Rookie

I think your mom should lay down the rules to your sister. It is your mom's house. Does your mom " believe" your diagnosis and cc, etc?

For your boyfriends mom, does your boyfriend " get it"? Maybe he could speak to her first? Or the two of you together? For myself, I wouldn't expect her to fix food for me. But I would want her to understand why I brought my own food for get- togethers.

Yea,its my mom's house and my mom has told her thst se needs to stop it but my sister says thatit isn't that bad and if it was then i would move out but i just had surgery (unrelated to celiac) but i can't move just yet. It seems like she doesn't care.

Link to comment
Share on other sites
kareng Grand Master

Yea,its my mom's house and my mom has told her thst se needs to stop it but my sister says thatit isn't that bad and if it was then i would move out but i just had surgery (unrelated to celiac) but i can't move just yet. It seems like she doesn't care.

What I'm saying is...if she isn't following your mom's rules, she should move out. But that is for your mom to decide. If your mom thinks the behavior is OK , you will have to work around it. Maybe lock up your safe food? Look at the links on this thread and show them to her and your mom?

https://www.celiac.com/forums/topic/105148-amount-of-gluten-in-single-small-bread-crumb/

Link to comment
Share on other sites
KCG91 Enthusiast

Hard as it might be, it's probably worth giving it your best shot to get your sister and boyfriend's mum to understand now. Although my flatmates have been fine with some of the changes I made, I didn't really spell it out to them when I was diagnosed a few months ago because I didn't want to cause too much fuss. Now I can see that there are things they need to change but it's harder to tell them that they're doing it wrong because I let it slide at the start... Just a thought! Hope you can get her to listen. 

Link to comment
Share on other sites
Neon rainbow Newbie

Argh, understand your frustration completely.

My partner and I were both living with my dad, step mum (my sb and his mrs too) when I first went gluten-free. So hard to get then too understand, my Stepmum after 6months finally realised I wasn't faking it, and I do get very ill.

Some people just don't want to look past thier own nose.

My dad brushed it off, but I did all the cooking so he just had to deal haha. He still doesn't quite understand what gluten is, and needs his glasses to read labels but he tried.

Link to comment
Share on other sites
frieze Community Regular

Hey guys, my older sister has recently moved in with my mom and I she eats gluten all the time. But I have also labeled everything and talked to her about cross contamination and everything but she still uses everything and I still get sick because she refuses to understand how sick. Any ways to get her to understand, I was diagnosed in February and living by myself but I came home after a injury. Any ways to get my boyfriends mom to understand.

Thank you, this website is awesome

it seems to be purposeful, some jealousy or other psych things going on?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,226
    • Most Online (within 30 mins)
      7,748

    NYKaren
    Newest Member
    NYKaren
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...