Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

I Got My Results Don't Know What To Do Next, Please Advise

tallypop

Recommended Posts

tallypop Rookie
tallypop
Posted

I finally got my results, negative  for Celiac as I was expecting but they do seem to indicate something is wrong.

 

Anti-tissue transglutnase- 0.1U/ml 

 

Which is very negative

 

IgA- 1.52g/L

 

Serum Ferritin- 10ug/L  (which indicates iron deficiency)

 

Vitamin D- 17.9 ug/L (it should be over 50 which indicates vitamin D deficiency)

 

White cell count

 

Neutrophil count- 2.01 ( just outside normal levels) 

 

So I'm iron and vit D deficient and my white cell count is slightly out, anyone else had results like this for celiac?

 

My doctor thinks its just a vit D and iron deficiency combined with IBS that is making me feel so ill, I'm not so sure...

 

Should I push for more tests do you think?

 

This forum has been great, I feel really alone in this so I really appreciate your help :)

 

Tally

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


powerofpositivethinking Community Regular
powerofpositivethinking
Posted

Hi Tally!

 

can you post the reference ranges? 

 

check out this link from Chicago Celiac Center:

 

Open Original Shared Link

 

Vit. D and Iron are two of the big ones.

 

a lot of people around here say IBS really stands for "I be stumped".  It's not really a diangosis, but a catch all term because doctors don't really know what to diagnose you with.

 

 

here's what I usually suggest testing wise

 

Comprehensive Celiac Panel:

DGP iga/igg

ttg iga/igg (You had the ttg iga.)

EMA

Total iga serum-this is a control test to make sure you make enough iga to validate the other testing (If you can list the reference range for the IgA level that will help to determine if you produce enough IgA.)

 

 

check out page 12 in this report for testing information:

Open Original Shared Link

 

Hope this helps, and I would definitely push for more tests if I were you!

1desperateladysaved Proficient
1desperateladysaved
Posted

My health practitioner told me that unexplained low iron is often the first symptom to appear with celiac. However, I believe that other difficulties may cause low iron, such as a diet low in iron, or heavy blood loss.   I recall experiencing anemia symptoms 35 years back.  I got diagnosed with celiac after 30 years of undeniable symptoms.  Now, at 20 months gluten free, my iron levels pulled up to normal. .  Can you go ahead and do an endoscopy?  it would be nice to have definitive results.  I hope you will feel better soon!

nvsmom Community Regular
nvsmom
Posted

Ditto The previous posters, you only had one test and it does not catch all celiacs, and could even be invalid if you are IgA deficient - more testing would be helpful.  Keep eating gluten until you are done testing.

 

You wrote :

 

 

My doctor thinks its just a vit D and iron deficiency combined with IBS that is making me feel so ill, I'm not so sure...

 

Those are just descriptors of symptoms, none actually answer the question "why" you are feeling poorly. I would push for more tests.

 

Good luck. I hope you find answers.

tallypop Rookie
tallypop
Posted
  • Author

Thank you so much for your comments, I know I shouldn't self diagnose but its hard not to when your doctor says you have ibs... I ate pasta and garlic bread last night, this morning I have a lot of stomach pain had to rush to the toilet and I woke up in the night with hip pain/leg aches.

I will post the reverence ranges later today,I going to start a food diary as well I think.

Lirren Rookie
Lirren
Posted

I understand this entirely, tallypop! My doctor's first "diagnosis" for my abdominal pain was IBS, and they would not see or treat me again for a month and a half of agony. Then they did a biopsy and found lymphocytes in my small intestinal tissue, which is why I'm currently being tested for celiac. The endoscopy/biopsy would not have happened if I hadn't kept pushing for another look, so don't give up! And if your doctor is reluctant to consider other possibilities, it is ALWAYS okay to seek a second opinion.

 

Good luck!

 

Thank you so much for your comments, I know I shouldn't self diagnose but its hard not to when your doctor says you have ibs... I ate pasta and garlic bread last night, this morning I have a lot of stomach pain had to rush to the toilet and I woke up in the night with hip pain/leg aches.

I will post the reverence ranges later today,I going to start a food diary as well I think.

tallypop Rookie
tallypop
Posted
  • Author

Hi Tally!

 

can you post the reference ranges? 

 

check out this link from Chicago Celiac Center:

 

Open Original Shared Link

 

Vit. D and Iron are two of the big ones.

 

a lot of people around here say IBS really stands for "I be stumped".  It's not really a diangosis, but a catch all term because doctors don't really know what to diagnose you with.

 

 

here's what I usually suggest testing wise

 

Comprehensive Celiac Panel:

DGP iga/igg

ttg iga/igg (You had the ttg iga.)

EMA

Total iga serum-this is a control test to make sure you make enough iga to validate the other testing (If you can list the reference range for the IgA level that will help to determine if you produce enough IgA.)

 

 

check out page 12 in this report for testing information:

Open Original Shared Link

 

Hope this helps, and I would definitely push for more tests if I were you!

I believe this is what you asked for

 

Anti-tissue transglutnase 0.00-7.00/ml

 

igA    0.87-4.12g/L

 

I'm back at the doctors on Monday, it seems never ending at the moment

 

Thanks for the feedback 

 

Tara

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,079
    • Most Online (within 30 mins)
      10,442
    jchamp080
    Newest Member
    jchamp080
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...