Jump to content
  • Sign Up
MrsGrampus

Edg First Dx'd Celiac, Now Blood Test To Confirm

Rate this topic

Recommended Posts

I'm new and just dx'd with celiac via endoscopy n colonoscopy. I have many neurological, connective tissue and autoimmune disorders like Chiari, Syringomyelia, Ehlers Danlos, Lupus, Sjogrens, Mast Cell Activation Disorder with anaphylaxis n tachy, Crohns, Gastritis, Dysautonomias like hyperagrenic POTS n atrial fibrillation more...

The biopsy showed flattening in the lamina propria and crypt regions which indicates celiac. I have been on a gluten free diet since early this year because I took a EPX Quantum Biofeedback test that showed I was sensitive to gluten enzyme 108.

Well the Gi nurse wants me to have celiac bloodwork. Should I get back on gluten to ensure proper dx?

Side note: I am doubled over in pain from back of tongue to anus! My MCAD is very active!

Share this post


Link to post
Share on other sites

I agree! Why bother? You have a positive biopsy. No sense making you sicker! But...I am not a doctor, that is certain.

I went for a routine colonoscopy when during my pre-op consult, my GI suspected celiac disease based on anemia. I was shocked! Blood test was positive but I waited 7 weeks for the biopsy. I went gluten crazy as a final farewell to my favorite foods. By the end, I had all the classical intestinal problems and it took , I think, much longer for me to heal.

I would worry about further damage that would creat new or worsening symptoms.

Share this post


Link to post
Share on other sites

If you are staying gluten-free (because of your other health issues and the celiac disease) then I wouldn't bother going back on gluten to test either. I think you might want to try testing anyway though. Sometimes the autoantibodies can stay elevated for months to years after going gluten-free. You might as well test and see if it tells you anything (without the gluten challenge).

Good luck.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...