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biel45

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biel45 Newbie
biel45
Posted

Good night

 

My problem started when i had gonorrhea in October 2014. I treated that but after it i was still having some blood in my stool and i was with a loose stool and a lot of of bowel movements. And i did more gonorrhea tests and everything was negative , so the doctor sent me to a GI . I went to a GI and he told me to do a Sigmoidoscopy (similar to a colonoscopy , but not able to see all the colon ). Everything was okay again , but i was still with bleeding and feeling very bad after all meals. 

 

After this , i have a friend that told me about gluten intolerance. So i started being gluten free and I started feeling MUCH MORE BETTER after the meals , my headache went out too , and i started having fewer bowel movements. After 1 week and a half of being gluten free i did the blood test for celiac disease but it was NEGATIVE. I went to the doctor again and she told me that i could be gluten intolerant but not celiac. Is it common here ??

 

It is my third doctor ,  i can't spend more money with more exams ! :( It's being everything too much hard for me , i'm doing an exchange program here in the USA , (I'm from other country) and i'm far away of my family for one year. 

I'm thinking about eating a lot of gluten these days and see what is gonna happen , if i feel very bad , i think i will just start being Gluten Free without a diagnosis.

 

I needed to share this ! Thanks =)

 

 

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etbtbfs Rookie
etbtbfs
Posted

Good night

 

My problem started when i had gonorrhea in October 2014. I treated that but after it i was still having some blood in my stool and i was with a loose stool and a lot of of bowel movements. And i did more gonorrhea tests and everything was negative , so the doctor sent me to a GI . I went to a GI and he told me to do a Sigmoidoscopy (similar to a colonoscopy , but not able to see all the colon ). Everything was okay again , but i was still with bleeding and feeling very bad after all meals. 

 

After this , i have a friend that told me about gluten intolerance. So i started being gluten free and I started feeling MUCH MORE BETTER after the meals , my headache went out too , and i started having fewer bowel movements. After 1 week and a half of being gluten free i did the blood test for celiac disease but it was NEGATIVE. I went to the doctor again and she told me that i could be gluten intolerant but not celiac. Is it common here ??

 

It is my third doctor ,  i can't spend more money with more exams ! :( It's being everything too much hard for me , i'm doing an exchange program here in the USA , (I'm from other country) and i'm far away of my family for one year. 

I'm thinking about eating a lot of gluten these days and see what is gonna happen , if i feel very bad , i think i will just start being Gluten Free without a diagnosis.

 

I needed to share this ! Thanks =)

Keep in mind that what matters, is how you feel!  If getting off gluten makes you feel better, then that is what matters.

 

The doc should have done both gliadin antibody and tissue transglutaminase tests.   If not at least both of those tests were done, then whether you really qualify as celiac is not known.  You could well be just gluten intolerant; and it isn't unheard of to have an infectious disease (which stresses the body), stress you into gluten intolerance.

 

Keep in mind that the type of wheat grown in the U.S. (transgenic dwarf wheat) is quite a toxic substance, it has way more gluten than the wheat varieties grown 100 years ago.  I have a neighbor who says she can tolerate a modest intake of wheat while in Europe, but in the U.S., she has to be wheat & gluten free.  There is a lot of bad stuff going on in the food supply in the U.S., such as glyphosate and Bt toxin pollution from genetically-modified crops.  Be careful what you eat here.

 

BTW doctors in the U.S. tend to be lab-test happy, and many of them don't appreciate how expensive it is.  There are way too many docs here who depend on lab tests, rather than symptoms, to diagnose.  Some of them have to practice that way because insurance companies expect them to see a huge number of patients per day.

kareng Grand Master
kareng
Posted

Keep in mind that what matters, is how you feel!  If getting off gluten makes you feel better, then that is what matters.

 

The doc should have done both gliadin antibody and tissue transglutaminase tests.   If not at least both of those tests were done, then whether you really qualify as celiac is not known.  You could well be just gluten intolerant; and it isn't unheard of to have an infectious disease (which stresses the body), stress you into gluten intolerance.

 

Keep in mind that the type of wheat grown in the U.S. (transgenic dwarf wheat) is quite a toxic substance, it has way more gluten than the wheat varieties grown 100 years ago.  I have a neighbor who says she can tolerate a modest intake of wheat while in Europe, but in the U.S., she has to be wheat & gluten free.  There is a lot of bad stuff going on in the food supply in the U.S., such as glyphosate and Bt toxin pollution from genetically-modified crops.  Be careful what you eat here.

 

BTW doctors in the U.S. tend to be lab-test happy, and many of them don't appreciate how expensive it is.  There are way too many docs here who depend on lab tests, rather than symptoms, to diagnose.  Some of them have to practice that way because insurance companies expect them to see a huge number of patients per day.

Actually, that stuff about the USA dwarf wheat strain having more gluten isn't backed up by science. It still has the same amount. Some commercial baked goods will have extra gluten added.

kareng Grand Master
kareng
Posted

Good night

 

My problem started when i had gonorrhea in October 2014. I treated that but after it i was still having some blood in my stool and i was with a loose stool and a lot of of bowel movements. And i did more gonorrhea tests and everything was negative , so the doctor sent me to a GI . I went to a GI and he told me to do a Sigmoidoscopy (similar to a colonoscopy , but not able to see all the colon ). Everything was okay again , but i was still with bleeding and feeling very bad after all meals. 

 

After this , i have a friend that told me about gluten intolerance. So i started being gluten free and I started feeling MUCH MORE BETTER after the meals , my headache went out too , and i started having fewer bowel movements. After 1 week and a half of being gluten free i did the blood test for celiac disease but it was NEGATIVE. I went to the doctor again and she told me that i could be gluten intolerant but not celiac. Is it common here ??

 

It is my third doctor ,  i can't spend more money with more exams ! :( It's being everything too much hard for me , i'm doing an exchange program here in the USA , (I'm from other country) and i'm far away of my family for one year. 

I'm thinking about eating a lot of gluten these days and see what is gonna happen , if i feel very bad , i think i will just start being Gluten Free without a diagnosis.

 

I needed to share this ! Thanks =)

You could be sensitive to gluten but not Celiac - for several reasons. Is gluten free making any difference in how you feel?

nvsmom Community Regular
nvsmom
Posted

Welcome to the board, Biel45. I hope you feel better.  :)

biel45 Newbie
biel45
Posted
  • Author

Thank you all for the answers !

 

and yes , being gluten free really helped me. I remember the last time i ate a lot of gluten , it was when i ate a package of Oreo and a hot dog with honey mustard , i got VERY sick , i started having more bleeding and couldn't react to anything , i almost gave up of my exchange program in this day. In the other day , i talked to a friend in Brazil that is a doctor and he told me about celiac disease. After 2-3 days of being gluten free i really felt the difference, i had a lower level of gases and the bleeding almost stopped. Sometimes the bleeding come back again even when i am in a gluten free diet. I use the meal plan of the university where i study to eat, they have gluten free option , but even though i don't feel safe eating at the dinnings because the food is prepared in the same kitchen.

 

My last trial will be giving up of the dinning and start preparing my own food. If the symptoms don't go away , i will have to go back to my country because the price of exams here is too much for me. 

 

Also, the doctor told me that bleeding is not a celiac symptom and she wouldn't ask me for an endoscopy , but at the same time she couldn't explain my bleeding... 

 

Other symptoms that made me think that i was celiac : Headaches , fatigue, weight loss, hair loss ... I did all kinds of exams , including colonoscopy , and everything was pretty normal.

nvsmom Community Regular
nvsmom
Posted

Hemorrhoids are not unusual among celiacs and it can cause quite a bit of bleeding. Could that be it? They often accompany diarrhea or constipation and the bleeding can ast days or weeks.

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biel45 Newbie
biel45
Posted
  • Author

I don't think so. I already did 2 rectal exams and the sigmoidoscopy and everything was fine.

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