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Hi.

 

I've always had low level of ferritin.

 

Here the lab range was 30-300 for normal and I always had levels from 15 to 28.

I don't have occult bleeding so I don't absorb properly iron.  

After my pregnancy in 2005 I tried to supplement hard with iron drops for 1,5 year without any result. 

 

What's your ferritin level prior to diagnosis (and after a gluten-free diet) ?

 

This low ferritin wasn't indagate from all the doctors !!

 

I don't know what the medium normal level is for a normal woman. Any thoughts?  

 

 

 

 


Whitefairy - diagnosed with Dq2 celiac gene (DBQ1*0201.), suffering with IBS and SIBO. 

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Mine was 9 before, and about 18 months later, 41.  This is all from memory so subject to slight error.  Thing is, I was able to absorb iron so when I was on some very hefty supplementation it went up very quickly initially.   I think to 16 after six weeks.  Then I took the pills on a more ad hoc basis because they never really agreed with me.  After I admitted to him that I wasn't very religious in my supplementation my specialist was pleased with the 41 - he told me he expected it to creep up slowly as the gut healed.

 

BTW, I found ferrous gluconate the ones that were easiest on the system.  I took them on an empty stomach an hour before breakfast with no pain.  


Diagnosed by blood test and endoscopy Spring 2013

Adopted a gluten-free diet in May 2013

 

BRITISH

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It really varies between people.  Mine was always perfectly normal, even in the top half of the range, before I was diagnosed.  I haven't had it checked for a few years, but I imagine it is similar.

 

Anemia is now considered to be one of the most common, if not the most common, celiac symptom out there.


Nicole 

"Acceptance is the key to happiness."

ITP - 1993

Celiac - June, 2012

Hypothyroid - August, 2012

CANADIAN

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Absolutely nvsmon.  I think doctors are quicker to pick this up in men - I know of two men who were dx'd just because of anemia.  I think this was why my dx took so long to make... unfortunately in women anemia is often attributed to other factors.


Diagnosed by blood test and endoscopy Spring 2013

Adopted a gluten-free diet in May 2013

 

BRITISH

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I was actually diagnosed because of my anemia.  For comparisons, my ferretin was 3.  I've had good luck with Vitron C, bringing my iron levels up to a more acceptable level of anemia -- ha!  But I am moving in the right direction with the gluten-free diet and supplements. I hope you find a solution, because anemia is underrated in terms of how miserable it actually makes you.

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My Ferritin has been as low as 3, although in my last test it was 6 but my red cell count (if thats the correct word) is in the middle of the acceptable range.  My doctor was sure i was going to be celiac because of the history of digestive issues and fatigue but the blood test came back negative.  She's now just written me off with a "just take an iron supplement every day for life, it must just be the way your body is"  I've since got hold of a nutritionist who put me on a gluten free diet and I felt a lot better - my continual brain fog and tired head lifted and the bloating was a lot easier.  I had a dental appointment this week and she's sending me to see a consultant because of my continual sensitive teeth and receeding gum problem (I'm 46yrs), funny enough after googling causes of gum recession I discovered that celiac and non celiac gluten sensitivity also can cause this.  I decided today to add gluten back into my diet and after a few weeks go to the doctor and request a re-test but after eating wheat all day, apart from feeling tired (as always) and a gurgling stomach and wind, I dont feel ill.  Honestly, I'm beginning to think I'm going mad and I so wanted there to be an answer to my life long fatigue, headaches, stomach issues, ibs like symptoms but maybe gluten isnt the culprit !  Sorry for rambling - i think I need to stop thinking about it all !!!
 

Ali 

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