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Jackyvh

Prep For Endoscopy And Colonoscopy For 5 Yr Old

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Hello everyone!

 

So my daughter has her appointment for her endoscope next week, glad to finally be able to get a definitive answer on wether or not she has Celiacs. Though from all your the info I got from you guys here her blood test results makes it pretty clear she does.

 

Turns out she also has to have a colonoscopy for a suspected polyp:(  I've been told it is safe and not too bad, but that the prep is the hardest part. I've read gummy bears are okay, but have't got the prep instructions to see if they are on there. :) We will be in a hotel and my girls are hoping to be able to swim the day of the prep, I'm hoping she will have the chance between bathroom breaks... Any one have any advice and/or experience with their child having a colonoscopy? 

 

 


5 yr old daughter's blood test results;

 

IgA 98 -negative

Gliadin IgG Level 26- weak positive

Gliadin IgA Level 23- weak positive

Tissue Transglutaminase IGA Level 130- Positive

Endomysial Antibody IgA 1:320

 

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Read the prep directions. Usually there is a day of only liquids and the laxative part starts about 5 pm. You don't want someone with diarrhea swimming. That's a real health issue for all the other people who might use the pool.


 

 

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There will be little to no 'bathroom breaks' in most cases.  Do bring some books or a handheld game of some sort that she can take to the bathroom with her as she will be in there for most of the evening after the clean out begins. If your room has a TV that she can see from the bathroom that might help. 

As someone who works at a hotel do ask staff for old towels that can just be thrown away to cover any chair she might sit in and to place under her on the bed if she needs to lay down or even on the bathroom floor.  At her age if she moves out of the bathroom between bouts an accident may happen.  I made myself a pallet on the bathroom floor to use during my preps that made it easier to rest between sits.

 Ask the pharmacist if you can mix something with the prep to make it more palatable for her if she is getting one of the ones you drink. 

I hope everything goes smoothly for her.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Make sure that she remains hydrated and that the prep drugs are geared for her weight. A soft toilet seat is something that I recall wishing for......

Oh, I do not know about Gummies, but jello must be green or yellow. No red colors. I lived on that and gluten-free chicken broth! Not sure how much energy she will have to swim in the morning. She is going to be hungry. Karen is right that once the laxatives are given -- no pool (per state health laws).


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

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Bummer, I was hoping the poop situation wouldn't be an all day thing:( I will definitely plan on keeping her out of the water. I will also be bringing my own towels and blankets just in case of an accident... 

 

Just got her prep instructions in the mail and it looks like liquids will begin at 5:00 pm two days before the procedure with 4 dozes of miralax and ex-lax square, then the same the next morning, sounds crappy if you ask me! I'v heard the adult version is way worse though, with some sort of gross tasting drink..

 

Thanks for the great advice you guys! I can see this forum is a wealth of knowledge of for all of us and am super grateful.


5 yr old daughter's blood test results;

 

IgA 98 -negative

Gliadin IgG Level 26- weak positive

Gliadin IgA Level 23- weak positive

Tissue Transglutaminase IGA Level 130- Positive

Endomysial Antibody IgA 1:320

 

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Bummer, I was hoping the poop situation wouldn't be an all day thing:( I will definitely plan on keeping her out of the water. I will also be bringing my own towels and blankets just in case of an accident... 

 

Just got her prep instructions in the mail and it looks like liquids will begin at 5:00 pm two days before the procedure with 4 dozes of miralax and ex-lax square, then the same the next morning, sounds crappy if you ask me! I'v heard the adult version is way worse though, with some sort of gross tasting drink..

 

Thanks for the great advice you guys! I can see this forum is a wealth of knowledge of for all of us and am super grateful.

So glad she doesn't have to drink that awful drink. Sounds like the hardest part of her prep may be the liquid diet for 2 days before. That would have been a tough one for my kids at that age.  Hope all goes well. 


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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