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kitty_el

Possible Celiac, Negative Blood Test

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I'm wondering if anyone can offer advice. I have suffered stomach pains, severe bloating, furling stomach, wind, low iron, teeth grinding for as long as I can remember. I have a family history of celiac disease, I had a blood test in 2012 that came back negative so I just left it at that.

Over the past 6 months my symptoms have become much worse, I have headaches, brain fog, dry flaking skin, joint pain and difficult sleeping.

I was reading an article on celiacs and I literally have all the symptoms, I'm wondering if a blood test can be negative and what else I can do?

In the past I have done diets like Atkins so eliminating all gluten and my stomach problems disappear completely but I'm not sure if that's gluten or some other sensitivity.

Thank you

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There is a chance for false-negative with the blood test which is why doctors advise having the scope and biopsy done first. If the biopsy reveals there is gluten damage then the doctor will order the blood test to confirm celiac disease. If you decide to pursue a scope it is very important that you continue to eat gluten in order for the test to be accurate.

 

Good luck!!

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Jeepasch, I think you have the process backwards. The blood tests are used for screening, and a positive result will likely cause the doctor to order the endoscopy for confirmation. Once damage has been confirmed by the biopsy, a diagnosis cane be made based on that alone. False negatives can occur with both the blood test and the endoscopy, particularly in children. And, yes, you must be eating gluten on a regular basis for either test to be accurate.


Peter

Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000. I was retested five years later and the biopsy was normal. You can beat this disease!

Type 1 (autoimmune) diabetes diagnosed in March 1986

Markham, Ontario (borders on Toronto)

Celiac.com - Celiac Disease Board Moderator since 2007

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Kitty, ask for the complete celiac blood panel:

-Tissue Transglutaminase (tTG) IgA and (tTG) IgG

-Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG

-EMA IgA

-total serum IgA and IgG (control test)

-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests

-endoscopic biopsy - make sure at least 6 samples are taken

(Source: NVSMOM -- )

I tested positive in just the DGP IGA and the rest were negative, yet biopsies revealed moderate to severe intestinal damage!

Welcome to the forum and let us know how it goes!


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

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Kitty, if any of your relatives who have celiac are first degree relatives then you should be tested every 2 years or sooner if symptoms present and with you the symptoms are presenting. Be SURE to tell your doc you have celiac in the family. We can't stress enough that if you've been eating gluten free or gluten light then you will need to do a gluten challenge or risk false negative tests. 

http://www.cureceliacdisease.org/archives/faq/what-is-a-gluten-challenge


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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