Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Help understanding Enterolab results


dhayes0923

Recommended Posts

dhayes0923 Newbie

I had tests in 2009 at Enterolab. I have not gone totally gluten-free since then, but I have avoided major sources like pasta and bread. Still I eat regular bread very occasionally and gluten-free pasta (corn and rice blend.) I still use cream in my coffee and eat cheese even though I have a sensitivity to casein. I avoid soy for the most part except for soy sauce on occasion. I feel that gluten and dairy are the things that trigger my gut issues.

Should I be eating totally and strictly gluten-free based on these test results? Are there other tests I should have done?

I have symptoms of gut pain, bloating, diarrhea (not as bad as it used to be), itchy skin (not as bad as before.) I have had sinus problems and infections as well for years—wondering if that is connected. I am on Wellbutrin for depression and also have to take Lunesta to sleep at night.  I am now also taking thyroid hormone because half of my thyroid gland had to be removed (a non-cancerous nodule.) I feel I may have leaky gut too or some damage to the gut. And I'm starting to have gerd sometimes that wakes me up in the night. That is a new symptom. I'm tired a lot, but I am also on the Atkins (low-carb) diet on and off.

I realize there is a genetic component to the gluten issue and I have family members (sisters) who have not been tested. However, my older sister is practically unable to go about her life without severe pain throughout her body. And one of my cousin's children was diagnosed with Celiac.

Should I be taking this gluten issue more seriously?

Fecal Anti-gliadin IgA:  39 units  (they say normal is less than 10 units)

Fecal Anti-tissue Transglutaminase IgA:  16 units  (they say normal is less than 10 units)

Quantitative Microscopic Fecal Fat Score:  Less than 300 units  (this seems to be a normal score)

Fecal Anti-casein (cow's milk) IgA:  18 units  (they say normal is less than 10 units)

HLA-DQB1 Molecular Analysis, Allele 1:  0501

HLA-DQB1 Molecular Analysis, Allele 2:  0501

Serologic equivalent:  HLA-DQ 1,1 (Subtype 5,5)

Fecal Anti-ovalbumin (chicken egg) IgA:  7 units  (this seems to be a normal score)

Fecal Anti-saccharomyces cerevisea (dietary yeast) IgA:  12 units  (they say normal is less than 10 units)

Fecal Anti-soy IgA:  16 units  (they say normal is less than 10 units)

Thank you for any help on this. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Maybe you could eat a bit of gluten every day for 2-3 months and get a medical test for Celiac?  Then at least you would know if you had a Celiac issue with gluten? If you have celiac disease, you have to be very strict about no gluten.

cyclinglady Grand Master

Karen is right.   The tests you took are not accepted by the world's leading experts on celiac disease and that includes all the Gastroentrologist Associations for the U.S., Britian and Canada.  These are the celiac blood tests you need to take and you must be eating gluten daily for 8 to 12 weeks for them to work:

Open Original Shared Link

Should you take celiac disease seriously?  If left unchecked, it can lead to severe illness like cancer, anemia, liver issues, the list goes on........and you can continue to develop other autoimmune disorders.  So, please go to a medical doctor for proper testing.  Any GP or PCP can start the process.  A diagnosis often comes from a GI doctor.  Good Luck! 

StephanieL Enthusiast

IgA labs mean nothing for food allergies either.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,077
    • Most Online (within 30 mins)
      10,442

    terrificterry
    Newest Member
    terrificterry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...