Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Could this possibly be related to celiac or a gluten intolerance?


ModernLifeIsWar

Recommended Posts

ModernLifeIsWar Newbie

I don't have any real major stomach issues, however I've had a diet for years very high in gluten consisting of tons of junk food (pizza, cookies, cereal, donuts, etc..). 

A few symptoms I have noticed over the years have been:

-Migraines (very frequent)

-Large increase in eye floaters

-Very bad sinus congestion

-Very bad anxiety

-Semi frequent bouts of diarrhea/runny bowel movements. Not all the time, but it certainly happens more than I feel is normal.

 

However, in terms of stomach pain I haven't noticed much. I do get very bloated sometimes however, mainly just contributed this to my crappy diet.

Anyways, since the beginning of April I've been having a lot of neurological issues and after reading more into gluten intolerance I'm wondering if it couldn't be associated:

-Full body tremors ranging from hands, arms, legs, and core. (i.e. I shake a lot when doing stuff with my hands, if I try to do sit ups my whole body will shake, etc..). I've had minor hand tremors in the past but this problem has recently blown to a whole new level

-Muscle spasms all over and mild cramping

-tingling feelings randomly throughout my  body in all parts including face and head

-Shortness of breath

-Racing heart rate when doing physical activity (i.e. walking upstairs and I'm a fairly active person)

-Minor issues with balance and coordination

-Brain fog

 

I'm going to see a neurologist in 3 weeks, but I decided to give gluten free a try as of two days ago. I've also been taking a lot of important vitamins and nutrients (b12, d, b complex, fish oil, magnesium, etc..). I'd be interested to know if anyone here has experienced similar symptoms (most notably tremors and muscle spasms) and had success switching to gluten free. I've seen anecdotal cases posted, so I'm hoping that maybe this is my issue.

Another thing to note is my younger sister has very bad stomach issues. She hasn't seen a Dr about it and can't follow a diet to save her life, but she commonly complains of pain, gas, bloating, nasty bowel movements, etc... after eating out. So I think there is a possible genetic factor here.

What would be the best Dr to seek out in helping me diagnose such a thing? Also is it normal to have stomach issues AFTER starting gluten free? Today is my third day and I've had 2 bouts of diarrhea and very loud stomach growling. Possibly from switching from a diet full of sugar and gluten to one with significantly less and gluten free?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SLLRunner Enthusiast

Welcome, @ModernLifeIsWar!

Celiac has over 300 symptoms, but it looks like you have some symptoms that appear a lot in those diagnosed with celiac. I suggest you take these symptoms to your doctor and ask for a GI consult and to get the full blod panel to test for celiac disease. The gold standard is an endoscope, where 4 or more biopsies of the intestines are taken. The caveat is that you must be on a diet with gluten for all tests to be accurate, and you must continue eating gluten until all testing is done. 

So, if it were me, I would start eating gluten again and get that referral.  However, you need to make the decision that is best or you. 

Edited to Add: Also, since you eat a lot of processed food, your body might be reacting to other things, such ad additives. 

CiciStrong85 Rookie

I too have more neuro than gastro symptoms...its so weird. I hope we both find answers soon!

cyclinglady Grand Master

If you did actually have celiac disease, it can take weeks, months and years to recover from some of your symptoms, especially neurological ones.  

Best to get screened for celiac disease.  It's a simple blood test.  Any medical doctor can do it.  But a GI doctor is needed for a diagnosis, since an endoscopy is part of the diagnostic procedure.  BUT you have to be consuming gluten to get accurate results!

Open Original Shared Link

Open Original Shared Link

Keep on researching.  I wish you well!  

 

  • 1 month later...
jenni1 Newbie

Modern life is war- have you gotten any answers to your symptoms yet?  I have almost every symptom as you do but doctors have not been successful at finding the cause.  The only thing they have mentioned is Vertigo. 

Jmg Mentor
8 hours ago, jenni1 said:

Modern life is war- have you gotten any answers to your symptoms yet?  I have almost every symptom as you do but doctors have not been successful at finding the cause.  The only thing they have mentioned is Vertigo. 

Hi Jenni, Why not start a new topic so that others can advise you? There are some great people here with a lot of knowledge around the different ways it can manifest.  For what its worth I've had a lot of the symptoms Modernlife details above improve or resolve completely after going gluten free, but the advice above is so important about eating gluten until the testing is completed!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,077
    • Most Online (within 30 mins)
      10,442

    terrificterry
    Newest Member
    terrificterry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...