-
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
Will my doctor test me? So many symptoms...
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- Aretaeus Cappadocia replied to yellowstone's topic in Coping with Celiac Disease2Hypoglycemia, ketones in urine and weight lost. I need advice.
Your post doesn't mention if you are seeing Doctors about this and what they had to say, or if you are just trying to manage it by yourself. If you aren't getting medical support, that is the first place to go. On the other hand, if you've been on a diagnostic odyssey with Dr after Dr being perplexed, consider getting your genome sequenced (search... -
- knitty kitty replied to yellowstone's topic in Coping with Celiac Disease2Hypoglycemia, ketones in urine and weight lost. I need advice.
@yellowstone, You poor thing! I'm not a medical doctor, but it sounds like "Refeeding Syndrome". I suggest you seek medical attention. Refeeding Syndrome occurs when your body doesn't have enough of the necessary vitamins, especially Thiamine, to turn sugars (from the fruit, juice, and honey) to turn provide energy. This can occur...- 1
-
-
- Sheila G. replied to Sheila G.'s topic in Related Issues & Disorders11No red meat
Thank you for sending me this information 🙏🏻❤️✌️- 1
-
-
-
- yellowstone posted a topic in Coping with Celiac Disease2Hypoglycemia, ketones in urine and weight lost. I need advice.
Due to malabsorption, I have hypoglycemia and I excrete ketones in my urine. I am losing a lot of weight. I don’t know what to do — I drink juice, eat fruit, take honey, but I don’t notice much improvement. Any advice?
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Total Members134,002
-
Most Online (within 30 mins)10,442
-
-
Celiac.com Sponsor (A20):
-
Celiac.com Sponsor (A22):
-
Forum Statistics
-
Total Topics121.6k
-
Total Posts1m
-
-
Celiac.com Sponsor (A21):
-
Who's Online (See full list)
- There are no registered users currently online
-
Upcoming Events
-
0May 06, 2026 11:00 PM
Until
May 07, 2026 12:00 AM
-
0May 07, 2026 11:00 PM
Until
May 08, 2026 12:00 AM
-
Posts
-
By Aretaeus Cappadocia · Posted
Your post doesn't mention if you are seeing Doctors about this and what they had to say, or if you are just trying to manage it by yourself. If you aren't getting medical support, that is the first place to go. On the other hand, if you've been on a diagnostic odyssey with Dr after Dr being perplexed, consider getting your genome sequenced (search for "whole genome sequencing"). It's not guaranteed to get you an answer, but if your symptoms are caused by a genetic condition you might get the answer that is stumping standard differential diagnosis. These days there are quite a few companies offering this service. I wish I could tell you which one was best but I've been out of that field for a decade. Talk to your Dr about this and see what they think. Price is probably ~$500-$1,500 including the sequencing and detailed reports. Sounds like a lot, I know, but consider that 25 years ago just the sequencing (no reports) cost $2.7 B and took 3 years to complete. -
By knitty kitty · Posted
@yellowstone, You poor thing! I'm not a medical doctor, but it sounds like "Refeeding Syndrome". I suggest you seek medical attention. Refeeding Syndrome occurs when your body doesn't have enough of the necessary vitamins, especially Thiamine, to turn sugars (from the fruit, juice, and honey) to turn provide energy. This can occur in Malabsorption due to Celiac Disease. Malabsorption prevents the absorption of B vitamins, especially Thiamine. The B vitamins and Thiamine cannot be stored long in the body. When you run out of Thiamine, your body burns fat for energy which produces the Ketones, hence your weight loss. With medical attention, Thiamine and other B vitamins need to be replaced before giving any more sugars. Doctors can give you an IV containing B vitamins including Thiamine, called a "banana bag". Riboflavin Vitamin B2 causes the yellow color. Doctors can also monitor your electrolytes which can become unbalanced and cause further serious health issues. I've experienced Refeeding Syndrome. It's very scary. Health can deteriorate quickly in Refeeding Syndrome. It's correctable, but complicated. I strongly urge you to get professional medical attention as soon as possible. Our prayers are with you! https://my.clevelandclinic.org/health/diseases/23228-refeeding-syndrome Thiamine Deficiency in Self-Induced Refeeding Syndrome, an Undetected and Potentially Lethal Condition https://pmc.ncbi.nlm.nih.gov/articles/PMC4295429/ Keep us posted on your progress! -
-
By yellowstone · Posted
Due to malabsorption, I have hypoglycemia and I excrete ketones in my urine. I am losing a lot of weight. I don’t know what to do — I drink juice, eat fruit, take honey, but I don’t notice much improvement. Any advice? -
I ate sprouted buckwheat and hard boiled egg last night instead of cereal and got extra 1/2 hour sleep but more importantly feel better this morning. I do sleep in cycles that seems to rotate btwn 3 and 6 hrs but I will monitor next time I make a pot. Bwheat is a complete protein with good amounts of thiamin, magnesium, fiber and iron. High carb but much lower glycemic and much healthier than refined flour cereal.
-
Recommended Posts
Archived
This topic is now archived and is closed to further replies.