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Gluten Symptom not improving

icdk

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icdk Newbie
icdk
Posted

Hi, my name is Muqeet and im 16. I have celiac and have been gluten free for a week but I don't feel better. I have anxiety, feelings of depression, brain fog, light-headedness and vertigo. Does anyone else have symptoms like these ? Is this normal ? And will going gluten free really reduce all these symptoms? They're all bothering me sooo much. Also how long will it take ? I was a heavy gluten eater before. Please reply It'd really help me. Thank you !

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kareng Grand Master
kareng
Posted
 

Hi, my name is Muqeet and im 16. Ive been gluten free for a week but I don't feel better. I have anxiety, feelings of depression, brain fog, light-headedness and vertigo. Does anyone else have symptoms like these ? Is this normal ? And will going gluten free really reduce all these symptoms? They're all bothering me sooo much. Also how long will it take ? I was a heavy gluten eater before. Please reply It'd really help me. Thank you !

Do you have Celiac disease?  because all those things could be part of Celiac but they could be other things, too.  You would want to get a doctor to see what is actually wrong with you.  To be tested for Celiac, you should be eating gluten.

if you have been tested for Celiac and you have Celiac, it will take longer than a week to heal.  

cyclinglady Grand Master
cyclinglady
Posted

Here are the tests:  

Open Original Shared Link

etbtbfs Rookie
etbtbfs
Posted

I can't know what the cause of your anxiety, depression, and brain fog really is.   However, you should know that all of those symptoms are classic hypothyroid symptoms.  Gluten can cause gut destruction (called enteropathy or "leaky gut"), leading to autoimmunity directed (usually) at your endocrine system.   The most common type of endocrine autoimmunity is Hashimoto's Autoimmune Thyroiditis.  I had Hashi's, and from the time I went off gluten, it took 18 months for my TPO antibodies test to fall back to zero.   So, expecting to feel better after only one week off gluten, is very unrealistic.  Think in terms of months.

If you have access to medica

etbtbfs Rookie
etbtbfs
Posted

.... (continued) the celiac.com website is buggy.  To continue: if you have access to medical lab testing, the Tissue Transglutaminase and Gliadin Antibody tests should be able to tell you if you have celiac.  In light of the anxiety, depression, and brain fog symptoms, a full thyroid panel seems appropriate now to determine if thyroid is the cause of your mental symptoms.

icdk Newbie
icdk
Posted
  • Author

My thyroid has been tested and it's fine. Im sure it's celiac. But its already been a week and i can notice my gut healing because my stomach doesn't hurt and diarrhea has stopped. But what about these symptoms? 

Jmg Mentor
Jmg
Posted
 

My thyroid has been tested and it's fine. Im sure it's celiac. But its already been a week and i can notice my gut healing because my stomach doesn't hurt and diarrhea has stopped. But what about these symptoms? 

By sure do you mean that it's been confirmed by your doctor, or that having excluded thyroid you've concluded it must be celiac? There's a big difference between the two! If you go gluten free before testing you will make getting a correct diagnosis very difficult and potentially needlessly painful. 

Everyone here will understand your urgent desire to seek relief from symptoms. You have found a great site with lots of well informed and supportive members. But perhaps some more details of what you know for a medically diagnosed fact and what you suspect would help them to better help you?

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kareng Grand Master
kareng
Posted
 

My thyroid has been tested and it's fine. Im sure it's celiac. But its already been a week and i can notice my gut healing because my stomach doesn't hurt and diarrhea has stopped. But what about these symptoms? 

Celiac disease is a real disease.  You can't decide you have Celiac.  Just like you can't diagnose yourself with diabetes because eating less sugar makes you feel better.  There are many reasons a person's " stomach" would feel better not eating gluten.  

 

icdk Newbie
icdk
Posted
  • Author
 

 my doctor has told me i need to go off gluten because of i have gluten sensitivity or celiac. I have not self diagnosed myself. I just want to know when if anyone else has similar symptoms and when they'll reduce by

manasota Explorer
manasota
Posted

Hi Muqeet,

Lots of people here have similar symptoms--or worse.  Your symptoms will most likely go away in a matter of months (IF you are COMPLETELY gluten free); since you were so LUCKY to be diagnosed at such a young age.  Everything you are describing is normal and to be expected.  You are not alone.

icdk Newbie
icdk
Posted
  • Author
 

 

But will my feelings of anxiety and depression also last for months....

kareng Grand Master
kareng
Posted
 
 

 

But will my feelings of anxiety and depression also last for months....

I am still not certain if you have an actual Celiac diagnosis, and it sounds as if you aren't either.  But, lets assume you do.  It can take months, maybe years, for everything to resolve.  Some of it is because of vitamin deficiencies caused by Celiac.  Perhaps you should consider seeing a psychiatrist and getting a low dose of anti- depressant.  Something temporary, until you have had time to get your body/guts straightened out.  I have seen it really help people for short term depressions. 

manasota Explorer
manasota
Posted

Muqeet, since are reaching out  mainly for help with the anxiety/depression, I agree you should seek medical attention for this.  There are countless meds available which can help you even if you only take them short-term.  Some anti-anxiety meds can help immediately.  Usually anti-depressants take some time (weeks) to take effect.  You will have to try to be patient.  There is no quick cure.  If one med isn't to your liking, there are many options to try.  I am sorry there is no quick fix.  You are way ahead of the game because you are wise enough to ask for help.  I hope you're wise enough to accept it.

Countless people have been helped by taking anti-depressants temporarily.  That is what they are for.  I might suggest you see your family doctor first as he/she will be a quicker appointment than a psychiatrist.  You may not even need to see a psychiatrist.  Might save you money and time.

GFinDC Veteran
GFinDC
Posted

Hi Muqeet,

The better you avoid gluten in your diet, even small crumbs of it, the sooner you will recover.  Even tiny amounts of gluten can kick off the autoimmune reaction, and it doesn't stop when the food leaves your body.  It can continue for weeks or months.  So it's very important to control what you eat and avoid cross-contamination.  Meat, veggies, eggs, nuts and some fruit are good foods to eat.  Try to avoid processed foods and eating in restaurants.  It's best to make your own food at home and carry something with your to eat for snacks.

The newbie101 thread has some tips in it that might help.

 

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