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Hi, have seen some stuff about gene testing for celiacs online - is this something worth doing, and can anyone suggest a reputable company to go through (and takes samples from overseas - we're in New Zealand).

 

thanks, Melissa

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http://www.cureceliacdisease.org/faq/what-is-genetic-testing-and-who-can-benefit-from-it/

Gene testing is really used to rule out celiac disease. Something like over 30% of the population has the genes for celiac but only about 1% of those will ever actually have celiac so if you come up positive on the genetic test it only means you're the same as 1/3 of the population NOT that you have celiac disease. Save your money.


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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I am not sure if my insurance covers it, but I am considering it.  My kid has tested negative for celiac disease.  She will be tested every few years for life (even if symptom free), so genetic testing could allow her to opt out of the celiac blood panel.  But with my diagnosis and her Dad having gluten issues (15 years gluten free), plus strong autoimmune disorders on both sides, I bet she has the genes.   Pay out of pocket?  No.  She can tough out the needle stick!  

Squimingitch is right that it is used to exclude celiac disease -- not for diagnostic purposes.  


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

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Thanks, Frieze!  Point well taken.  i guess I kept thinking of how awful her blood draws are for her.  She will have to tough it out.  


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

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