Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Could This Be Dh?


jnclelland

Recommended Posts

jnclelland Contributor

Hi, I'm a new member here. I've had a rash for many years, mostly on the knuckles of my right hand, that got much better when I stopped eating wheat and dairy this summer. After awhile, I also cut out all gluten, yeast, and fermented foods (mostly vinegar), and the rest of the rash pretty much went away. I don't *think* that I have celiac disease (essentially no symptoms except the rash, and negative bloodwork, albeit 6 weeks after I stopped eating wheat), and I don't *think* that this rash is DH, because it doesn't look like the pictures of DH that I've been able to find on the web. But it's definitely diet-related, so I can't help but wonder.

Anyway, it flared up again this weekend; I think some of my food must have gotten cross-contaminated at Thanksgiving. So I took a couple of pictures and put them up at

Open Original Shared Link

Does this look like something that could possibly be DH, or more likely just a run-of-the-mill food allergy?

Thanks for any input,

Jeanne

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frenchiemama Collaborator

My DH appears in fairly large symmetric patches all over my body (for example I have a patch above each knee and on the outside of each ankle, as well as both elbows and the backs of both hands).

I do get a rash around my knuckles that looks similar to yours, and my dermatologist told me that it is a type of eczema.

Link to comment
Share on other sites
JoeB Apprentice

I used to get rashes that looked like yours, mostly on my joints - elbows, knees, toes, shoulders, etc. The rashes were almost always symmetrical. Before I was confirmed with celiac disease, my dermatologist told me it was eczema and that I had hypersensitive skin.

After being gluten-free for about 3 months, 95% of the rashes disappeared. I 'm 8 months into the diet at this point and I still get small bumps once in a while on my elbows, but they are hardly visible now. I still get occassional mild itching (I used to be itchy all the time). I have to see my dermatologist next week and I'm curious to see what his opinion is now that I've been confirmed to have celiac disease.

Regarding blood work, you need to be eating gluten for any testing, including blood work and biopsy, to be accurate. You should be tested again. Remember, the biopsy is the "gold standard" for determining whether you have celiac disease. Blood work is really only a confirming test.

If I were you, I would try going on the gluten-free diet for a couple of months and see if you notice improvement. Doctors are helpful, but you're the one who has to steer them in the right direction!

Link to comment
Share on other sites
debbiewil Rookie

I do get little tiny blisters the first day, then they dry up (Or I scratch so much I break them) and what's left is red splotches, rashes, and occasionally a patch of dry peeling skin. Your pictures looked much like my hands the second day. I do get the blisters first, but not everyone blisters. Try to see if the doctor or dermatologist will test the next time you have a break out.

Debbie

Link to comment
Share on other sites
antoinette Newbie

Hi there - I'm new to the board (and from the UK!) I've been desparately trying to search the net to find out what is happening to my hands.

Ok, a brief history, I have digestive probs, food intolerences, candida overgrowth, and raynauds and as its bloody freezing over here at the moment its not helping.

I thought I was getting to grips with all the above, now I have developed itchy rashy spots on my right hand. Starts off as a little clear nodule that itches, then grows bigger, develops a white inside (although its not pus'y or blistery, perfectly hard, and a purple ring around the white. Another one on my little finger which itched so much I scratched it and now its open, although I don't think anything has come out of it pus-wise. Tends to only itchy when my hands are hot/warm, as I get Raynauds this is a rarity, but when I do the washing up as soon as I put my hands in the water they start itching again.....argh, its annoying.

Saw a pharmacist today who said go to the doctor, have had a nightmare with doctors as they aren't sympathetic to the problems I suffer with, so have done everything herbally!! I'm worried about the spots because they aren't anything I've had before.

I happened upon scleroderma which is linked to raynauds and also DH, and my sores are very similar to the person who linked her pics to this forum.

Have had tests for celiac and they were negative, although the test was just a blood test, which can come back neg even when it isn't!

ANY help would be gratefully received as I REALLY don't want to have to go to the docs again, plus I can't take time off of work at the moment what with the Xmas rush!!

Thanks for reading.

Ant.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,072
    • Most Online (within 30 mins)
      7,748

    SherryT
    Newest Member
    SherryT
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Nacina
      Well, that's a big question. When he was seeing the nutrition response testing dr. that changed each time we went in. He hasn't been seeing him regularly for theist ten months. When he had a horribly week in March I started him back on the 4 that were suggested to keep him on. Those are: Standard Process Chlorophyll Complex gluten-free, SP A-F Betafood gluten-free, SP Tuna Omega-3 Oil gluten-free, And Advanced Amino Formula. He also takes a one a day from a company called Forvia (multivitamin and mineral) and Probiotic . Recently he had to start Vitamin D as well as he was deficient.  
    • Fluka66
      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
×
×
  • Create New...